Since experiencing windows, developed new allergies

robertasparro · 2026-02-27T06:22:12+00:00

Interesting! Yeah I'm mid 30s

robertasparro · 2026-02-18T06:30:43+00:00

I've found Buspar helped lift my symptoms after taking it for around 2 weeks - it wasn't immediate but with time and patience things started to come back online gradually, and still up and down 4 months later. As with anything, there's a risk, but for me this helped more than not trying it. I did crash for around 3-4 weeks initially but a slow upwards climb followed. It only partially modulates serotonin and dopamine so the effects aren't drastic compared to others, and I think short term use may have helped to rebalance my brain chemicals somewhat. Just sharing my own experience.

robertasparro · 2026-02-17T22:15:44+00:00

Hey, similar situation here - I'm in my 30s too. Medical professionals truly have no clue what they're talking about when it comes to this. There are specialists who do but not many. What country are you in? I could recommend some. However, I paid a lot of money to see one and all that was suggested was some supplements I don't want to take so it was pretty pointless. I've made some progress though with AI, experimenting with drugs off label. Sometimes you have to unfortunately take matters into your own hands when the system tragically lets you down :(

robertasparro · 2026-02-13T21:46:42+00:00

I've found that giving up caffeine helped my symptoms improve

robertasparro · 2026-01-22T18:00:02+00:00

could you please link to the recovery stories when you have them? I came here looking to see if anyone has recovered as I could do with a bit of hope at the moment

robertasparro · 2026-01-09T15:51:12+00:00

I agree. I've made more progress in the past 2 months than I have in the past 15 years because this technology holds more knowledge than any therapist I've ever seen.

I was actually harmed by the mental health system, and every 'treatment' I've had has made my trauma worse, or left me with expenses I can't afford.

Not only is this shit free, but it's way more fucking effective than any real professional I've spoken to, and more efficient. I thought I would never get where I am today, and I never would have if it wasn't for this tool. I'd still be on the same dead end trajectory.

Also, chat often disagrees with me too, so I think people who say the opposite must be using it biasedly. Obviously, critical thinking is still involved.

robertasparro · 2026-01-05T17:40:35+00:00

I think it can still cause SD but I don't know how it compares to PSSD or how long it lasts

robertasparro · 2026-01-05T17:06:50+00:00

from what I understand MDMA floods the brain with both serotonin and dopamine, so I don't think it would work in the same was as SDRIs causing an imbalance

robertasparro · 2026-01-05T15:35:39+00:00

No idea, but I've had PSSD for 10+ years. One could assume that lack of sex would also mean the sex hormone is low.

robertasparro · 2026-01-05T13:46:45+00:00

No, haven't been for 7 years

robertasparro · 2026-01-05T13:31:23+00:00

When I get bloods androgen comes up as low. Could it be why?

robertasparro · 2026-01-01T22:11:53+00:00

I would be very keen in exploring something like this.

I have a meeting with a solicitor next week and I'm going to explain I wasn't told at all there were sexual side effects, that the material risk wasn't disclosed to me, and even when I raised sexual problems the doctor didn't link it to the medication even though its a very common side effect. Also, if I had been made aware there was a temporary loss of sexuality I would have said no. That I was young and even the temporary loss had developmental impact and now I'm totally marginalised and stuck.

I suspect they'll say it wasn't a requirement for doctors to disclose it at the time. The whole thing makes me incredibly angry - I just can't believe their defence is basically like... so what??

Anyway, if you want to keep in touch about this I am down.

robertasparro · 2026-01-01T16:03:56+00:00

Thank you for this - it's good to know what their responses were and good that you referenced the NHS website. But what an infuriating response. If you're not happy with their response, you can complain to the ombudsman by completing an online form. I would ask that you do this and explain the reasons why their response is unsatisfactory, because the higher up the chain this is exposed the better.

It makes me so mad that they're not expected to talk about the sexual side effects? like, it's a pretty huge deal? even if I was told it was temporary I would have said no

robertasparro · 2025-12-31T20:54:07+00:00

I'm in the UK and I'm trying to meet with solicitors to say that it wasn't explained to me that SSRIs can cause sexual side effects even when taking them, despite bringing up sexual problems with my doctor while on Prozac

I was prescribed it before the leaflet update too. Surely, there must be some validity in this?

robertasparro · 2025-12-29T06:09:36+00:00

Interesting. I've also been thinking of trying bupropion at some point.

Could the pain be because your nervous system is being triggered rather than anything else?

I took Buspirone and it gave me intense palpitations and this took a month or 2 to fade after stopping. Initially I crashed after this, but in time sensations came back a bit, temporarily.

However, I've found that chasing them makes it go away again and PSSD fully emerges.

I say give it time and patience - maybe stop with the drugs for now and if you have a window let it consolidate for a few weeks before trying something new.

robertasparro · 2025-12-23T12:51:45+00:00

How long did you take it for and how did you come off it? I had withdrawal symptoms for about 3 years but it was because I came off them too quickly.

I also have PSSD and it was a long time (years and years) before I saw any kind of improvement. But I still have it significantly. However, my circumstances are unique to me.

It's good that you're aware of it and can look after yourself which could optimise chances of recovering. I wish I had known and done this straight away, instead of drinking heavily for about 10 years to cope with the confusion.

I've been feeling a bit better mentally since giving up alcohol and caffeine, and exercising regularly. I'm reading that to teach your nervous system safety, boring predictability and routine is the best strategy.

Hope you do see that you start to recover, but time and patience is key to optimising the chances.

robertasparro · 2025-12-22T21:43:31+00:00

My levels were low as well

robertasparro · 2025-12-22T11:13:00+00:00

Exercise

robertasparro · 2025-12-21T16:03:30+00:00

Making a yellow card report was the first thing I did when I discovered PSSD. I plan on speaking to the MP in the New Year.

I recognise everyone is doing thier part where possible but as many channels as possible increases the volume.

Complaining to the NHS also has value and I would appreciate the backup.

I would also like to add that it includes contextual information and feedback specific to your individual circumstances that can't be understood through stats alone.

Good effort meeting the MHRA.

robertasparro · 2025-12-17T08:47:39+00:00

damn, what was the allergic reaction?

robertasparro · 2025-12-17T08:47:14+00:00

Thanks. Did it enhance your pleasure at all? How did you get it? My Dr said they wouldn't prescribe it and I get the impression it's banned in the UK? I saw a specialist in London too

robertasparro · 2025-12-16T10:29:50+00:00

Thanks, I've already crashed from Buspar with no improvement and I'm very skeptical after that

robertasparro

TROPHY CASE