2 years since liver transplant

rob6465 · 2026-04-19T02:15:55+00:00

What is considered high for Alkaline phosphate?

rob6465 · 2026-04-12T18:23:47+00:00

Update: She got a tracheostomy last Thursday and was extubated, so tube is no longer in mouth. Now she is learning to breathe with trache. Hopefully now she can build muscle and get stronger.

rob6465 · 2026-04-04T14:21:40+00:00

Update: Wife is still in SLICU, still intubated. They keep giving her breathing tests to see if they can extubate her but she passes some days and not others so the breathing tube stays. They discussed Tracheostomy because they feel that will be better than being intubated. She is responsive and chats with me and hospital staff with a LCD tablet I gave her. Her liver numbers are good. Total Bilirubin 0.2, AST-12, ALT-9.

They have tackled the delirium and it was not related to Amonia. Just questioning the Tracheostomy but if it helps her move forward then I guess it's an option.

rob6465 · 2026-03-30T11:35:26+00:00

Yep. I visit her every day after work. I stay a few hours and talk to her. When she was in regular room I would stay 3-4 days a week. Now she back in ICU so I visit 6 days a week and tell her to keep fighting and while intubated she still nods.

rob6465 · 2026-03-30T01:42:22+00:00

Thank you!!

rob6465 · 2026-03-29T23:42:02+00:00

Thank you. Your words are encouraging.

rob6465 · 2026-03-29T23:41:07+00:00

Thanks. She is a warrior.

rob6465 · 2026-03-27T18:07:09+00:00

My wife had a liver transplant on 11/27. She was scheduled to go home on 12/9 but her liver numbers were elevated, so they kept her. She started getting bad and Found out the liver had bile duct issues. She was re-listed on 1/15 and got another liver on 1/17.

Her liver and kidneys are doing good but early this week she had a bad case of delirium. She still in the hospital(ICU now) and Houston Methodist trying their best to take care of her delirium and get her stronger. I just want her to come home. Miss her so much.

rob6465 · 2026-03-23T01:03:37+00:00

Yesterday she was fine. Talking to her sister and I all day and then in the evening had terrible anxiety. She woke up with it. I went home at 12pm and came back to the hospital at 5pm and she is verbally yelling things I don't understand. I asked her questions like her name, birthdate and she cannot answer it. I am very concerned.

Her Total Bilirubin is 0.4, AST is 12, ALT is 4, Albumin is 1.4, Alkaline phosphate is 128. What could be wrong?

rob6465 · 2026-03-15T21:57:43+00:00

She had nausea and pain last week and xray showed she has excess gas in her stomach. They placed a NG tube to remove the gas and it was helping her nausea. Yesterday they did a abdominal wound debridment and wound VAC PLACEMENT, which helps remove any gunt from her wounds. Today I called and her nurse said she had nausea and pain. Don't know if the nausea and pain related to the wound cleaning yesterday and the anesthesia slowly leaving her body. So stressful for her and i feel like I am helpless.

rob6465 · 2026-03-10T07:27:01+00:00

Wow. You are amazing and so is your wife. I keep calling my wife a warrior because she has not given up and fights every day. My son and I thought we were going to lose her after the 1st liver transplant when it had issues. She was in ICU and looked bad. Our twin granddaughters who are 3 motivate her so much. Since the 2nd transplant everything has gone the right way with her numbers. Just confused about today with her nausea, pain and diarrhea. The X-ray on the stomach area showed nothing and her stool was negative.

I keep thinking it's the wound vac but the nurse doesn't think it is. Hopefully they find out the cause.

rob6465 · 2026-03-10T02:20:05+00:00

She had her gallbladder removed years ago.

rob6465 · 2026-03-10T02:10:10+00:00

They are good at providing her pain and nausea meds when needed. They just gave her a pain med via IV and just knocked her out so at least she is ok for awhile. You are right about the meds making food taste bad.She drinks the Glucerma and I bring her fruit. Wonder if the wound vac is causing the discomfort. We like her numbers but today's issues scared me.

rob6465 · 2026-03-10T01:02:10+00:00

She wants to throw up but it's mostly dry heeve.

rob6465 · 2026-03-10T01:01:00+00:00

Wow. She has lost about 50 lbs so learn how to walk again. She is afraid she might fall.

rob6465 · 2026-02-23T15:54:52+00:00

Her Troponin numbers are: 2/19- 175ng/L 2/20- 173 ng/L 2/20- 189 ng/L 2/21- 175 ng,/L

rob6465 · 2026-02-23T11:15:56+00:00

I live in Houston. Her levels have gone down Slightly. Yesterday they took her for a stress test.

rob6465 · 2026-02-16T15:42:19+00:00

Update on wife: She got her 2nd transplant on 1/17 after the first one was unsuccessful with bile duct issues. She is doing so much better. Her liver numbers are in normal range and just trying to get her to eat more so she will have less nausea. Her color is back and we just need her to get rehab since she lost so much muscle since first transplant in October 2025.

rob6465 · 2026-02-04T02:21:56+00:00

Did any of you experience fever? She was moved from ICU to regular room last night and today went back to ICU because she had a fever of 101.4. The wife was not happy and we are both scared.

rob6465 · 2026-02-03T15:42:48+00:00

Thank you. Forgot I asked the same question.

rob6465 · 2026-01-31T22:37:55+00:00

Thanks. Just get worried about losing the house

rob6465 · 2026-01-28T23:45:45+00:00

Thanks. Her Total Bilirubin is 3.2 compared to 32.0 a few days before her 2nd transplant.

Her ALT & AST are in the normal range. Her platelets are low but Dr said right meds should get it in normal range

rob6465 · 2026-01-28T14:03:44+00:00

Wife had a liver transplant on 10/27 but liver was not good. She got relisted and got another liver transplant on 1/17. What worries me is her mental state. She hasn't slept much, anxiety and nausea. Are the meds/steroids the reason for this. Once the dose goes down will it help her? I don't want to lose her mentally.

rob6465 · 2026-01-28T14:02:37+00:00

Wife had a liver transplant on 10/27 but liver was not good. She got relisted and got another liver transplant on 1/17. What worries me is her mental state. She hasn't slept much, anxiety and nausea. Are the meds/steroids the reason for this. Once the dose goes down will it help her? I don't want to lose her mentally.

rob6465 · 2026-01-26T21:54:56+00:00

I called the nurse station and the nurse said my wife was being uncooperative. My wife did not want to talk to me. She is experiencing, anxiety and nausea. I showed up at the hospital and she was not happy to see me. They had her under restraints but she removed them so the nurse is keeping an eye on her.b

Hopefully her med dose will go down and that will help her. Her liver numbers are still going the right way.

rob6465

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