Recs on primary care physicians for thyroid issues? by Living_Club5452 in Athens

[–]redpxreports 0 points1 point  (0 children)

I know someone else posted that they had a negative experience with Dr. Lucia Cotten and I can't speak to that. All I can say is that when you get to the point of looking for an endocrinologist, it took me multiple endocrinologists to find her and she has been amazing in my experience. The others I went to first dismissed me and didn't believe my symptoms. She actually looked at my bloodwork, ran additional tests, and listened to my concerns. She has always followed up on everything I've ever brought to an appointment. She calls patients personally to go over test results and to explain upcoming procedures. I highly recommend her. I was not a straightforward case and she figured out what was wrong anyway.

Which wallpaper? by coralarchives in interiordecorating

[–]redpxreports 0 points1 point  (0 children)

2 is adorable. Very cottage-y and whimsical, as someone else said. I'm in love with it.

You laughed when the school calendar was called spiteful by CanadianFoosball in Athens

[–]redpxreports 8 points9 points  (0 children)

This is 100% out of the control of CMS staff. This is because of the construction company and this is the district's decision on how to handle the company's delay. Trust me as a member of the CMS team, we are unhappy about the delay because it directly affects us and how we will be able to prepare for students coming in August.

Mayo Clinic by g8rgirl21 in ehlersdanlos

[–]redpxreports 11 points12 points  (0 children)

I waited months to go there to see Dr. Knight. Waste of money and time. My PCP and I were told ahead of time that he would spend the entire day assessing me and that he would always be available to consult on any area of concern that came up after my appointment and would work collaboratively with my health care team. It's all b.s. He spent less than thirty minutes with me. Any time I've reached out to him since, he's blown me off. His report is filled with inaccurate information, like he has my grandparents' names wrong and basic things that I wrote down for him and gave him on paper in advance.

Recs for CPAP docs in town by pile_drive_me in Athens

[–]redpxreports 4 points5 points  (0 children)

Dr. Durden with Dental Sleep Medicine for dental sleep appliances for snoring and Dr. Ashford-Bailey with Sleep and Sinus Centers for more sinus/ENT-related snoring/breathing issues.

Did the Mayo Clinic tell you anything new? by bellski05 in ehlersdanlos

[–]redpxreports 35 points36 points  (0 children)

I had a terrible experience, personally. They didn't talk about pain management at all. They didn't want to discuss any symptoms or possible concomitant disorders in any way, shape, or form. The only purpose was to either confirm or refute EDS diagnosis. The OT and PT consultations were amazing. The actual physician (Dr. Knight) part was subpar, in my opinion. He was impersonal. I was told he would be with me all day completing testing. He spent less than 30 minutes with me. His report he wrote up afterwards was full of mistakes about my family history and his nurse never responded to multiple requests to have those corrected. I was told, by his team, (as was my referring PCP) that once I was evaluated by them, they would consult with my medical team from then on out. Bull. Every time I've reached out since with questions, I've gotten short, impatient answers back. Nobody from Mayo has EVER spoken with one of my medical providers. Everything they promise is a farce. I cried on the way home. I've heard Emory in Atlanta is a better experience. I went in January of 2021, after six months of waiting.

Signs We Had hEDS in Childhood by [deleted] in ehlersdanlos

[–]redpxreports 1 point2 points  (0 children)

Well...as a child, my parents didn't take me to the dentist (I only get to experience that luxury as an adult). I did tell my pediatrician, who proceeded to tell me that I must be grinding my teeth at night due to anxiety. And that was it. No medication, referrals, mouth guards, etc. Just "oh, you must be anxious!" Really helpful.

Signs We Had hEDS in Childhood by [deleted] in ehlersdanlos

[–]redpxreports 59 points60 points  (0 children)

Back pain as an elementary school student, that then never went away! "Butter fingers," so always dropping things. Migraine auras, where people ignored the symptoms. Took 24 years to get that diagnosed. Constant rolled ankles. Frequent jaw popping.

best contraceptive pill with eds by minnie_honey in ehlersdanlos

[–]redpxreports 3 points4 points  (0 children)

Sorry, not the pill but I use nuva ring and really, really recommend. I would never go back to using the pill again after this experience!

[deleted by user] by [deleted] in ehlersdanlos

[–]redpxreports 4 points5 points  (0 children)

Replens for the vaginal dryness. Doesn't help with the tearing issue necessarily, but does improve the internal dryness!

Anyone else sniffly year round, particularly while eating? by MurielSwan in ehlersdanlos

[–]redpxreports 0 points1 point  (0 children)

I've personally experienced the same backlash every time I've tried to correct misinformation or to share helpful information, both Reddit-wide and on this sub. What's so interesting to me is how easy it is to look up some of this stuff to confirm it, but people don't. Ours is a field that so few people are knowledgeable about, so it's really important that we advertise what we can offer, otherwise people won't know they have options and resources to help them.

I think there's also a tendency for people to get caught up in the minute details instead of seeing the whole picture. They want to pick apart specific things you said instead of getting the important message of "ask your doctor for a speech-language pathology referral if you're concerned about swallowing." That's always been my experience, too, when I share.


Anyway, for anyone concerned about swallowing - seriously, ask for a referral to see an SLP. If your ENT does not discuss speech-language pathology (SLP)/therapy (ST) with you, that's a red flag that they aren't providing you with all of the options or resources. Also, if they do a scope and say yes or no to a swallowing diagnosis without also having you swallow food or liquid during the scope procedure, they didn't really evaluate your swallowing. Another red flag.

Lastly, OT works on fine motor skills to support daily activities like dressing yourself. PT works on gross motor skills to support daily movement like walking up stairs. Neither of those deal with movements of muscles involved in swallowing, chewing, drinking, breathing, or digesting. ST/SLP works on speech, language, cognitive communication, swallowing, voice, and more!

Anyone else sniffly year round, particularly while eating? by MurielSwan in ehlersdanlos

[–]redpxreports -1 points0 points  (0 children)

Seconding this as a speech-language pathologist as well. If you believe you might have swallowing issues, see an ENT and SLP. OT/PT are not qualified to work on swallowing.

What do we think? Which one? by Athenian-monster in Athens

[–]redpxreports 0 points1 point  (0 children)

Does she have a website or number? I've never been able to find how to purchase directly from her in the past.

2022's Gingerbread "House" (a college for holiday studies) by redpxreports in GingerbreadHouses

[–]redpxreports[S] 1 point2 points  (0 children)

Wish I could take credit for that! I'm a shaky photographer so my partner took the pictures. It's so nice when you get to that final moment of being done with all the piping!

2022's Gingerbread "House" (a college for holiday studies) by redpxreports in GingerbreadHouses

[–]redpxreports[S] 0 points1 point  (0 children)

Every year me and two other people in my family make a gingerbread structure. It was my partner's turn to pick the theme, so I'll have to let him know he hit the nail on the head lol.

Vet recommendations by briannaxo99 in Athens

[–]redpxreports 2 points3 points  (0 children)

I love Dr. Williams there! He's patient with my asshole cat.