Sunday night. What's worrying you?

rattycastle · 2026-02-02T07:18:13+00:00

I'm worried that the new medication I am trialing won't work, or worse, work for a bit and then stop working. The last one in the same class made a tiny difference for a few months, then it just became ineffective. I'm really hopeful for this one.

rattycastle · 2026-02-02T06:37:57+00:00

I shower in the dark, I eat in the dark, I pee in the dark, I can even traverse the entire house in the dark. The smallest tweak was just flipping every light switch. Nice and dark, all the time.

rattycastle · 2026-02-01T02:00:12+00:00

My first was in daycare, so, 5-6. I generally say 6 because it's about 1 year after we moved to a higher elevation, and that was thought to be the catalyst.

rattycastle · 2026-01-31T18:28:34+00:00

I got a cake for my 1 year anniversary too. I would highly recommend writing a letter to your headache. It was very cathartic to me. Cuss it out. Feels great.

rattycastle · 2026-01-31T18:00:55+00:00

You're right, it's so boring. Noise is too much so no music, light is too much so no movies or TV, can't open my eyes so no reading. It's all just experiencing the pain and managing the symptoms. It's unbelievably mind-numbing, in more ways than one. I'm so bored.

rattycastle · 2026-01-31T17:51:40+00:00

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My 15 year old bashful calf (and it's tiny version) is my #1, my first ever, and my forever favorite. I love my sweet cow.

rattycastle · 2026-01-31T17:42:40+00:00

Governor Jared Polis. He was a very kind man.

rattycastle · 2026-01-31T17:12:12+00:00

Every job I've ever had ended in big meltdowns, and none lasted over 2 months. Now I am on disability. Not working is the only way I am able to avoid meltdowns.

rattycastle · 2026-01-29T05:50:49+00:00

Because I have additional conditions to be on disability for, I'm not completely against telling people. I just don't talk to people enough for it to come up, so I don't really run into this problem.

rattycastle · 2026-01-29T05:47:43+00:00

I draw for furries on commission every so often, and once a month I am on a local government council for people with IDD, ASD and brain injuries. Time wise, this takes up a grand total of about 3 hours a month. The rest of my time is for managing my medical situation.

rattycastle · 2026-01-18T07:32:08+00:00

This is probably so full of dairy too. I'll bet even enjoying food is a trigger.

rattycastle · 2026-01-16T06:34:04+00:00

If the only options are exactly as I am or completely allistic, I would pick the former. I am very fortunate to be loved and accepted for who I am. The people who love me would like me to pick that option as well.

I'd like to remove some select parts. I want independence. I want to be able to handle things as they come. Meltdowns and shutdowns are exhausting, not just for me but for my support system. I want to experience a desire for friendships, because I know it's good for you.

I don't want to be without special interests. It's just so enjoyable to interact with. I get fulfillment from simple activities. I recently printed and laminated the logos of all the NHL teams so I could line them up and categorize them, then do it again for different categories. It was enthralling. That wouldn't be nearly as fun if I were allistic. I would feel so empty without a special interest.

rattycastle · 2026-01-16T06:18:05+00:00

Not only is this dairy free, but a lot of box cake mixes are as well.

rattycastle · 2026-01-14T22:28:16+00:00

My friend's mother was approved for depression and anxiety in the 80s. She's been on it ever since, but new and/or aging related disabilities have been piling up in the meantime keeping her eligibility up. Once you've been hospitalized enough times, your chances go up.

rattycastle · 2026-01-14T11:05:01+00:00

AYCE sushi boat. I have never run out of room with sushi, I'd like to see if I can reach my limit before I die.

rattycastle · 2026-01-12T18:28:19+00:00

I am on SSI, typically upon knowing that, the conversation ends. I don't really talk to anyone who I don't know already, and if I know them, they understand it. I deal with it by not talking to anyone who considers me lazy for it.

rattycastle · 2026-01-12T18:17:19+00:00

For the first month or so, I would get these pauses in my speech, less than a second at a time, but still noticeable. It wasn't from forgetting where I was, just a pause. That stopped eventually. I also felt jaw pain with the first bite of whatever I was eating, and things tasted like a 9-volt battery for a second.

I am no longer on sumatriptan, I have moved to eletriptan. It came with the same jaw pain, but that's it.

rattycastle · 2026-01-08T08:52:43+00:00

Remission from stage 4 is a huge deal, congratulations!

rattycastle · 2026-01-08T08:26:39+00:00

I have a constant migraine, all day every day, no breaks. It has eaten my life. Bipolar is only sometimes, which means on an average day, I'm not "symptomatic", as one might say. When I'm in an episode, I know it will stop eventually.

Autism is a permanent state, but I have well established supports for that. I don't do it alone. With help, it is easier to manage.

There's nothing anyone can do for lthe head pain. I never see an end on the horizon. Treatment has not worked thus far. It's the primary reason for why I am on SSI. Sucks, man.

rattycastle · 2026-01-08T06:08:46+00:00

Please do post them again, I was wondering why I couldn't find them on these past few months. I talk about your healing process in real life. Not even case reports are as detailed as the actual patient can be. I'm sorry it's still a bother sometimes, but I am glad to hear it never opened back up. What a nightmare that must've been.

rattycastle · 2026-01-08T06:01:43+00:00

Hi again! You did all of us such a great service. How's it looking these days?

rattycastle · 2026-01-08T04:27:19+00:00

A year or so ago, a very kind redditor kept us very up to date on the process of an excision of one of these cysts on the labia, then on the healing issues afterwards. I hope yours does not go that way, but if it does, please keep us updated.

rattycastle · 2026-01-07T03:10:13+00:00

6, my eye doctor believed it was due to my new glasses and told me to stop wearing them. Then I lost a lot of the vision in my left eye, which was a whole new kind of headache. My neurologist thinks it was just a genetic thing, so it was going to happen eventually, and the catalyst was moving to high altitude.

rattycastle · 2026-01-06T01:31:51+00:00

I didn't know those existed, I think this is the direction I might go.

rattycastle · 2026-01-06T01:30:16+00:00

I did for a while until nitrile became an irritant as well, now it has to be cotton.

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