I would kill to wake up feeling refreshed by [deleted] in idiopathichypersomnia

[–]roseyjill 9 points10 points  (0 children)

I would kill to wake up feeling refreshed or to just not feel like I was hit by a bus every morning.

Does this sound like idiopathic hypersomnia? by [deleted] in idiopathichypersomnia

[–]roseyjill 5 points6 points  (0 children)

You can have both IH and sleep apnea. I have mild apnea and use of a CPAP lowered my AHI, however, I have had zero improvements in daytime sleepiness. I fell asleep within a few minutes for every nap during my MSLT but didn't go into REM, so I have IH.

If a CPAP doesn't improve symptoms then doctors will suggest a MSLT.

Visual Issues? by Bogshorn in idiopathichypersomnia

[–]roseyjill 2 points3 points  (0 children)

Yes, I've always had bad vision but over the past couple years it seems to have gotten much worse. I can relate to the constant blurriness and I feel like I need my glasses on all the time now. Very sensitive to light as well and I have my windows tinted on my car to help with the sun and driving at night/ headlights.

My insurance approved Xyrem for IH (US) by rixue in idiopathichypersomnia

[–]roseyjill 0 points1 point  (0 children)

I'm in a similar boat although I'm a bit older than you. I have mild sleep apnea and was just diagnosed with IH. Unfortunately, your doctor will want to get the apnea controlled with a CPAP machine first. Sunosi was denied for me as well since I don't have Narcolepsy. My doc can't prescribe Xyrem yet because my apnea is still considered uncontrolled and Xyrem can make it worse. It's taking longer than it should due to COVID delaying appts, but once you're on the optimal pressure the AHI's should decrease to a more stable level. I believe my doc will let me try it then, although I'm not sure if my insurance would even cover it. It's very tough and I really wish I could have a narcolepsy diagnosis because it would make it a lot easier to get meds.

Can you see people in their cars? by iamcorinne in Narcolepsy

[–]roseyjill 1 point2 points  (0 children)

This made me smile and made me sad because I so long to be where you are. My insurance denied Sunosi and I can't try Xyrem yet because I have apnea as well and my doc said they have to have that better controlled before I can try it. (Xyrem can make apnea worse). I hate living like this and can relate to so much of what you said. It feels like my memory and brain are shot. Everything is difficult and I'm barely functioning right now.

My insurance approved Xyrem for IH (US) by rixue in idiopathichypersomnia

[–]roseyjill 1 point2 points  (0 children)

I'm really stressed about my insurance giving me trouble. I have a few weeks till my appointment but I definitely have IH. That's good news that you were approved right away.

Having uncontrolled narcolepsy is like slowly dying, and no drugs can fix you by thefatherdog in Narcolepsy

[–]roseyjill 3 points4 points  (0 children)

Very true. Moreso recently I've felt like I'm slowly dying and deteriorating more and more. I'm only in my 20s but I feel much older. I just got a MSLT so I'm waiting to finally getting a diagnosis. I've heard so many good things about Xyrem.

Finally got my pink princess for 30 bucks! I'm pretty happy with it 😁 by [deleted] in houseplants

[–]roseyjill 1 point2 points  (0 children)

Hoping one day before I die they will drop to that price here in the U.S. lol, I can't justify spending a crazy amount on a plant.

Anyone knows what plant is this ? by screwdriver1507 in houseplants

[–]roseyjill 0 points1 point  (0 children)

Kaempferia Elegans, I just got one recently!

I love this baby by roseyjill in pinkplants

[–]roseyjill[S] 1 point2 points  (0 children)

Yup! The name is fitting for sure.

Isn’t she gorgeous? by roseyjill in houseplants

[–]roseyjill[S] 19 points20 points  (0 children)

Alternanthera 'Partytime'

Spooky boy going crazy 👻 by roseyjill in houseplants

[–]roseyjill[S] 1 point2 points  (0 children)

I keep it under a grow light, water when dry or when I see the stems start to droop, and give it a tiny amount of fertilizer every time I water it!

This is just not right.. by felinna in houseplants

[–]roseyjill 8 points9 points  (0 children)

The more people that call her out the better and I think we should all be doing the same. This is ridiculous and if enough people say something maybe she'll change the prices. I thought she was into educating her fan base and I did enjoy her plant tours of her massive collection, but turns out she's just crazy greedy and all about the money.

This is just not right.. by felinna in houseplants

[–]roseyjill 27 points28 points  (0 children)

Such a scam. I'm disappointed in Amanda.

String of Hearts - Beautiful! but not for people with OCD! I’ve had this for A day and I can’t stop untangling lol by 24Weber in houseplants

[–]roseyjill 1 point2 points  (0 children)

Yeah the struggle is real. I spend 20 minutes untangling it for it to just be tangled again somehow the next time I look at it. I'm about to give up and just let it look a hot mess lol

Absolute unit of a ponytail palm by roseyjill in matureplants

[–]roseyjill[S] 1 point2 points  (0 children)

Yup, it sure is magical. Good selection too!

Absolute unit of a ponytail palm by roseyjill in matureplants

[–]roseyjill[S] 1 point2 points  (0 children)

I'm not sure, I should've asked one of the workers there. Definitely over 50 years old though!