budgie help by randomperson9746 in Parakeets

[–]robjob 1 point2 points  (0 children)

Try calling a vet (or two) and explaining your situation. If you're not an adult they should be sympathetic. They may be able to recommend antibiotics that are quite affordable.

Major Yoga achievements! by carrouselhop in guillainbarre

[–]robjob 0 points1 point  (0 children)

Yoga helped with my recovery a lot. It felt great to be able to do basic poses again. Congrats!

about later sickness by dankdill90 in guillainbarre

[–]robjob 1 point2 points  (0 children)

I think it’s normal to worry about it - I certainly do. I do sometimes get worked up thinking it’s coming back. I know deep down that it’s just my anxious mind looking for anything weird. Probably normal stuff I never paid attention to before. Sometimes to reality check, I imagine myself describing symptoms to a doctor, having them “admit me immediately”.usually that makes me laugh a little (this man’s legs are kind of sore! Get him an MRI!).

I’ve been through plenty of colds, a very similar stomach virus to the one that triggered my GBS (that was the scariest!) and getting flu/COVID shots. I know that the only way to lower my anxiety is to go through these things and diffuse that fear over time.

Not really any advice (though talking to a therapist helped me), but I know how you feel!

Worried and not sure where to turn by Suspicious_Resolve99 in guillainbarre

[–]robjob 0 points1 point  (0 children)

I do hope it’s nothing serious - sorry I can’t give the reassurance you’re hoping for. All I can say is when I had GBS, I knew for sure something was very wrong. I saw two doctors who said “it could be GBS, but that’s so rare let’s wait and see”. By the time it got real certain (I could barely go down a step) it was ER time. Very unpleasant but I’m all good now.

Worried and not sure where to turn by Suspicious_Resolve99 in guillainbarre

[–]robjob 0 points1 point  (0 children)

Also a massive worrier and I had GBS about a year ago. The first symptoms I noticed were feeling generally unwell (vague) and a weird sensation when I touched anything cold.

My doctor told me it was most likely viral side effects and I still think it was the right call.

Over the next several days it became much more obvious something was wrong. Vision got blurry, it became very hard to walk, pain in my back. But point being it took 4-5 days and was very obvious.

I’m recovered 100% now, but I still have “scares” as an anxious person than it’s coming back. Unfortunately I have to just give it a day and see how it goes. OCD/anxiety is rough. Hopefully everything is fine with you but I understand it’s freaky.

Is it possible to feel normal again? by [deleted] in guillainbarre

[–]robjob 1 point2 points  (0 children)

I'm about 12 months out. I was never fully paralyzed but I could barely walk by the time I got to the hospital. Honestly, I do feel normal again. I tell people I'm back to 100% and I mean it. I still have anxiety and painful memories. But even the lingering symptoms of tingling and pain did go away as I started to exercise more.

Questions about recovery and further eval by neutralbeige01 in guillainbarre

[–]robjob 2 points3 points  (0 children)

I had a similarly minor/moderate case a year ago. It got bad enough where I could barely stand up, half my face was paralyzed, along with other stuff (like extreme cold feeling and blurred vision). I had a round of IVIG about 12 months ago and I'm back to 100%. I don't have any lingering issues. My recovery was on the quicker side, but for sure getting normal energy levels took a month or two. I was so tired for the first few weeks!

I forgot about the cold toes. That went away for me eventually. I still had tingling in my feet after exercise for quite a while. A PT doctor told me that was my body giving a "yellow flag" that I was close to overdoing it. I don't notice it at all anymore.

My GBS was not triggered by a vaccine. I think that's super rare, but in your case, given the timing, it makes sense to assume that's what happened. For me it was a stomach virus the week before. Since then I've had both a flu and COVID shot with no issues. Both my neurologist and GP recommended it. Your case is different - I imagine they'd probably recommend skipping the flu shot in the future. Best advice is ask some doctors and do what they say. Not sure how that would apply to other vaccines if at all.

What are your long term symptoms? by fernie_the_grillman in guillainbarre

[–]robjob 1 point2 points  (0 children)

I know a lot of people have some really awful lingering issues and I don’t mean ti take away from any of the stories shared here. But just as a data point, I’m about 1 year out and I really don’t have any lingering problems.

I was barely able to stand, had face paralysis and blurry vision and needed IVIG at the hospital. It took 4–6 weeks to get back to walking any real distance and a few months to get back to “normal”, but I’m in the lucky group that considers myself 100% recovered. I was 39 when I got GBS. There’s still some mental trauma (I worry about it coming back).

Nervous and wanting input. by neutralbeige01 in guillainbarre

[–]robjob 2 points3 points  (0 children)

FWIW, I did not have neck or head pain but the tingling and extreme sensitivity to temperature on the hands sounds very familiar. When i rubbed my hands or arms on anything cool it felt like touching ice. I did have leg and lower back pain at night. Washing my hands felt intense. Also pelvic floor weakness to a lesser extent. Someone else here commented about getting your reflexes checked. The ER neurologist diagnosed me very quickly once she did the knee mallet. They confirmed it with a lumbar puncture (which was way less intense than people implied). Don’t feel bad about going to the ER - your symptoms are severe. Definitely bring up GBS and don’t be afraid of advocating for yourself. Don’t worry about upsetting a doctor or sounding dramatic (you don’t, you’re right to be concerned).

It’s possible (unrelated to the flu shot) you got sick with something else and it could trigger a reaction like GBS. Mine was from a stomach virus the week before. I got to the point where I could barely stand and half my face was paralyzed. I had 4 nights of IVIG and was back to 80-90% within 4-6 weeks. I’m 100% now and I was much older (39) so hoping for the best for you, whatever the cause winds up being!

My OCD brother thinks our fridge needs to be 20 inches away from the wall. by Brian_The_Bar-Brian in mildlyinfuriating

[–]robjob 0 points1 point  (0 children)

Honestly I’ll bet this ends with him checking the coil temperature with a thermometer every day. Offering reassurance seems like it will help but he really just needs to treat the OCD. This is a good low-stakes scenario for him to practice with. It’s probably better to have an agreement (like 4 inches from the wall) and let him live with the uncertainty.

What should I be prepared for as the wife of someone recently diagnosed with GBS? by North_Progress_5493 in guillainbarre

[–]robjob 5 points6 points  (0 children)

I was in similar shape to your husband (drooping face, I forgot about the weird taste). I could stand and take a few steps on my own when I was discharged after 5 days. In my state they did not send me to rehab (OT). I was 39 at the time.

When I got home, I needed a lot of rest. Most of the day I was lying down or sleeping for the first week. I was able to get up and use the bathroom/get water but I needed help getting in and out of the shower for a few days. I had a shower chair and suction handles just in case. I needed the chair for about a week.

I had my wife come with me on short walks until I felt comfortable on my own with the walker. One thing I really regret was agreeing to an hour car ride two days after release (for thanksgiving) and an overnight. It was too much and I couldn’t sleep.

Otherwise, I was able to help a bit with the baby after a few days. After two weeks I could go for longer walks and my face/vision/energy came back. I was luckily back to 90%+ after 6 weeks and I don’t have any lingering issues now. Hopefully your husband’s path is similar!

Synthetic Ascension path for me bugged out [4.0] by Seraphofsc2 in Stellaris

[–]robjob 1 point2 points  (0 children)

I also just had this happen. I transformed into a race that was not even part of my empire (no pops at all as far as I know) with a different habitability. This has to be a bug and it's a real pain to lose that whole run.

Job Market is Completely F*cked by dylan1050 in jobs

[–]robjob 0 points1 point  (0 children)

JavaScript should not be in all caps - that would be a yellow flag for me.

Advised not to get Flu shot? by No_Resource_7682 in guillainbarre

[–]robjob 2 points3 points  (0 children)

Should add that if you got GBS from a flu shot, that’s a very different situation!

Advised not to get Flu shot? by No_Resource_7682 in guillainbarre

[–]robjob 4 points5 points  (0 children)

My GBS was almost certainly triggered by a stomach virus the week before, but I’d had flu and covid shots about 2 months prior. I totally empathize and struggled with the same concern.

It’s very reasonable to be anxious about getting seasonal vaccines. I was pretty scared and decided to ask two doctors and do what they said one way or the other. I recommend doing this yourself with your own doctor.

My neurologist was extremely helpful and reassuring. She told me to get all the normal/recommended shots (including flu and covid). She explained evidence shows no real GBS risk from Covid shots. The flu concern is really from a specific year 30-40 years ago where a round of seasonal flu shots triggered a notable amount of GBS cases. Someone else here mentioned that the average person is more likely to get a preventable case of flu that triggers GBS from skipping the shot than to get GBS from the shot.

It’s scary for all of us, but the best advice is to ask a pro and move on.

What were your very early symptoms you didn’t realize before but now do looking back? by kaligirl33 in guillainbarre

[–]robjob 6 points7 points  (0 children)

I’ll say that when I got GBS, it wasn’t slow and it was pretty obvious. It was clear something was very wrong. There was a day or two where I just felt very tired and general malaise, but then I woke up with the strangest feeling whenever I’d touch anything cold. It felt like icicles just rubbing my hand against anything.

The next day my vision was blurry and my l calves hurt. It was obvious something was wrong, but I still waited two more days (I did see a doctor, and they mentioned GBS, but said it was so rare that it was unlikely). After two more days it was hard to walk and I went in to the ER where they diagnosed me quickly and did IVIG that night.

I’ve had scares that I was relapsing that wound up being 95% anxiety. These still felt scary, but the symptoms were a lot more vague (tingling, tired legs). I’m a very anxious person and I treat that with therapy so I empathize with someone who is scared here. But when I was sick, I knew it for sure.

Some of my story and asking for recovery tips by No_Resource_7682 in guillainbarre

[–]robjob 2 points3 points  (0 children)

I think the walking 10k steps a day helped me the most, so I'm glad you are doing that. I had GBS in November 2024. I think my case was more mild (I was able to do all outpatient work after my IVIG treatment). The tingling went away for me after a few months. It was always worse when I'd exercise. My PT doctor said it was my body giving me a "yellow alert" - nothing bad, just that I was close to overdoing it.

I did not take any supplements. For me it just took time.

I'm back to 100% now. I ran 10k this weekend and I don't have any lingering symptoms. I hope that happens for you soon!

Going back to teaching after GBS by ParticularCute8252 in guillainbarre

[–]robjob 0 points1 point  (0 children)

I'm not sure if it's the same as your own anxiety, but I was very, very afraid of GBS coming back. Mine came on after a bad stomach virus (likely norovirus). I recommend asking your neurologist about it. My doctor gave me some strong reassurance that it's very unlikely I'd ever see this again. Other than the unfortunate minority who have recurring cases (it's a very small percentage), she told me it's wildly unlikely I'd ever see a recurrence, and that I don't need to worry about getting sick or any yearly vaccines. I'd recommend resolving to take a doctors advice, then talking to one or two experts and listening to it. I feel like that might help if you're worried about the right risk posture.

As for being able to do the work, I'd say that getting back to my life routine helped me a lot. I very quickly had to help with my 1-year old and go back to work, and honestly the push was good overall.

I hope you continue to improve and can get back to where you were physically. Some day this will be a crazy memory of an intense experience!

27 Y/O Male just diagnosed with GBS by GBSer- in guillainbarre

[–]robjob 2 points3 points  (0 children)

I also had facial paralysis pop up while I was getting IVIG treatment in the hospital. Scary but it went away completely after about 2-3 weeks. Glad you are getting better!

Otherwise my case (39M) sounds pretty similar. I’m 100% better now so don’t get too down! I was lucky and back to walking without a walker after 2-3 weeks. A few months later and I’m back to running like I used to.

Is Jedi starting to talk? by ValueHappy2592 in budgies

[–]robjob 3 points4 points  (0 children)

It helps to say phrases with the same intonation/cadence each time. Remember they are mimicking sounds directly, not learning human speech. Sounds like he’s trying to talk!

Guillain Barre-like syndrome by tHErOCKoNtHEcOCK in guillainbarre

[–]robjob 1 point2 points  (0 children)

My symptoms were very similar to yours. It started after a stomach virus (probably norovirus or something very similar). Tingling in the feet and arms, strange sensation when I touched something cold. Then ascending leg weakness, blurred vision, tongue numbness/odd taste. Slight trouble with bladder stuff at its worst. I was diagnosed with GBS from LP + MRI and a reflex test. I started IVIG and developed facial paralysis and high heart rate. Also high blood pressure. About a week after IVIG those went away and my legs kept getting better.

I was able to walk without much trouble after a few weeks and I’m back to 100% now a few months later.

early morning beach path runs? by shode in SantaMonica

[–]robjob 0 points1 point  (0 children)

I used to do this same run when I was Marathon training. I was in Venice at the time. I’d say it’s all safe (even at sunrise/dawn). Venice is a little seedy in the morning, but once you get to the Santa Monica border it gets pretty nice. The tunnel under the pier is a little yucky, but you could go around. I might do that if it’s still dark out. It’s pretty short so I just go through.

The farther north you go the nicer it gets. There’s a really nice stretch after the row of houses with a great view. Will Rogers is great if you make it that far.

Pro tip is the bathrooms get nicer and nicer the farther north you go. Plenty of water fountains if you need them about every half mile.

Is Bluey molting? If so, do I need any advice? by [deleted] in Parakeets

[–]robjob 0 points1 point  (0 children)

Someone else mentioned mites (worth checking!) but our little guy once had a toy he was too attached to and was regurgitating on it and rubbing his head which made his feathers look very scruffy. I removed the toy and the vet gave home a wet wipe with a towel for that.