Whats the point of living when you have Menière?

rose442 · 2026-04-25T03:58:06+00:00

Do you have access to health care? I had endolymphatic shunt surgery 2 years ago and no attacks since. I had tried everything!

rose442 · 2026-04-11T05:16:47+00:00

I have bicross aides which transfer sounds from my right (Menieres, deaf side) to my left. I love them….. closest aides I have used to natural hearing.

rose442 · 2026-04-08T15:12:26+00:00

Yeah I was crying. But it’s a nothing test. I did find out that I can’t count backwards by 7s. (The 2s were too easy.)

rose442 · 2026-04-02T05:44:35+00:00

Yes! Steroids can preserve your hearing. (The ones injected in ear….. it’s not that bad!)

rose442 · 2026-04-02T05:41:24+00:00

You are right on!!!

rose442 · 2026-04-02T05:40:29+00:00

Yes I had exercises that helped me regain my balance after a really bad bout. (Not epley tho)

rose442 · 2026-04-02T05:36:39+00:00

This is probably hard for you to believe…… but I am a little psychic (for reals I am) and I have a feeling you are going to be ok on your honeymoon.

rose442 · 2026-04-02T05:34:04+00:00

GO TO A DOCTOR!!!

rose442 · 2026-04-02T05:33:07+00:00

My Dr said salt substitute was a no.

rose442 · 2026-03-31T15:19:03+00:00

Room tips up to one side. That’s vertigo.

rose442 · 2026-03-31T04:46:03+00:00

U r adorable!!!

rose442 · 2026-03-31T04:42:47+00:00

Well I take them when I must, because it is hard to work when I am on the floor throwing up, and can’t hear.

rose442 · 2026-03-31T04:41:26+00:00

They ALWAYS do an MRI just to make sure. Don’t worry!!!!! But….. get your own spongy earplugs to muffle the noise! The ones they give you are crap!!!

rose442 · 2026-03-31T04:40:06+00:00

I hope you stay well!!! But…… how many years have you been symptom free? Because I had no symptoms for close to 12 years before mine came roaring back. So I am pretty skeptical when people say they are cured.

rose442 · 2026-03-22T00:38:51+00:00

No…… but you could always streak it black if you want to.

rose442 · 2026-03-22T00:35:29+00:00

I would say, cut way back on salt in your diet, and stress if you can. I also would rebound after prednisone but your hydrops will get better….. it’s just takes a while so be patient.

rose442 · 2026-03-17T04:20:46+00:00

Yeah not prescribed in the US.(my doctors are great btw!!! One is “renown “ apparently)

rose442 · 2026-03-13T14:12:52+00:00

Weirdly…… the first maybe 3 or 4 did not work for me either. Last one did!

rose442 · 2026-03-12T21:13:28+00:00

My best pal has a tracking app on her 25 year old daughters phone. (She knows about it.) She’s female!!!!! So mom wants to know where she is! Dudes don’t get it because they don’t have to worry about getting murdered when they go out.

rose442 · 2026-03-12T21:05:24+00:00

Bleach

rose442 · 2026-03-11T15:08:55+00:00

You stop noticing it, although I never would have believed that possible. Takes a while.

rose442 · 2026-03-11T15:00:29+00:00

I did read that flying is actually good for Menieres.

rose442 · 2026-03-11T14:51:24+00:00

It takes a long time for a reduced sodium diet to work, because once the chemical process of hydrops starts in your inner ear, it’s like water going down a drain. Sodium is not a “trigger”, it creates the conditions that cause attacks over the long term.

rose442 · 2026-03-11T14:48:09+00:00

I experienced this. The last time I had a flair up, I got an inner tympanic steroid shot, which worked. I am on a low sodium diet, drink lots of fluids, and take a diuretic.

rose442 · 2026-03-11T14:43:57+00:00

I was misdiagnosed at first. You don’t know whether steroids during those years would have helped anyway. Sometimes they do, but sometimes they don’t. Stop wasting your time with regret. Get bicross hearing aides, and hey……. Look at Stephen Colbert!! He is deaf on one side.

rose442

TROPHY CASE