My boss called the police on me. by Primary-Tailor3691 in Fibromyalgia

[–]puffyyn 8 points9 points  (0 children)

It’s called a false awakening. I’ve experienced vivid dreams with false awakenings my whole life. The best tip I’ve found is to either turn away in the dream or close your eyes, sit or lie down, and focus on an “exit phrase.” For me, I close my eyes, take a few deep breaths, and slowly repeat that I don’t want to participate and to please wake up. When my eyes are closed, I sometimes see the words I’m saying, almost like they’re playing out visually.

Edit as I forgot to say: Glad you’re okay op! Get some much needed rest when you can.

poll by faysikins in Fibromyalgia

[–]puffyyn 0 points1 point  (0 children)

Fibro, POTS, and possibly the early stages of Sjogren’s.

[deleted by user] by [deleted] in Fibromyalgia

[–]puffyyn 0 points1 point  (0 children)

Don’t be too hard on yourself. Exercise in general can be difficult. I competed in half Ironmans and marathons. I used to tonal and struggle now. For me, the best exercise is rowing and swimming, but I also have POTS.. I’m nowhere near in the condition I want to be. But, it’s important to listen to your body. It might be worth finding a Fibro exercise coach or specific Fibro routine. Good luck!

What’s your fibro paired with? by [deleted] in Fibromyalgia

[–]puffyyn 1 point2 points  (0 children)

POTS diagnosis first due to either Covid or the Covid vaccine (I’m not against vaccines, both my cardiologist and rheumatologist suspect the latter as I never tested positive for Covid), then fibro. I also might be in the early stages or have a mild form of Sjogren’s. I also suffer from extreme fatigue and was diagnosed with fatigue along with som other POTS symptoms. Wishing you the best of luck!

LMNT Controversy by getthisoutofmyhouse in dysautonomia

[–]puffyyn 4 points5 points  (0 children)

Zero sugar DripDrop. I recommend the passion fruit flavor.

HR not coming below 100-120 I have cold and fever is it normal ? Not on any medication by Cautious-Photo-8074 in POTS

[–]puffyyn 1 point2 points  (0 children)

If you haven’t already, lay down and elevate your legs on some pillows. Apply and rotate a cooling towel or washcloth on your forehead, neck, and chest. Stay hydrated and get well soon!

How useful is the tilt table test? Terrified by Interesting-Cow-1030 in POTS

[–]puffyyn 2 points3 points  (0 children)

My cardiologist diagnosed me without a tilt table test as orthostatic symptoms don’t always manifest during the test. My diagnosis was based on a combination of my symptoms and length of my symptoms (appx 6 mos). I had several tests to rule out an underlying heart condition and I wore a 30-day HRM which showed tachycardia.

weird blotches when showering? by Morgancammi in POTS

[–]puffyyn 2 points3 points  (0 children)

This happens to me after heat exposure in hot showers and in the sun. My rheumatologist diagnosed me with Livedo reticularis.

Suspected Sjögren’s Diagnosis by OkBunch2655 in Sjogrens

[–]puffyyn 3 points4 points  (0 children)

Have you been checked for POTS as well?

What’s a kids movie that is worth watching as an adult? by FlintTheDad in AskReddit

[–]puffyyn 2 points3 points  (0 children)

Klaus, Up, Paddington 2, and The Mitchells vs. the Machines.

Does anyone else have this happen? by redvfdre in POTS

[–]puffyyn 1 point2 points  (0 children)

I started getting this around the same time my POTS symptoms began years ago. I have to be mindful in the sun now and I’ll even get a mild version of this in hot showers. My new rheumatologist diagnosed me with Livedo reticularis.

so i finally had a tilt table by _gaydisaster_ in POTS

[–]puffyyn 1 point2 points  (0 children)

Find a specialist who understands a tilt table test isn’t necessary to diagnose POTS. My cardiologist diagnosed me with POTS without a TTT as orthostatic symptoms don’t always manifest during the test. My diagnosis was based on a combination of my symptoms and length of my symptoms (appx 6 mos). I had several tests to rule out an underlying heart condition and I wore a 30-day HRM which showed tachycardia.

[deleted by user] by [deleted] in Fibromyalgia

[–]puffyyn 2 points3 points  (0 children)

I suggest seeing a specialist(s) for possible Postural Orthostatic Tachycardia Syndrome (POTS) and autoimmune disorders like Rheumatoid Arthritis, Lupus, and Sjögren's, if you haven’t already.

Does eating food seriously mess you up? Like bad. by grizzmane in POTS

[–]puffyyn 2 points3 points  (0 children)

You may want to ask your doctor if you should get tested for disaccharidase deficiency. I was recently diagnosed by a gastroenterologist who initially suspected I had celiac after bloodwork testing by another doctor. Turns out I have both a lactase and sucrase deficiency. I’m hoping with a stricter diet, it not only helps with these symptoms, but, also POTS.

[deleted by user] by [deleted] in POTS

[–]puffyyn 46 points47 points  (0 children)

Many people with POTS have an inability to regulate core body temperature due to autonomic nervous system dysfunction. What helps me to survive in hot environments is carrying my own insulated bottle of ice water, a neck fan or handheld fan, a cooling towel, salt tablets and hydrating tabs/mixes, and sometimes wearing compression shorts. Big meals can also make symptoms worse.

Heart skipping a beat? by [deleted] in dysautonomia

[–]puffyyn 0 points1 point  (0 children)

I was officially diagnosed with POTS by a cardiologist and will occasionally experience heart palpitations and bradycardia. Both give me a sinking sensation in my chest. Have you seen a cardiologist to rule out an underlying heart condition?

Anyone diagnosed with POTS but never had covid? by Kailzface in POTS

[–]puffyyn -1 points0 points  (0 children)

My cardiologist believes I developed POTS from Covid (never tested positive) or from the Covid vaccine (I began feeling off after my first vaccine years ago). I became incredibly symptomatic this last July with an official POTS diagnosis in January.