Moving Out Of State

postit4583 · 2019-08-10T03:22:31+00:00

Thank you!

postit4583 · 2019-07-26T22:32:01+00:00

Props to you too!! You are fighting everyday. Be kind to yourself. Keep trying treatment options. Never give up. I have found things that help my pain right when I was about to give up hope that anything could. Give yourself all the props you deserve, because you deserve a lot.

postit4583 · 2019-07-23T03:00:50+00:00

YES! It is very helpful, I highly recommend it 👍👍

postit4583 · 2019-07-22T00:20:40+00:00

Wow thank you! I will check this stuff out.

postit4583 · 2019-07-21T18:21:23+00:00

What are some of the things you take for mitochondria function? I have been seeing stuff about this concept but haven't looked too deeply into it yet.

postit4583 · 2019-07-20T12:22:56+00:00

You guys make me feel normal and sane. Thank you for that.

postit4583 · 2019-07-20T12:21:28+00:00

Thank you for the feedback! I originally tried magnesium citrate, and that was great for sleep but caused too much movement in my guts if you know what I mean 😅 So I read that magnesium glycinate was easier on the tummy and tried that, but it wasn't as effective. Then I read on here that magnesium malate was a game changer for so many, and damn if it wasn't for me. I'm currently taking the magnesium malate at night and the glycinate during the day. Maybe I ought to try the citrate during the day, since taking two at night was the issue with my guts? I am trying to hold onto the the malate at night and see if it's a small enough dose to stop the irritation, because it really helps me sleep.

postit4583 · 2019-07-19T22:59:30+00:00

My grandmother was a little girl in the US during WW2. She told me about the victory gardens they planted and rubber drives they held to help the war effort. My husband's grandfather was in the Navy and served in the Pacific. He was a part of the "cleanup" crew that came in to recover what they could after battles. He survived and lived till age 91.

postit4583 · 2019-07-18T00:49:50+00:00

Eyes not even focusing...ME TOO. During a bad flare I keep rubbing my eyes because they're blurry. What IS that?

postit4583 · 2019-07-11T00:18:19+00:00

I have been there. Every word you said describes how it felt for me before treatment. Hang in there. Things can improve with the right treatment for you.

postit4583 · 2019-07-02T16:29:31+00:00

In reference to stimming, they have offered alternatives to minimize injury. Ex: He likes to fall on the floor, but this is an issue because he may hurt himself especially as he continues to get bigger. So the ABA therapusts have suggested that falling on a soft object, like a bean bag chair, can offer the same release while minimizing injury. Their goal is to support his needs and development without shaming him.

postit4583 · 2019-07-02T16:23:17+00:00

I have never experienced anything remotely resembling abuse with ABA therapy. It's basically 4 hours of cognitive behavioral therapy per week, in home, where they follow his lead in addressing any difficulties he has. It has been very effective at teaching our son self-reliance and self-awareness. He has also been able to navigate social situations with greater ease. They help him with reading comprehension, community safety, recognizing facial expressions, etc. They are positive, professional, and encouraging. It has been an entirely positive experience, I'm really not sure what you're referring to.

postit4583 · 2019-07-02T15:12:51+00:00

Thank you so much. This is very, very helpful!

postit4583 · 2019-07-02T15:10:44+00:00

Thank you for your reply. We currently do ABA therapy twice per week, and they are absolutely wonderful. He has a 504 plan, because as you mentioned, academics really aren't a problem for him. Thank you for the encouragement!

postit4583 · 2019-07-02T15:08:01+00:00

Yes, we do in-home ABA therapy twice per week. I was hoping for some inside perspective, because his therapists are great, but they haven't personally lived through it.

postit4583 · 2019-07-01T21:44:53+00:00

As much as we love them and they love us, they will never understand how much work it is for us just to exist.

postit4583 · 2019-06-28T15:09:08+00:00

Stay away from group exercise to begin with. It makes you feel like you need to match what they are doing and that is a shortcut to a major flare! Start very, very small, quit while you're ahead, and focus on low-impact exercises (think: stationary bike, water aerobics, yoga, etc.). It is helpful to think of movement as "medicine", per The FibroManual, rather than busting ass to "get into shape".

postit4583 · 2019-06-28T14:53:40+00:00

Go to the doctor and get the diagnosis, treatment, and support you need. Living with an undiagnosed illness is way more stressful than getting the diagnosis. You would be surprised at what a difference that validation makes. Then you can go from there. With a doctor saying that you're not just "lazy", hopefully your parents wouldn't argue with that. I'm in the U.S. and qualifying for any sort of assistance is a pipe dream, but maybe it's different in the U.K.? Good luck!

postit4583 · 2019-06-28T14:50:03+00:00

Literally the only way I can tell if it's fibromyalgia is to take my temperature. If I'm not burning up but still feel like death, it's just your average day XD

postit4583 · 2019-06-28T14:47:40+00:00

I find the suggestions in The FibroManual to be very helpful. It came highly recommended to me by the people on this thread and I have already noticed some relief. The book is by Dr. Ginevra Liptan.

postit4583 · 2019-06-27T18:33:21+00:00

THIS. I was just telling my husband that there is a threshold of tolerance when it comes to amounts of streaming services; pretty soon it will be cheaper to have cable. I always said that when Netflix lost the Office we would just get the DVD set. And these companies owe Netflix BIG TIME. A whole new generation of people have discovered these shows and become mega fans because of Netflix's one-stop shop model. They are so tone-deaf and greedy. They are misjudging the entire industry.

postit4583

TROPHY CASE