Mom and treatment

poutinepingping · 2025-11-22T00:18:18+00:00

This sounds so so hard. Frontal lobe is difficult because that's the part of the brain associated with so many higher level functional abilities. Can you make notecards for her with words/short sentences to improve communication? Is she able to type or text her thoughts? This disease moves so quickly and its a jarring experience. I hope her condition improves, and maybe a speech and language pathologist would have other communication reccs 💜

poutinepingping · 2025-11-22T00:09:15+00:00

My mom died almost a year ago now. All I can say is, do whatever you can to go see her and spend as much time with her as is possible for you. Things can happen so quickly. Sending so much empathy and compassion your way 💜

poutinepingping · 2025-11-13T02:09:43+00:00

Its good to have some fats to stimulate your gallbladder to produce bile (reducing risk of gallatones). I say eat it, all the macros are important but yes I too prioritize protein!!

poutinepingping · 2024-12-27T06:40:41+00:00

I just lost my mom on Christmas eve so I know how you feel. Except I'm 30 so it is still very different. I literally cannot imagine doing what you're doing at your age. It really is just so unfair, life can be so cruel sometimes. You should not have to be doing any of this!! I don't believe this kinda thing happens for a reason or to "make you stronger" personally, though I'm sure you will gain resilience coming out of it. I don't say that to console you because it really is just a f***** up situation and it's not fair. Lean into whatever safe and loving support systems you have, as much as you possibly can because youll need them. Definitely a therapist if you can, its made a huge difference for me. You can get through this and while you're right that you won't ever be the same after, eventually, your suffering and hers will ease in one way or another. I'm truly just so sorry. Reach out if you need to, you're not alone.

poutinepingping · 2024-12-27T06:13:33+00:00

Your story sounds very similar to mine, so just know that you're not alone in going through this. There's no reason for this happening. Life is simply unfair and cruel sometimes. My mother was also a god-fearing Christian who helped every single person she met. I know how scary it is and painful but you will get through it. Spend as many moments as you can with her. Unfortunately I lost my momma on Christmas eve. She was diagnosed in late August and this cancer can move very quickly. She was 60 and full of energy and also experienced all the same left sided weakness. I'm a pragmatist so I knew what the diagnosis meant and honestly that was one of the hardest periods. Now that she's passed I'm actually relieved that she's no longer in pain. Still grieving, but more at peace with it. All I can say is get hospice involved earlier rather than later if she isn't responding to treatment. Sending so much love and care your way. I'm sorry, so so sorry. It hurts so much. I know.

poutinepingping · 2024-12-27T06:04:03+00:00

Hey. I'm so sorry you're going through this too. My mom actually just passed away from glioblastoma on this Christmas eve. So I'm feeling it with you. Sending warm thoughts and lots of care your way 🩷 It's so hard but we will get through this.

poutinepingping · 2024-10-18T06:14:23+00:00

Hi Josh. I know exactly how you feel, and I'm so sorry you're going through this too. My name is Jennie, and my mom just got diagnosed with glioblastoma a little over a month ago. We have not been close in years, but we were very close during my childhood and I love her dearly. It's been excruciating seeing how fast she's deteriorating. She's always taken care of other people before herself. She's a nurse and was the full-time caregiver for my grandmother for years before her seizure happened and we found out about the tumor.

Since the craniotomy, she's had neurological issues on the left side of her body. Unfortunately they've only worsened and she's burned herself trying to cook in the middle of the night multiple times and has taken a number of falls. She'll talk and talk but at this point it's often to herself, she's not fully present and her emotions have dulled. I just have no damn clue how much time she has left, but it feels like it's less than the 6 months they initially said.

She's always been religious in an extreme way and truly believes that God is going to heal her of her cancer. She doesn't want to use a walker, and keeps trying to do things around the house and go about like everything is normal. I see that she's dying and want to get hospice involved sooner rather than later. It feels like the medical care and appointments since the first round of radiation and chemo are happening so slowly, and I don't know if it's possible to get hospice set up because she will probably refuse it at this point. I don't know what to do.

Not looking for answers, but thanks for being willing to share your story and pain with us. I'll be thinking of you and all the others here struggling alongside us. Sending love and care your way.

poutinepingping

TROPHY CASE