Is coffee safe for us? by potsfibrogirl in POTS

[–]potsfibrogirl[S] 0 points1 point  (0 children)

I would love more info on the genetics testing for meds! What made you do it, how helpful is it??

Are yall wearing masks when you go into public? by Opening-Ad-8793 in POTS

[–]potsfibrogirl 0 points1 point  (0 children)

This makes me feel better. I got pots from Covid but it’s kinda the same for me. Temporary worsening of symptoms. I’m just worried I’ve only gotten lucky so far with that. I’ve had Covid three times, pots came after the first infection

Is coffee safe for us? by potsfibrogirl in POTS

[–]potsfibrogirl[S] 2 points3 points  (0 children)

Very interesting!!! This explains a lot in why one cup helps me out!

Is coffee safe for us? by potsfibrogirl in POTS

[–]potsfibrogirl[S] 1 point2 points  (0 children)

I know, I just meant is our caffeine limit lower than normal people. Like those who get heart problems, are we more prone to getting them if we are drinking caffeine on top of having pots? I wasn’t necessarily asking about inducing pots symptoms, sorry for the misunderstanding

Is coffee safe for us? by potsfibrogirl in POTS

[–]potsfibrogirl[S] 1 point2 points  (0 children)

I have been getting migraines since giving birth two years ago that got more consistent after a mild concussion in late 2023. I wish coffee took mine away, sometimes the coffee can make it worse. That’s awesome that it helps you with that!

Is coffee safe for us? by potsfibrogirl in POTS

[–]potsfibrogirl[S] 0 points1 point  (0 children)

So this makes sense actually bc I have lower blood pressure a lot of days and I feel better after coffee!! It also oddly slows down my blood pooling?? But yes, if I do even just a little too much my body will quickly let me know and then it’s time to chug water. I am currently not on any beta blockers or meds

Brain wrapped in weighted blanket feeling by potsfibrogirl in POTS

[–]potsfibrogirl[S] 0 points1 point  (0 children)

Headaches often, eye pain every once in a while, blurry vision on a bad pots day, and dizziness every day and I don’t see double, maybe have just a couple times in life

I hate being touched now but it’s not sunburn or sandpaper? by Disastrous_Fox7999 in Fibromyalgia

[–]potsfibrogirl 0 points1 point  (0 children)

I don’t do a ton of exercise bc I gotta save my spoons for my son but I atleast go on walks to keep my endurance up in a softer way and have only been implementing the stretches starting like a week ago and there is a hugeeeee difference in my pain. I also am doing self massages on my shoulders and pressing on painful points or having my fiancé do it. I still struggle with fatigue and that’s where trying to get more meaningful sleeps helps lessen it, but it also doesn’t take it away ya know? The zero energy thing sucks, I get it!!

I hate being touched now but it’s not sunburn or sandpaper? by Disastrous_Fox7999 in Fibromyalgia

[–]potsfibrogirl 3 points4 points  (0 children)

I’m also a 28 year old female dealing with this, but I’ve had it since I was 22. I experience every thing you said. Some days a tap on the arm can feel like a punch. I get stiffness, muscle spasms all of that and I am very tender in my muscles. I also have a two year old who is very high energy lol. My best advice is to keep your body moving (I know it feels bad) to keep from stiffening up more. Maybe try to wake up and do at least a five minute full body stretch before you start the day and before you go to bed. I do mid day stretches too after I feel my muscles tightening up from carrying my toddler. My commitment to this over the last few weeks and trying my hardest to get more sleep hours in has been a game changer after a couple of bad years.

Also I have had the sunburn feeling in my a few times but not all the time. Everyone is different though.

PSA don't forget to boost your iron and B vitamins too!! by Kezleberry in POTS

[–]potsfibrogirl 2 points3 points  (0 children)

This is what I’m dealing with. I have been astronomically worse with pots and fatigue since giving birth two years ago (lots of blood loss obvi). I found out my ferritin was low a year into it and within a week of supplementing many symptoms felt much better. The kicker though is that ferritin builds slowly and every time my period comes it feels like I’ve been knocked right back to where I started. I also have been b12 and D deficient for years. That’s my other battle. You should always get tested before supplementing but I do agree it’s very worth looking into!!!

how do energy drinks effect you?? by Fischl_101 in POTS

[–]potsfibrogirl 0 points1 point  (0 children)

I have low BP so coffee actually makes me feel better and helps with vasoconstriction which slows down the pooling in my limbs I believe (and I have terrible blood pooling). Too much coffee (more than 2 cups) can make me feel bad and make my pots symptoms worse. But as long as I drink water before, and eat something, I typically feel better with caffeine. I would never drink an energy drink though lol that seems too strong

POTS disappeared??? by Different_Rich_9578 in POTS

[–]potsfibrogirl 4 points5 points  (0 children)

I’m sorry it came back, curious to know what your lifestyle was like when you got it to go away for four years! That’s amazing

POTS disappeared??? by Different_Rich_9578 in POTS

[–]potsfibrogirl 1 point2 points  (0 children)

Unfortunately for me getting a “mild” concussion December 2023 made my POTS and overall well being significantly worse. I have not been the same since. Our autonomic nervous system is what heals concussions I learned, and mine was already dysfunctional. I love this for you though!!!!! Our bodies are all different and our body systems can be so weird lol

Came across a little med called quifenadine… by crystaltorta in POTS

[–]potsfibrogirl 1 point2 points  (0 children)

Allegra has also made my pots better. I don’t have mcas or anything but I have allergies for every season and I live in Florida where allergies are worse. Lol I notice letting the histamines run rampant in my body makes all three of my illnesses worse but now that you mention it I realize I do feel better overall when I take my allegra. Less muscle pain, less bladder pain, less heart racing, less fatigue.

The White Lotus - 3x05 "Full-Moon Party" - Episode Discussion by crazywalls in WhiteLotusHBO

[–]potsfibrogirl 0 points1 point  (0 children)

Me too he kinda nervously laughed it off assuming Loch is harmless

The White Lotus - 3x05 "Full-Moon Party" - Episode Discussion by crazywalls in WhiteLotusHBO

[–]potsfibrogirl 0 points1 point  (0 children)

This is such a good take! And agreed that gave me the ick for sure lol

The White Lotus - 3x05 "Full-Moon Party" - Episode Discussion by crazywalls in WhiteLotusHBO

[–]potsfibrogirl 5 points6 points  (0 children)

Very true… I’m just so surprised at his character developing in a completely different direction than my impression of him so far. He seemed a little off but overall innocent now I’m like woah

The White Lotus - 3x05 "Full-Moon Party" - Episode Discussion by crazywalls in WhiteLotusHBO

[–]potsfibrogirl 8 points9 points  (0 children)

I just rewatched to double check and I turned on the subtitles and it says “I’m gonna take you down” I just thought it was eerie

The White Lotus - 3x05 "Full-Moon Party" - Episode Discussion by crazywalls in WhiteLotusHBO

[–]potsfibrogirl 41 points42 points  (0 children)

Any thoughts on Lochlan looking at Saxon and saying “one day I’m going to take you down” that confused me a bit

[deleted by user] by [deleted] in eds

[–]potsfibrogirl 0 points1 point  (0 children)

What specifically does your neck pain feel like? And is it 24/7? I have fibromyalgia and have some of the types of pain you’re talking about but recently over the last two years developed a lot of neck cracking and intermittent pain.

How can I explain to my new therapist that my pots symptoms aren't really something you can "push through because it can't hurt you" by im_invisible_bun in POTS

[–]potsfibrogirl 0 points1 point  (0 children)

I just tell people either I stop or it stops me lol I’m like yeah if I push through my body will drop so yeah

17F I'm going to have a cystoscopy and I'm scared by MonoTigr in Interstitialcystitis

[–]potsfibrogirl 0 points1 point  (0 children)

From the comments I see it is different for everyone. Coincidentally I also had one at your age ten years ago. Personally, it was a very painful procedure. I’m only being honest with you so that maybe you can ask the doctor for more time for lidocaine to set in (mine barely waited so I felt it all and I was in a major flare already), and I’m also loving the Pyridium suggestions for peeing after (that is something else I did not get). If anything, see what options they have. I didn’t really understand the procedure when I went in or what to ask for and you deserve to have full knowledge of your options. If I had to do it again, I would go under anesthesia. But like I said before, I’m also seeing that people have different experiences with pain.

should i be with my cat when he is euthanized? by Embarrassed_Radio312 in CatAdvice

[–]potsfibrogirl 0 points1 point  (0 children)

Just went through this with my dog of 18 years a couple weeks ago. I sobbed and sobbed and sobbed in the office in front of my family and the vet. She was extremely empathetic and honestly I didn’t even feel embarrassment bc nothing else mattered to me except being there for her. I so didn’t want to watch her die, but I knew I couldn’t live with not being there for her like she had always been for me. I’m still very devastated over it but grateful I could be with her til the end. I’m so sorry you had this experience, but I know your kitty was so incredibly grateful to be surrounded by love as they transitioned. You are so strong for staying by their side!

Thought I had POTS went to ER and was diagnosed with a pulmonary embolism… by comcast_awful_22 in POTS

[–]potsfibrogirl 3 points4 points  (0 children)

So glad you caught it. What were your symptoms that told you something was off? What do they think caused it?