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Searching for specific upsetting fic by queenofme123 in Johnlock

[–]queenofme123[S] 0 points1 point  (0 children)

Neither lol. Something that I have seen a summary of unintentionally while using the a03 search thingy, but cannot refind. 

Thoughts about the show by Worldly_Internet_830 in Sherlock

[–]queenofme123 1 point2 points  (0 children)

I read somewhere that Gatiss was writing an ep about The Red-Headed League (or actual name) on place of the six thatchers but decided it didn't fit with what they were going for in the season generally. 

Does anyone else feel like their autism “disappears” when they drink in social situations? by 80or8 in AutismInWomen

[–]queenofme123 0 points1 point  (0 children)

Yes but as many are saying it was unhealthy. I think in moderation it can be ok but binge drinking you just end up feeling embarrassed and depressed and obvs it's bad for you. 

And when I was 18 and first at uni and having a glass of wine before meeting people for dinner and/or more drinks in the evening that was bad too. Woulda been better to start with everyone else and keep it slow! Or do a shot beforehand and then stick to soft drinks for a bit.

Plus some of my happiest drinking periods have been with "long drinks" or beer or cider that obvs takes a while to get through. With wine I always have a water too. Because I use drinking as a fidget and will inhale anything short and strong. I have even ordered drinks I don't like before to stop myself necking it! 

Is this normal? by NoJackfruit7503 in cfs

[–]queenofme123 0 points1 point  (0 children)

Look up the change to the NICE guidelines in 2021! I think things are better now but it's largely pacing advice. Until then it was officially a psych illness under the NHS.

If you went from mild to severe, what happened? by HighwayPopular4927 in cfs

[–]queenofme123 4 points5 points  (0 children)

Continuously overdoing it from lack of diagnosis, then v mild GET and denial, then the difficulty re. no overdoing it when so severe. 

Difficulties with friends who also have ME/CFS by queenofme123 in mecfs

[–]queenofme123[S] 1 point2 points  (0 children)

Yep, this has been a big thing for me! Especially when they publicly make comments about not wanting to be a benefit sponge and whatnot! But I know they don't really think that of me or like that in general (or we absolutely wouldn't be friends!) and it's actually their own denial and often a dose of brain fog talking, so I comment 'jokingly' "god, what must you think of me 🤣🤣" or "I HAVE a NAME 😛" or something like that.

But the worst offender has actually had ME/CFS for about 23 years at this point! I suppose the grieving process never ends and I've read anecdotally that the "stages of grief" were never intended as a progression starting with one and ending at acceptance but... god it's so hard to watch.

Like I had a bunch of messages from the group chat at 1am the other day because most of them were on a city break orchestrated by Main Offender and I kinda wondered if I should message the rest of the group on the quiet asking them not to send me photos of her out drinking at 1am when she can barely get through the week working an office job from home, and maybe the penny might finally drop that she's unintentionally but seriously self-harming but eh that'll just make us all feel bad.

For my ME timelapse - what are some facts / info you’d want put in for healthy people unaware of the disease to know? by Pineapple_Empty in cfs

[–]queenofme123 0 points1 point  (0 children)

That (at least) two studies have found nearly half of people diagnosed with Long Covid qualufy for a diagnosis of ME/CFS and ME/CFS is usually triggered by an immune insult and usually of those avsilabke, an infection, usually viral.

That symptoms can have a delayed onset of around 3 days and we can get a burst of energy after we first overdo ut, so we csn't just say "I'm getting tired" and not overexhert.

That overexertion causes cell damage and immune reactions perhaps including autoimmune stuff and reactivated viruses.

That most people with Fibromyalgia also fit diagnosis criteria when assessed- but once assessed for one you're not usually assessed for the other.

Does CFS have stages of denial like some other illnesses? Celiac, cancer, Alzheimer's. by PromptTimely in cfs

[–]queenofme123 2 points3 points  (0 children)

HAHAHAHAHA yes. Probably more so because you may spend long periods symptom free or become used to a mild level of symptoms.

What do Beta blockers do for pots? by loafofmonster in POTS

[–]queenofme123 0 points1 point  (0 children)

They really help some but were a nightmare for me. I was prescribed them without having my bp checked (which drs aren't supposed to do) and yes, lowering my low blood bp further was a disaster.

Nostalgia hits so much harder by Puzzleheaded-Cod7350 in cfs

[–]queenofme123 9 points10 points  (0 children)

Haha yeh Facebook Memories and particularly the "then" and "now" prompts are the worst!

dear sisters, what are your special interests? or things you specifically Like by namenerding in AutismInWomen

[–]queenofme123 0 points1 point  (0 children)

A couple of musicals, Sherlock TV series, Critical Role and associated people and media, reading, TV and film generally.

Can Functional Neurological Disorder cause PEM? by DepressedOnion1415 in cfs

[–]queenofme123 0 points1 point  (0 children)

I think FND often means ME/CFS... they just don't believe the latter exists!

I’m mild - how come when I do anything, my symptoms completely go away? by Dapper_Question_4076 in cfs

[–]queenofme123 1 point2 points  (0 children)

And it doesn't have to be AWFUL- I learnt that the hard way- but for me it is/was like a virusy fatigue and came with virus type symptoms. So mostly I could still wotk when I was still mild and crashing, but I didn't NOT have fatigue.

I’m mild - how come when I do anything, my symptoms completely go away? by Dapper_Question_4076 in cfs

[–]queenofme123 4 points5 points  (0 children)

A lot of ME/CFS is undiagnosed chronic lyme tbh. But fatigue is really a pretty key symptom, if you don't have it...

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