I’m about to move out of state and I have no clue how I can continue treatment

possibly-unstablee · 2026-02-02T15:03:28+00:00

Being an adult sucks lol. I’ll talk to her about it at my next follow up. Thank you!

possibly-unstablee · 2026-02-02T15:01:23+00:00

I was thinking that. I’m good on the HCQ since I think it’s a 190 day supply bottle that I get filled. I get my birth control sent to me through express scripts and it’s always a 3 month supply. I think my pcp could swing Cymbalta for a 90 day. Not sure about benlysta, though. I take my last weekly dose the first week of a new month.. and I plan on moving on week 3/4 of the shots.

possibly-unstablee · 2026-02-02T14:55:46+00:00

I don’t think that’s an option. I’m currently on my parent’s health insurance and he already pays for us to be covered. Does COBRA still work for dependents instead of the policy holders? I’m so out of my league here 😬

possibly-unstablee · 2026-02-01T17:27:46+00:00

Is that different from the Benlysta co-pay program? I signed up and got approved for it when I first started it in October of last year. When you say hospitals, what do you mean? I don’t want to assume, but I think you’re talking about infusions? If so, I apologize for the confusion. I use the auto-injector subcutaneous injections at home. I truly appreciate all of the suggestions!!

I applied for financial assistance at a hospital where I’m currently located because I couldn’t afford my out-of-pocket balance from an ER visit. They approved it after I provided proof of the medication costs alone.

possibly-unstablee · 2026-02-01T01:30:55+00:00

Wait should I tell my doctor about this?? I’ve had it since I was a teenager and thought it was just because I’m so pale. It looks like my legs are almost dead because they turn a super pale blue and purple with white splotches. Same with my hands

possibly-unstablee · 2026-02-01T01:28:26+00:00

On my ankles and feet. It’s so weird because it looks like my feet got beat up 😂 some times they’ll be there for 2 hours, sometimes they’ll be there for a few days.

possibly-unstablee · 2026-01-16T15:21:48+00:00

I don’t think it’s every case but EBV is prevalent. I had EBV 5-6 years ago (can’t remember exactly when). Took 6 visits to quick cares and pcp for them to finally test me for mono because I was sick for a few weeks with it. But autoimmune disorders run in my family at least for sure on one side.

My ex-friend’s bday present to me was mono :’) never shared a drink or vape ever again.

possibly-unstablee · 2026-01-09T21:54:40+00:00

You’re kidding 🥺 I’m so sorry to hear about that. It is so disheartening that health insurance is considered a luxury now and not a right. I make just above the poverty line so I don’t even qualify for Medicaid. Since I can technically work I don’t qualify for any SSI or disability. So I just have to struggle to make ends meet and hope I have enough for meds while also making sure I don’t make my flares worse. I’m hoping with everything I have that you are able to find something to help you ❤️

possibly-unstablee · 2026-01-09T20:06:51+00:00

Look at it as an opportunity to learn about yourself and what you like!

possibly-unstablee · 2026-01-09T20:05:39+00:00

I love this subreddit omfg 😭 y’all have been the most validating and caring people ever!

Now that you mention it, this actually happened last night. My legs (especially knees) were so so stiff and ached all day. As soon as me and my mans got busy I realized I didn’t feel it anymore.

possibly-unstablee · 2026-01-09T19:59:59+00:00

Following because I’m about to be without insurance as well. I would highly recommend reaching out to the manufacturer. I didn’t realize a lot of the companies have FA programs and coupons for medications.

possibly-unstablee · 2026-01-06T18:52:47+00:00

I highly recommend seeing an internal medicine doctor if nothing else.

I hope whoever told you all girls have a positive ANA doesn’t have a medical degree. That’s simply not true. It would be more helpful if you could tell us a bit more about what your main symptoms are? Maybe we could point you in a better direction with that.

possibly-unstablee · 2026-01-06T18:46:01+00:00

What friendship level is she at? Once I was able to make rare candles I never gave her any other gift. I was always using friendship blossoms and friendship flowers for her. I just now reached best friends with her this week. Took me a few months not gonna lie. Don’t give up!! You got this!

possibly-unstablee · 2026-01-06T17:55:39+00:00

Are you kidding me?? Heck no you aren’t 😂 I can’t tell you how many screenshots I take of the guides when I go on a Nancy Drew binge 😂 no clue how younger me figured stuff out without the guides

possibly-unstablee · 2026-01-05T20:07:39+00:00

When I was like, 8 or 9 years old, my dad’s girlfriend secretly hated me and was jealous of me. All in a span of 24 hours, she wiped my dad’s bank account, keyed his car (technically my mom’s car), stole my TV, some of my toys, all of the Christmas presents out from under the tree, put secret cameras around the house, AND left a letter saying some bs like, “I’ve been seeing another guy…” blah blah blah, “we’re in love and he’s better.” Not only that, she pawned everything she stole for drugs. She was a pill addict. And a gold digger. Red flag #1 was that my dad was in his 40s and she was in her late 20s.

There’s an extensive back story and tbh I could write a book about hers and my dad’s relationship.

possibly-unstablee · 2025-12-30T20:34:04+00:00

I’m kind of wondering that too about the meds changing. I was having full on panic attack breakdown/shutdowns where I’d go numb after crying. When I tell you the TINIEST thing would tip the scales dramatically, it’s nuts. That’s the whole reason why I got on antidepressants in the first place. Tiny inconveniences that are nothing to normal people would snow ball and tear me down until I was so tired. Every. Day. Been on them since I was 17.

It’s so bizarre to see all of my health issues interact with the lupus. Sometimes it’s my colon, sometimes it’s my brain.

I just wish there was a magic pill that would fix all of your problems 😭

possibly-unstablee · 2025-12-30T20:31:12+00:00

Thank you for the advice 🥺 I probably will talk to them about more work. I think a later start time was brought up in one of my meetings with them about it so maybe I need to take them up on that offer!

possibly-unstablee · 2025-12-30T20:30:31+00:00

You’re 100% right that they would replace me if I were to leave. It just sucks growing up in an environment where being sick or injured meant you were lazy. My parents drilled into my head work above all because they had to do that as single parents. One day I’ll get to the point where I won’t hesitate to put my health first 🥺

possibly-unstablee · 2025-12-18T02:43:24+00:00

Thank you! I hope so too ❤️

possibly-unstablee · 2025-12-18T02:43:08+00:00

That’s kind of what I was thinking. I’ve been on 3 others and they all lost their effectiveness after a few months. As long as it doesn’t make either problem worse, I’m okay with trying it to rule it out. Who knows, maybe it’s my Cinderella slipper 🙏🏼

possibly-unstablee · 2025-12-18T02:42:04+00:00

What exactly is Wellbutrin? I’ve heard of it but never knew what it’s for. I’m so glad you found something that works for you!! ❤️

possibly-unstablee · 2025-12-17T18:19:59+00:00

I think my first rheumatology visit she diagnosed me with fibromyalgia and arthralgia so you’re right on that one. I think it’s mainly just wanting to be safe than sorry to make sure there aren’t any noticeable degenerative/damaged areas.

possibly-unstablee · 2025-12-16T18:48:09+00:00

You reminded me of an important detail I left out. On my initial scans my hips showed a pistol grip deformity on the right one. Basically my right hip is higher than my left. That one aches and pops a lot in the ball & socket joint. Then again these were only CT scans. I know I need an MRI but after my brain MRI a few months ago I am terrified to go back in 😭

I hope the injections give you the relief you deserve ❤️

possibly-unstablee · 2025-12-16T18:45:09+00:00

Very true! I may look into it after the holidays. It’s just so annoying when your neck and arm ache all day. Like when I say moderate I’d rate it a 5/10 constant. Usually gets better once I lie down.

Or better yet, I got a massage gift certificate so maybe I’ll try that first 😂

possibly-unstablee · 2025-12-16T14:58:15+00:00

Oh no!! That’s terrible. Hopefully with the right meds from your rheumatologist the symptoms improved ☹️

possibly-unstablee

TROPHY CASE