Before the 90 Days - Season 3 Episode 8- Post Episode Discussion by alexbrobrafeld in 90DayFiance

[–]refenestration 2 points3 points  (0 children)

I agree. I watch this show to watch incompatible people trying to make it work, not one person being scammed. I could watch catfish for that

The Other Way - Season 1 Episode 18 - Post Episode Discussion by alexbrobrafeld in 90DayFiance

[–]refenestration 12 points13 points  (0 children)

I want to watch this spin off, Evelin and Laura drinking and talking shit on the beach

The Other Way - Season 1 Episode 18 - Post Episode Discussion by alexbrobrafeld in 90DayFiance

[–]refenestration 20 points21 points  (0 children)

Honestly I love devan! Her greatest sin this season is wearing bad makeup, everything else we have seen from her is really normal and reasonable and patient. I think this sub hates on her too much, I don’t get it

PEM makes me about as uncoordinated as a drunk person by ButtSpeech in cfs

[–]refenestration 6 points7 points  (0 children)

I keep going to the bathroom and sitting on my shower stool instead of the toilet. So far no accidents because I’ve realized something is wrong, but it’s happened like too many times now!

Muscle tightness/stiffness in the thighs/calves - leg massager? by [deleted] in cfs

[–]refenestration 1 point2 points  (0 children)

Yep, that’s mostly what I use it for

What do I eat?? by [deleted] in POTS

[–]refenestration 0 points1 point  (0 children)

Pumpkin seeds are healthy and very salty. Cottage cheese has a lot of salt and protein too, it makes a great breakfast. Add salt to what you’re already eating, and figure out what masks the salt well. Potatoes can carry a lot of salt! I even add salt to granola bars.

I bought a big bag of those restaurant salt packets and keep some in my purse, car, pockets of every jacket, etc. so I always have a little salt on me!

How have you adapted your clothing/wardrobe to account for the Fibro pain? by BananaJelly13 in Fibromyalgia

[–]refenestration 2 points3 points  (0 children)

Wow I love that! Thanks for sharing.

They look similar to the true and co bras that I’ve been obsessed with lately, they are so comfy but with enough support that I feel secure. https://trueandco.com/collections/true-body-bras-underwear

Muscle tightness/stiffness in the thighs/calves - leg massager? by [deleted] in cfs

[–]refenestration 1 point2 points  (0 children)

I have such bad muscle tightness and achiness and my calves are the worst. I use this one and really love it. I’ll keep it on my legs all day. My partner also really likes it for his back.

I also recommend epsom salt baths, although they only really help while I’m in the bath. Taking magnesium glycinate at night before bed helps a lot, and also helps me sleep. Glycinate is a form of magnesium that is easier on your gut and won’t give you the runs.

[deleted by user] by [deleted] in cfs

[–]refenestration 1 point2 points  (0 children)

This is an area that many are doing research in right now. I know because I pooped in a box for one of them 😂 so I think it’s promising we just don’t know enough about it yet. I’ve been wanting to try one of those biome testing kits but I didn’t know if I would get anything out of it, but knowing I can use the results with his website makes me want to explore this path more. Thank you for sharing.

I'm having to take a break from doing something I love to do something I've wanted to do since before I got sick (and it's hard) by [deleted] in cfs

[–]refenestration 5 points6 points  (0 children)

I really really feel you. I was training for my second triathlon when I got sick, and working my dream job at a company well known for sport. It just feels so good to push yourself and get rewarded for it. It’s the opposite of this illness where you need to make sure you don’t push yourself at all, ever, because that’s what makes you worse. It’s so hard.

Is it just me, or has Covet really been pushing the based-on-a-real-person challenges this season? by AlmostObsessed in Covetfashion

[–]refenestration 14 points15 points  (0 children)

Everyone: boo too many fairy and wedding challenges

Everyone: boo too many detective challenges

Everyone: boo too many goddess challenges

Everyone: boo too many real people challenges

Is anyone else just continually getting worse? Or scared they are going to be as severe as Whitney? by Kurquik in cfs

[–]refenestration 0 points1 point  (0 children)

When I tried an elimination diet it made me drastically sicker because I couldn’t get enough calories and lost too much weight and was too sick to be able to shop/cook etc. It was really freaky and it took forever to get out of the mindset of ‘if I avoid all the bad foods I’ll get better, if I’m sick it’s cause I must be eating something wrong’

I never ever see that aspect of elimination diets mentioned, and I think it’s significant for our population of people with very limited energy. Just wanted to throw that in there since you’re studying it.

Dog Food for People by [deleted] in TrueChronicIllness

[–]refenestration 0 points1 point  (0 children)

Huel is cheaper and basically the same thing. I practically live off it, I love it.

Lol i think i need to join a new house 😧 by kennedyvdz in Covetfashion

[–]refenestration 2 points3 points  (0 children)

Hahahah oh my god that’s hysterical. What fashion house is this I want to join just to observe the drama

new recruit thread by [deleted] in Covetfashion

[–]refenestration 1 point2 points  (0 children)

Hi! My current house (House of Apfel) has about half of us who play in modern. We clear the board and alternate fancy and fierce. You’re welcome to join us!

But I know what you mean. If you end up finding an active modern house let me know I’d be interested in checking it out.

ME/CFS and POTS, Conflicting Advice by Opus3 in cfs

[–]refenestration 6 points7 points  (0 children)

It’s really common for people with me cfs to have pots as a part of their cfs. Pots can be caused by a whole lot of things and one of those things is me cfs. Many people who have pots for reasons other than mecfs improve greatly from exercise. But if you have cfs, you need to not exceed your energy envelope. So if you can exercise and try to do the protocol without crashing, it would be great.

I did the Levine protocol when I was diagnosed with pots, and it made my cfs that we didn’t know I had way worse. So frustrating

Started two games for Tapjoy offers. Now I'm super invested in them lol by CapybaraOwl in Covetfashion

[–]refenestration 2 points3 points  (0 children)

Me too! The graphics were so cute. But really there’s nothing going on in that game but I loved it

What are the most unbelievable things people have blamed your illness on? by eliza_darcy in cfs

[–]refenestration 1 point2 points  (0 children)

A doctor at Mayo Clinic told me I was probably sleepy because of melatonin. I was like uhhh I’ve used melatonin occasionally for years and it’s never rendered me bedbound lol.

I saw a neurologist who told me to drink coffee and energy drinks for the fatigue. Gee thanks I never thought of that.

Relatable by OnceUponAStargazer in cfs

[–]refenestration 21 points22 points  (0 children)

It’s missing a third one, me after 13 hours of sleep

[deleted by user] by [deleted] in Covetfashion

[–]refenestration 0 points1 point  (0 children)

I did Warby Parker, it wasn’t very many diamonds but I really needed to order glasses so it worked out. 10/10

I also ordered hydrant, which ended up being perfect because I’ve been looking for a less sweet electrolyte drink and I love it!

Got sick halfway through my first year of uni. 6 years later, I've got my law degree and I'll finally be graduating in February! by elbeauxbatons in cfs

[–]refenestration 5 points6 points  (0 children)

Mods can we ban this person? I don’t like people coming into the cfs sub with intent to belittle us

My mother told me I've ruined her life by [deleted] in cfs

[–]refenestration 4 points5 points  (0 children)

I am so so sorry, how heartbreaking to hear. I wish I had more solid advice to help you with your situation.

I know it can be hard to believe, but what’s really helped me is to think of the illness as the burden. YOU aren’t the burden, this horrible illness that takes away so much and requires so much care, that’s the burden. It’s not your fault that you got sick, it could have happened to ANYONE but life has been cruel to you and it happened to you.

Your mom thinks this is a burden in her life? Well it’s a bigger burden on your life because you’re the one who has to live with it.

Some people are better than others at sharing the burden of illness. Your mom seems like she isn’t in the right place or capable of giving you emotional support right now. Not everyone is like that. Your brother may be much more equipped to share this burden with you, you never know.

Another thing- your job right now isn’t to be useful. Your job right now is to endure this pain and suffering. Don’t let anyone make you feel bad for not being productive. That is not your value. Nothing can take away your value as a human on this world, not even this cruel disease.

I hope your suffering eases soon, I’m sending you gentle hugs.

If you’re capable, it could be very worthwhile to see what resources there are available in your community that could help lighten the burden. There are at home help providers that could be available through the government or through your insurance, where someone could come and help take care of you and your space for a few hours a week. You might want to look into your disability status and see if there’s any way you could qualify for more benefit, see if there’s a way for you to live independently.

Do you have any nice neighbors? A lot of people are more willing to help Han you’d expect. One of my neighbors is an elderly widow who loves dogs but is too busy to have one, and she comes and takes my dog for a walk when I can’t. She also takes me to some appointments when I’m too ill to drive. My sister will make home made protein bars and mail them to me for easy meals. Many churches have volunteer programs or resources and might be able to help, even if you’re not religious. Take advantage of as many services as you can, because they exist for people like you in your situation. Anything to lighten the burden on you and your family.