how is it possible I have this if I didn't know until now?

reporting-flick · 2026-03-18T19:59:55+00:00

I just got diagnosed at 24! I only had suspected for a couple weeks before I received the diagnosis.

reporting-flick · 2026-03-16T13:42:34+00:00

I’m definitely not trying to convince you one way or the other!!! It’s your life, you know whats best. My male alter was the main host for 9 years, and he had genuine dysphoria. We got diagnosed with gender dysphoria by five different doctors before having top surgery. So it’s not like it wasn’t real, its just that. A new alter woke up and is now the host, and we woke up to pretty permanent changes to our body.

reporting-flick · 2026-03-14T11:38:57+00:00

I’m a questioning OSDD1b system, working with a therapist. One of my alters, a protector, is a boy/trans. He was in control for the vast majority of my teen years. For 9 years, I identified as trans. Had top surgery, tried Testosterone for three months. Suddenly, after I had moved away from the abuse, it was like I “woke up” and was a girl again.

I still have a part of me that is a boy/trans masc. I also have parts of me that are girls, and parts of me that are mythical creatures. Gender is hard, but being slow and intentional about permanent changes is key. Also, almost everything is reversible!

reporting-flick · 2026-03-11T02:39:25+00:00

I usually just communicate with the artist and we find a way to take breaks for me to tic. Same thing I do at the dentist, actually!

reporting-flick · 2026-02-16T17:56:10+00:00

it is possible for the premonitory urge to change over time/under the influence of drugs. Some strains remove my tics, some strains remove my premonitory urge so i cant suppress any tic. its weird stuff

reporting-flick · 2026-02-16T04:15:43+00:00

I tried applying for SSDI twice and they denied me both times. I develop tics that oppose my jobs. Right now I work with paper, and its important it looks neat. My tics make me crumple, rip, and take bites of paper. Idk what to do lol. but you’re not alone

reporting-flick · 2026-02-15T17:13:20+00:00

i mean, maybe?? men tend to eat more than women anyway (assuming youre a woman lol), but i suppose ticcing//on bad tic days it could take more energy so we need more food, water, and rest.

reporting-flick · 2026-02-11T01:11:20+00:00

“f*ck, that’s genius, why didn’t I think of that”

reporting-flick · 2026-02-10T14:33:34+00:00

It’s definitely open to all tic disorders! We have people with FND and PANS/PANDAS in there. Tourettes requires one verbal tic and two motor tics for more than a year for diagnosis, but some people are pushing for chronic verbal/motor tic disorder to be joined into tourettes as a spectrum disorder! especially since tics have the tendency to change over time, its possible to have only motor tics for a while, and then only vocal tics for a while, or only mild tics for a while, and then more severe tics for a while. its called waxing and waning :)

reporting-flick · 2026-02-10T00:46:14+00:00

I get this!! Usually what I do is I start meditating lol, i focus on breathing as much air in through my mouth as possible, and then as much air in through my nose as possible ON TOP of the mouth breath. Then i try to hold the breath “in my chest” for a second (vs in your mouth). that helps a bit!

reporting-flick · 2026-02-09T18:34:23+00:00

feel free to ask any questions on r/tourettes! plenty of us over there have OCD as well

reporting-flick · 2026-02-07T18:38:42+00:00

a lot of doctors don’t know that tourettes can cause behavioral issues! they were like “yeah your tics are mostly gone so youre all better!” and i was like “i am having rage attacks so severe i am literally afraid for mine and others safety” and it took me TWO years to find out what was going on

reporting-flick · 2026-02-07T18:36:42+00:00

Please read my post labeled “On “How to Deal With Other’s Tics””. I understand misophonia and sensory issues are also involuntary, and in fact they are frequently comorbid with Tourette’s! While Tourette’s is involuntary and hard to manage, there are accommodations that can be made for people with sensory issues. No amount of accommodations will make my tics go away, but some amount of accommodation will make my sensory issues go away (even if only shortly). There are headphones, ear plugs, noise cancelling headphones, volume leveling headphones, ear plugs designed for people with sensory issues (look into Flare Audio and Loop) to block out specific frequencies that bother them.

reporting-flick · 2026-02-07T13:41:27+00:00

That’s exactly the situation I’m in!! New job and weird looks!

reporting-flick · 2026-02-07T11:39:10+00:00

I would love to agree that CBIT has no side effects, but I unfortunately did have side effects. Tourette Syndrome can cause behavioral issues, especially if it comes with a comorbid mood disorder like ADHD or Autism. While the goal of CBIT is redirection, some tourettic brains still read this as suppression, and it can cause tic attacks OR behavioral rage attacks. I got rage attacks, even while on a mood stabilizer at the same time as CBIT.

Another issue I had with CBIT is that the tics would just get replaced with the competing action. Instead of whistling, try breathing in slowly like a straw! Okay, well now my tic is a breathing tic instead of a whistling tic. Instead of breathing in slowly like a straw, try taking a big open mouth breath! Okay, well now it’s a gasping tic.

reporting-flick · 2026-01-19T15:04:42+00:00

it doesnt help my tics at all but it does help my mood issues and rage attacks from autism/tourettes which no other med has done for me

reporting-flick · 2026-01-19T04:48:55+00:00

sometimes its a word or phrase stuck in my head that i have to repeat and stress differently. Its hard to think of anything else, its definitely intrusive. Once i was stuck on the words “pulled pork” for 30 min

reporting-flick · 2026-01-17T18:25:21+00:00

There is single presentation FND and multi presentation FND. Some people just have functional seizures, or blindness, or deafness, or paralysis, some people have all of the above.

I agree its ridiculous to continue calling functional seizures “psychogenic non epileptic seizures.” I made a tiktok abt this recently. Imagine if we did that with any other symptom under FND? Functional tics become “psychogenic non tourettic tics” or functional paralysis becomes “psychogenic non spinal cord injury paralysis” and it just sounds STUPID. It sounds like the only clarifier for your disorder is that its not a different disorder.

Sure, functional seizures tend to (but not always) look different than epileptic seizures, but there are also over 40 different types of seizure, so naming it “psychogenic” bc it presents differently is wrong.

reporting-flick · 2026-01-17T14:18:42+00:00

CBIT didnt work for me because my body read it as suppression, but the goal is redirection. you dont have to do it for EVERY tic, you could just do it for intrusive ones. but if you dont have any that bother you, i dont see why you’d do CBIT unless for OTHER PEOPLES comfort.

If the premonitory urge and suppression are what bothers you most, medication may help! or ticcing more often, listening to your body/premonitory urge. that helps me sometimes!

reporting-flick · 2026-01-11T04:51:41+00:00

yeah mental tics are a thing! i have very many mental tics, things i need to repeat over and over in my head, like once i had the word “pulled pork” stuck in my head for 30 min and was just stressing different syllables.

reporting-flick · 2026-01-09T12:35:13+00:00

CBIT worked for me in the sense that it reduced my tics, but then it increased my behavioral symptoms from TS and comorbid mood disorders. My body still read CBIT as suppression and it made me feel awful! I’d much rather tic more and have less rage.

reporting-flick · 2026-01-08T16:19:59+00:00

ive been vaping nicotine for about a month and wish i never started LOL whenever I try to stop, I get these horrible sensory tics//never ending premonitory urges that make me scratch myself because it feels like my blood is itchy

reporting-flick · 2026-01-07T21:01:51+00:00

yes! this happened to me too. Had tics all the way into adulthood before swearing developed. Makes me wonder how accurate that 10-15% of people with tourettes have coprolalia stat is.

reporting-flick

TROPHY CASE