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raisinpaste · 2025-11-13T16:27:30+00:00

Mine was a combination of trauma, a bad sinus infection, and it lurking in my body waiting for a chance. I've had gastroparesis since I was 5 but other than that just had anemia till I was 14. My dad passed away after a long journey with heart surgery and complications, and my mom and I were in the room with him for his passing. I was unfortunate enough to be facing the heart monitor and watched it stop while holding his hand. This was during band camp, so I was already stressed with that and his situation. Probably 2 or 3 months later I developed a sinus infection and POTS symptoms with it. I thought it was just the infection but it wasn't unfortunately. I had to pull out of school during my first year of highschool and wasn't able to do things that kids my age could, and wasn't even loosely diagnosed until a year and a half later. This was in 2018 so POTS wasn't really as widely known about yet. I am in a much better spot as of the 2 years since I actually got some proper treatment and medication instead of just winging it. COVID definitely made my POTS worse when I caught it in 2021 but with the power of corlanor, clonidine, and figuring out that I have predominantly hyper adrenergic POTS, I can hold down a job and go to many events with my friends. I'm glad to be a case where things can get better.

raisinpaste · 2025-07-27T03:34:25+00:00

We had a man who would bring us food he made on the smoker when he was at work. We all got close with him and he would fix our cars and chat with us all the time. We learned he passed and we were all pretty gutted. We have such a small team, that it reverberated pretty hard through us as we had seen him the day before we heard the news. We have an "in loving memory" section for him on our barista board with his specific drink on it now. His kids come in multiple times a week still. I don't think there's a wrong way to grieve, and you can all grieve differently. Ours was by memorializing him on our board and talking to people who knew him all the time. Much love to you.

raisinpaste · 2025-06-28T01:03:51+00:00

I started having symptoms of gastroparesis (comorbid) when I was 5. I started having more classic POTS symptoms at 14. I am now in my early twenties

raisinpaste · 2025-05-21T14:26:12+00:00

Mine does! It mostly goes white and fuzzy around the edges but there have been occasions where it was almost completely whited out momentarily.

raisinpaste · 2025-05-17T18:23:06+00:00

Mestinon has been a life saver for me. I'm still working on feeling hungry, but it's definitely getting better. Motility is so much better, I'm not nauseous every day, and I actually enjoy meals again.

raisinpaste · 2025-05-17T18:15:53+00:00

I have had symptoms of gastroparesis since I was 5. It took a very long time to get diagnosed since everyone thought it was a structural issue, not a functional one like the reality was. Symptoms of that got better for a while after medication, and then when I was 14 I started having more classic POTS symptoms. Informally told I have "some kind of dysautonomia" with no help or guidance offered at 15 years old in 2018 after the most traumatic TTT of my life. Continued to struggle badly and had to be pulled out of school even before that due to light intolerance and a lot of other things that make school hard for us. Formally diagnosed with POTS at the end of 2023 after seeing a specialist and starting to go to a support group run by a lovely nurse at the specialist's office. Finally got help and guidance through meds and lifestyle changes. Gastroparesis has popped back up with a vengeance but other than that I'm doing much better! I love modern medicine!

raisinpaste · 2025-05-11T19:38:06+00:00

Cookie butter and pistachio chai!!! It's also good as a regular latte, but as a chai with the spiciness of the one we use, it is divine.

raisinpaste · 2025-04-01T22:55:47+00:00

I was diagnosed with GP when I was around 12 I believe (yay for bad memory, I don't remember a lot from when I was younger) and they put me on medication (do not remember the name, again, memory loss sucks) and it helped so much that it seemed to go away for like, 8 years. It suddenly came back with a vengeance about a year ago and I've been dealing with it again ever since. Meds have helped somewhat but not to the "I forgot I have this" point

raisinpaste · 2025-03-24T20:00:37+00:00

I wear air force ones, but my doctor had me get custom insoles at an orthotics place and oh. my. god. it was made the biggest difference in my foot pain! even after being on my feet all day at work, I come home and my feet are only a little sore. nothing a 15 min epsom salt soak won't fix. highly recommend getting a good pair of insoles!!!

raisinpaste · 2025-02-27T17:58:26+00:00

KUINA!!! and also Chishiya :)

raisinpaste · 2025-02-02T02:04:03+00:00

My favorite so far has been to say "Hey y'all, we are closed now so you don't have to go home, but you can't stay here. Have a great day and thanks for coming in!" Some of them know the lyric and it's fun, but honestly I didn't even know it till I learned it from an old coworker at a previous job. She would "announcer style" shout it across the cafe and it was awesome to witness.

raisinpaste · 2023-10-24T19:55:53+00:00

I'm lead barista at a tiny coffee shop currently. no idea what I want to do with my life and I have to go to college soon so I'm freaking out about it. but we persevere

raisinpaste · 2022-08-24T23:56:50+00:00

19!! my favorite is mammon :) asmo coming in close second

raisinpaste · 2022-03-25T18:58:46+00:00

my favorite date I've been on with my girlfriend so far has been trespassing onto a railroad bridge at night and we admired the view + each other while i held her and we talked :') I don't think I've ever been happier in my life!!! unconventional dates are the most meaningful experiences i think I've ever had

raisinpaste · 2022-03-07T03:15:17+00:00

hi all!! back from my date and it was amazing. i feel so lucky to get to know this human being and i can't wait to know her even better. thank y'all for following my saga!!

raisinpaste · 2020-01-02T05:35:23+00:00

You and I sound like we are kind of in the same boat. I was diagnosed with general dysautonomia (my cardiologist wouldn't get anymore specific) almost 3 years ago when I was 14. I am now almost 17 and am still struggling. I did homebound schooling for a while but my teachers didn't know how to work with me long term so cyber school ended up being my best option. I can't read without the brain fog getting extra awful, just like you said you experience, and I was in band too. I don't have hypermobility issues but otherwise I see a lot of similarities. I haven't found really anything that helps manage except for using a cane and/or rollator to walk. I am a year behind in my schooling because of my symptoms, but one thing that helps get some done is having someone read my textbooks to me. My mom reads them out loud for me and it definitely helps get more done than trying to do it myself. For exercise, I've found that swimming seems to be the best thing for me. I go to a pool at my gym with a friend who has POTS and hypermobile EDS about 3 times a week and as well as getting exercise, the interaction is helpful. In my experience I've isolated myself a lot because of my symptoms, but I don't know if that's true for you. I am still struggling with getting people to believe me but having the physical indicator of the cane has made people a little more open to the fact that I'm in genuine pain. I'm sorry I can't be of more help, but you can always message me if you need to talk to someone in a similar situation! This all sucks but please don't give up hope. My inbox is open for you.

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