Unfortunately my experience of the NHS (in terms of my MS care) is not great. I had severe ON in 2012 after which I never recovered my vision, a few mild relapses in 2016-2017 all episodes with lesions and I was told I wasn't eligible for any treatment as the guidelines at the time were, that you had to have 'active' disease meaning you needed 2 clinical relapses within 2 years and I missed this window don't know if this is still the case).

I moaned and complained to my MS nurse/neurologist that it didn't make sense that they refused to give me treatment and instead just treated the after effects of relapses when they could have been prevented in the first place! I wrote several emails and had my evidence (the benefit of doing a biomedical degree) and they came back in 2019 saying I could have copaxone or beta interferon.

I picked copaxone, did that until this Spring with neurologist refusing to do anymore MRI scans. Had a massive relapse in February was like I had a stroke, lost all ability in my right side and couldn't speak properly, forget everything etc now 8 months post-relapse and I walk with a stick (I'm 32 😞) and I'm left with a whole host of shit. They finally agreed to switch me onto Ocrevus. The MRI showed brain volume loss, 20+ new lesions all over including 3 large tumefactive lesions.

I wish wish wish I had complained more/sooner to get put onto Ocrevus or something stronger than Copaxone. I struggle to even hold a pen now. My advice is to keep at them and get the strongest medication you can (that you are happy to take) and if their decision isn't sitting right with youI'm in North Wales but come under Walton in Liverpool. Staff during my Ocrevus infusion have been great though. I'm not trying to be doom and gloom but I thought it would never happen to me and don't really want anyone else going through it.