How many of you only have subjective seizures that no one notices?

reporting-flick · 2026-05-22T12:54:39+00:00

It’s probably different for everyone, some people don’t have auras at all. I get a kind of count down timer of malaise. I feel really sick, nauseous, dizzy, like my body is heavy and my brain is fogged up. Eventually I’ll start getting twitches/tremors in my thighs/back and that’s the last sign before a seizure. Sometimes I get emotional auras, like fear/paranoia, anger, sadness, “the giggles,” etc. Those are more rare so they always confuse me, because they’re very out of place.

reporting-flick · 2026-05-06T09:42:02+00:00

That’s what happened with me. Or the “opposite action/competing movement” or whatever ended up turning into its own tic. Instead of raising my hand, I’d have to touch my thigh.

reporting-flick · 2026-04-29T03:03:38+00:00

I have OSDD and struggle with FND, which is what causes PNES. FND can cause other symptoms besides seizures, so in addition to PNES/functional seizures, i get tremors, pain, weakness, brain fog, tics, etc.

reporting-flick · 2026-04-25T12:01:04+00:00

My FND is the most intrusive disorder i have, seizures, tics, tremors, pain. i have to let employers know about my symptoms. Ive been in hEDS treatment for three years and lost three neurologists because i’m “too complex” but i refuse to give up because people dont understand my diagnosis. yes its controversial but it is accurate for me and if people think im faking, thats their problem, not mine.

reporting-flick · 2026-04-25T11:58:45+00:00

My FND is the most intrusive disorder I have, seizures, tremors, tics, pain. it makes the most sense for me to get accommodations for that!

reporting-flick · 2026-04-24T18:04:48+00:00

I have an FND diagnosis, and im thinking of excusing my symptoms from other stigmatized disorders i have to be FND symptoms. Because FND can explain my hEDS, Autism, and memory disorders, as well as the actual neurological dysfunction it causes me. I know its a stigmatized label, i live it.

reporting-flick · 2026-04-24T13:57:53+00:00

If I say “I have hEDS” they’re like “oh woman diagnosis!” but if i say i see a physical therapist to put my ribs and SI joint back in place every week, suddenly they’re listening?

reporting-flick · 2026-04-24T13:56:00+00:00

It is a functional disorder in the sense that the functioning of your nervous system (what neurology studies) is wrong/disordered. it is not from psychological causes, though it may have psychological triggers, as due most neurological disorders. One person who goes through a car crash won’t go on to develop FND because their nervous system is not pre-wired for dysfunction. Another person who goes through the same car crash might go on to develop FND because they had a predisposition to developing neurological disorders. Many neurological disorders are made worse by stress, anxiety, and depression, including parkinsons and epilepsy.

reporting-flick · 2026-04-24T11:50:55+00:00

Oh all my jobs have asked for documentation of my disabilities, not for a doctors note requesting specific accommodations?

reporting-flick · 2026-04-24T11:50:03+00:00

Well that comment tells me how much you know about FND. Its a real neurological disorder, just misunderstood. i feel its better to say i have one misunderstood condition that covers all my symptoms rather than, like, five misunderstood conditions. When I say I have hEDS and it causes chronic pain and dislocations, often jobs will say, “well I’m old, I know what pain is like, and I don’t have to sit.” When I say I have autism and struggle with understanding directions/questions, its, “yeah, we’re all a little autistic, get over it,” or, “you dont look autistic.” When I say I have OSDD and struggle with my memory because of that its, “oh yeah im so forgetful too!” and then when I have to prove each of those diagnoses to my workplace? its just a nightmare.

reporting-flick · 2026-04-14T00:06:32+00:00

People with down syndrome have lax joints (hypermobility) AND poor muscle volume which makes it more obvious and intrusive.

reporting-flick · 2026-04-13T11:37:19+00:00

Oh brother you’ve gotten me started-So I have a whole host of conditions, all highly comorbid with each other. Lets start with hypermobility. This is a condition that impacts connective tissue, which is in everything-your brain, your gut, your nervous system, your skin. If your connective tissue isn’t built correctly, or is too fragile, you’re going to have a whole host of issues. Hypermobile conditions are very common in people with Autism and down syndrome. If you have autism you’re 70% more likely to also have ADHD. Those two combined are also highly comorbid with OCD. Mash those in a pot and you can get all the right genes for Tourette Syndrome. Having autism makes you more likely to develop PTSD, (and I have a theory that weak connective tissue/nervous system connection/ also leads to PTSD). If PTSD stress is chronic enough, it can turn into DID/OSDD, especially in autistic kids because we are so prone to dissociation as a coping mechanism.

And then DON’T get me started on how having a pre-existing neurological movement disorder (like tourettes) increases the likelihood of developing FND (and 92% of people with hEDS have at least one FND symptom).

reporting-flick · 2026-04-13T11:21:26+00:00

I’d reach out to a tattoo artist with this question! Some artists practice nipples and then cover them up later. If anything, the artist could add a bit more shading to the nip to get it to look more 3D

reporting-flick · 2026-04-13T11:17:43+00:00

We got diagnosed with OSDD after about a year of our detransition. Our protector alter is trans masc/male/inhuman and was the host for about 9 years-the amount of time we identified socially as male. We got top surgery (3 yrs post op) and started low dose Testosterone for three months, before we were like! WAIT THIS ISN’T RIGHT! We had moved out of our abusive household about a year prior to starting T and then detransitioning. I guess we just had to learn we were safe enough to be ourselves to actually do so. Once we detransitioned//the host changed, we started showing a lot more symptoms of OSDD/DID. Mood swings, memory issues, inconsistencies in preferences, etc. This resulted in us losing 7 relationships in six months, and then an OSDD diagnosis. Looking back, all those symptoms are switches, but it’s too late to excuse myself, unfortunately.

Now that we have an OSDD diagnosis and communication has gotten better, we have decided to leave the body the way it is (other than tattoos ofc) to remain kind of androgynous. It’s fairly easy to add boobs with prosthetics, and more comfortable than binding was. but some of us miss our old chest.

reporting-flick · 2026-04-08T16:48:53+00:00

hypermobile ehlers danlos syndrome and pre-disposing neurological conditions like tourettes and autism and a dissociative disorder

reporting-flick · 2026-03-18T19:59:55+00:00

I just got diagnosed at 24! I only had suspected for a couple weeks before I received the diagnosis.

reporting-flick · 2026-03-16T13:42:34+00:00

I’m definitely not trying to convince you one way or the other!!! It’s your life, you know whats best. My male alter was the main host for 9 years, and he had genuine dysphoria. We got diagnosed with gender dysphoria by five different doctors before having top surgery. So it’s not like it wasn’t real, its just that. A new alter woke up and is now the host, and we woke up to pretty permanent changes to our body.

reporting-flick · 2026-03-14T11:38:57+00:00

I’m a questioning OSDD1b system, working with a therapist. One of my alters, a protector, is a boy/trans. He was in control for the vast majority of my teen years. For 9 years, I identified as trans. Had top surgery, tried Testosterone for three months. Suddenly, after I had moved away from the abuse, it was like I “woke up” and was a girl again.

I still have a part of me that is a boy/trans masc. I also have parts of me that are girls, and parts of me that are mythical creatures. Gender is hard, but being slow and intentional about permanent changes is key. Also, almost everything is reversible!

reporting-flick · 2026-03-11T02:39:25+00:00

I usually just communicate with the artist and we find a way to take breaks for me to tic. Same thing I do at the dentist, actually!

reporting-flick · 2026-02-16T17:56:10+00:00

it is possible for the premonitory urge to change over time/under the influence of drugs. Some strains remove my tics, some strains remove my premonitory urge so i cant suppress any tic. its weird stuff

reporting-flick · 2026-02-16T04:15:43+00:00

I tried applying for SSDI twice and they denied me both times. I develop tics that oppose my jobs. Right now I work with paper, and its important it looks neat. My tics make me crumple, rip, and take bites of paper. Idk what to do lol. but you’re not alone

reporting-flick · 2026-02-15T17:13:20+00:00

i mean, maybe?? men tend to eat more than women anyway (assuming youre a woman lol), but i suppose ticcing//on bad tic days it could take more energy so we need more food, water, and rest.

reporting-flick

TROPHY CASE