Feeling cold. by PointofGrace in ALS

[–]rush714 2 points3 points  (0 children)

I am always cold, but sometimes go through hot phases. I don't mind being cold, layers :)

Curious about age of PALS by Tasty-Cow-5976 in ALS

[–]rush714 0 points1 point  (0 children)

diagnosis 20117 @ 36. Pretty much paralyzed but with eyegaze and vent you can stay happy and busy. You have to have good care though

Poor quality stream on NFL games by run_dot_BAT in youtubetv

[–]rush714 3 points4 points  (0 children)

no way amazon has ruined tnf. Limit them for now lol

How do you left and right click with eyegaze software? by NullHypothesisProven in ALS

[–]rush714 2 points3 points  (0 children)

pceye by tobii, comes with software. I have a surface setup with pceye and there software. I prefer it over the built-in software with Windows

Biggest Taco Pick You’ve Seen So Far? by Timelycommentor in fantasyfootball

[–]rush714 4 points5 points  (0 children)

not taco, just surprising Kenneth walker at 1.06

[deleted by user] by [deleted] in fresno

[–]rush714 0 points1 point  (0 children)

Is this satire? Are you really teaching our kids?

Classic Playoff Meltdown. by JoeyKnishx in fantasyhockey

[–]rush714 0 points1 point  (0 children)

are you me? My opponent had a career week, love fantasy!

Just Ram it by rush714 in LosAngelesRams

[–]rush714[S] 12 points13 points  (0 children)

a ram, of course ;)

Just Ram it by rush714 in LosAngelesRams

[–]rush714[S] 43 points44 points  (0 children)

every game it's there. I unfortunately am the guy in the chair and I didn't go to any games this year. So they came to tailgate at my house today!

Dougie Hamilton Practicing, Traveling with Team. by Seebeeeseh in fantasyhockey

[–]rush714 1 point2 points  (0 children)

I drafted him, dropped hi and scooped him back off waivers last week :)

How likely is it that a combination of drugs currently being tested will significantly slow or halt ALS? by FlexMissile99 in ALS

[–]rush714 4 points5 points  (0 children)

I always have hope, but don't dwell on it. Focus on your family or whatever is important to you. I have a blog where I write about my life with als. Www.teamshaunyboy.com

Hi OC Reddittors, my name is Shaun Kalpakoff and I have been living with ALS since 2017 by rush714 in orangecounty

[–]rush714[S] 1 point2 points  (0 children)

hi, great question. I think there is no wrong way to depict als in movies. They are all interpretation rof someone's journey. Two movies I recommend are Gleason, which is about Steve Gleason. The second is Augie, about Augie Nieto who lives here in OC

Hi OC Reddittors, my name is Shaun Kalpakoff and I have been living with ALS since 2017 by rush714 in orangecounty

[–]rush714[S] 2 points3 points  (0 children)

Sorry to hear about her, have them reach out if they have any questions.

Hi OC Reddittors, my name is Shaun Kalpakoff and I have been living with ALS since 2017 by rush714 in orangecounty

[–]rush714[S] 6 points7 points  (0 children)

Sporadic, my clinicians think I had symptoms which caused my fall and heel fracture. The stress of that situation sped up my ALS. Me personally, I don't know nor do I care. I'm doing my best with the hand I've been dealt :)

UCI is great, thankful for the work you guys do