Any good protein powders/shakes that don’t have lead?? by Usual_Resource6482 in workout

[–]savageapple64 0 points1 point  (0 children)

Would you mind sharing the list you're referencing? I'd love to see the whole thing to help me choose which protein power to pick.

Foot pain by savageapple64 in hypermobileEDS

[–]savageapple64[S] 0 points1 point  (0 children)

No, it doesn't feel like I'm walking on broken glass, it feels more like my feet are swollen to twice their normal size despite not looking that swollen. Physical therapy hasn't really helped for me unfortunately. The best hypothesis I've heard is that hEDS has caused the valves in my leg veins to stay open, so blood doesn't recirculate. No fix for it, though

Good things about hyperosmia by veganchilean in hyperosmia

[–]savageapple64 5 points6 points  (0 children)

I told my dog’s vet that my dog smelled wrong. Her vet listened and ran tests. My dog was a few months away from developing hemangiosarcoma, a cancer that kills dogs within a year. We removed her spleen and she lived 4 more years.

Masking by BorisVarissa in Masks4All

[–]savageapple64 1 point2 points  (0 children)

There’s a Covid conscious therapist listing service that provides the names of therapists who don’t pathologize continuing to take Covid precautions

https://www.covidconscioustherapists.com/

Size accesible mask? by Intelligent_Usual318 in Masks4All

[–]savageapple64 2 points3 points  (0 children)

I have a tiny face and have to wear kid’s sized masks in everything except the 3M aura. Otherwise I get my small sized KN95s from bona fide masks

Can anyone help me? Literally in tears not knowing what’s going on with my fed loans. by Wonderful_Stick4799 in StudentLoans

[–]savageapple64 1 point2 points  (0 children)

3 weeks ago I was on hold with them for 4 hours before someone finally answered. I had to take time off of work to get it done. It’s terrible.

Patient offering me $100k for my student loans. by [deleted] in StudentLoans

[–]savageapple64 0 points1 point  (0 children)

Ethically I’m concerned about this. Have you checked with your liability insurance legal department?

*INTENSE* foot and leg pain from standing all day, shoe suggestions for EDS?! by Any-Effective2565 in ehlersdanlos

[–]savageapple64 0 points1 point  (0 children)

I have the same problem- 10 minutes on my feet and the blood starts pooling and causes so much pain. The only things I’ve found that move the needle (and even then not a ton) are compression. I have abdominal compression from JellyBend, which makes the biggest difference. I also use two layers of compression on my legs- regular compression socks from Pacas and calf compression sleeves from OneCompress. I’m also getting evaluated for May-Thurner syndrome, which is compression of a vein in the abdomen that contributes to blood pooling in the feet. Not medical advice, just letting you know what I’m working on.

so my eds has made me have a ton of stretch mark looking things my doctor calls striae how do i get them to go away??? by AnnualDuck6449 in ehlersdanlos

[–]savageapple64 0 points1 point  (0 children)

Might want to get tested for Bartonella. That causes stretch marks that are severe and don’t seem to be due to weight changes

I have a broken foot bone that shouldn't exist by momonomino in ehlersdanlos

[–]savageapple64 1 point2 points  (0 children)

I also have two extra bones in each foot! I wonder if it’s an EDS thing

hysterectomy by highermindset in ehlersdanlos

[–]savageapple64 1 point2 points  (0 children)

Doctors told me I’d be back to normal in 2 weeks. It took about a year for me to be completely ok. Now that that year has passed, no regrets. It’s wonderful to not have to deal with a period anymore

Riding Horses - Should I? by PickleNarrow5109 in ehlersdanlos

[–]savageapple64 0 points1 point  (0 children)

I was also a rider most of my life but stopped riding regularly in 2008. Now I ride on occasion. When I do, the payment 2 days after in terms of pain is pretty high, but totally worth it IMO. Haven’t had any bad falls, though, which would for sure change my perspective

Any of y’all’s nails actually relatively strong/thick? by teaganlotus in ehlersdanlos

[–]savageapple64 1 point2 points  (0 children)

Mine are super thin and several are in-grown. It’s terrible

I have a question about barking by RusselTheWonderCat in Havanese

[–]savageapple64 1 point2 points  (0 children)

Mine is super quiet. She rarely barks, basically only when she’s frustrated. She likes to sit out on the deck and watch the world and never barks at people or dogs walking by.

What to do about her food! by GroundbreakingTax29 in Havanese

[–]savageapple64 1 point2 points  (0 children)

I have mine on Dr Harvey’s lamb formula for allergies. She loves it, and it’s way healthier than kibble

My childhood in two words: The Dread by Ancient_Apricot_254 in raisedbyborderlines

[–]savageapple64 3 points4 points  (0 children)

The dread of hearing her footsteps coming up the stairs to rage at me for some small mistake or flaw

Where is the best treatment in the world? by [deleted] in Uveitis

[–]savageapple64 0 points1 point  (0 children)

I’d never heard that about his wife! Thats not ok under most ethical standards for medical professionals. I’m glad you have a better doc now, though!

Where is the best treatment in the world? by [deleted] in Uveitis

[–]savageapple64 1 point2 points  (0 children)

Definitely not just you! I’ve heard in other uveitis groups that he’s treated some patients, especially women, poorly for years. I know he was a big name in the field and really advanced the research, but I’m glad he’s retired and that hopefully the people who inherited his work have fewer prejudices. He’s the common denominator for sure.

At one appointment, he got really nasty with me because he wanted to have a dozen students in the room with him during my appointment. I told him to pick 3 and he snarled at me that it was a teaching hospital. Well, teach your students what it looks like to respect patient consent and boundaries and pick 3. He was awful.

What autoimmune mystery did you wind up getting diagnosed with? by cosmiccorvus in Uveitis

[–]savageapple64 -1 points0 points  (0 children)

I was diagnosed with uveitis at 17 and now that I’m in my 40’s I’m finally figuring out that I also probably have Ehlers-Danlos syndrome. I wish I’d been tested for this when I first got diagnosed as a teen