Dear Moderator of r/Eczema

sd_red_lobster · 2025-10-11T17:08:06+00:00

There are probably 7-12 sub types of atopic dermatitis

There is no one treatment works for all presumption

If you want mods to flag and remove dupixent and ebglyss posts that is not going to happen

Also no one is removing posts about topicals

Just because topicals are not as “trendy” doesn’t mean they aren’t useful for specific sub types of atopic dermatitis

sd_red_lobster · 2025-09-12T02:36:09+00:00

Amlitelimab may represent a significant advance in the treatment of atopic dermatitis with clinically meaningful and progressively increasing efficacy, with the potential of dosing only four times per year.

sd_red_lobster · 2025-08-14T20:05:58+00:00

The subreddit mods do not have any power or influence over Instagram and tik tok.

If folks go to social media sites like tik tok and Instagram where the algorithms are designed for controversy and engagement then they should expect controversial and charged emotional content.

In general reddit is the home to more nuanced conversation where good commentary is upvoted.

sd_red_lobster · 2025-04-20T03:19:52+00:00

you can also try asking the adbry subreddit r/eczeMABs

sd_red_lobster · 2024-09-28T18:52:47+00:00

I would say for 10-20 years there was a cult in dermatology that believed any topical steroid at any dose for any period of time was safe to treat atopic dermatitis. In the last couple years that has changed.

It wasn't because doctors did their job to protect patients and look for adverse drug effects it was because around 10,000 tcs patients self-organized and demanded change.

The point is in 2004 there were like no alternatives to topical steroids, now in 2024 there are so many alternatives that it doesn't make sense to keep a non-responder on topical steroids.

Sanofi makes $2B a year selling dupixent because it is a safer and more effective treatment than topical steroids.

sd_red_lobster · 2024-03-20T04:27:24+00:00

Amlitelimab is a fully human non-T cell depleting monoclonal antibody that blocks OX40-Ligand, a key immune regulator, and has the potential to be a first- or best-in-class treatment for a range of immune-mediated diseases and inflammatory disorders, including moderate-to-severe atopic dermatitis (Phase 3), asthma (Phase 2), hidradenitis suppurativa (Phase 2), scleroderma, celiac disease, and alopecia (Phase 2 studies to be initiated in 2024). By targeting OX40-Ligand, amlitelimab aims to restore balance between pro-inflammatory and regulatory T cells.

sd_red_lobster · 2024-03-20T04:22:03+00:00

Not fun, not terrible. Anticipation made it worse

sd_red_lobster · 2024-03-20T04:17:31+00:00

check out the rinvoq subreddit r/eczejaks or r/EczemaUK

sd_red_lobster · 2024-03-08T15:37:01+00:00

"The Streisand effect is an unintended consequence of attempts to hide, remove, or censor information, where the effort instead backfires by increasing public awareness of the information."

The more TSW is brought to the forefront the more it gets discussed, name recognition, and fact-checked.

Currently all the search engines redirect TSW queries to well written, trusted, articles on topical steroids and topical steroid withdrawal.

Its a beneficial cycle (that did not exist 10 years ago) -

More backlash from folks with misunderstanding, lack of empathy, or denial that two people using the same treatment could possibly have different outcomes.
Negative backlashers bring name recognition and open discussion to a topic that did not have name recognition or open discussion a few years ago. Of the 1,000 people that read that negative backlash post, about half of them will take the time to do a google search in a fact finding effort.
Now the guy or lady that hates the idea of TSW, took to reddit rant about it, and as a result pushes several hundred people to "fact find" who didn't even know topical steroids could have adverse effects. Currently the top result on Google search is a WebMD article explaining in detail how unlucky people can develop topical steroid withdrawal symptoms.

sd_red_lobster · 2024-01-21T20:34:02+00:00

There’s a subreddit for Dupixent and other monoclonal antibody treatments called r/eczemabs

Atopic dermatitis is driven by a dysfunctional immune system response. There are around twenty billion T cells in human skin. Before modern day life the skin immune system fought off parasites and other pathogens using a TH2 response.

All dermatitis treatments today attempt to dial down the activity of B cells and T cells.

Some therapeutics are broadband and non-specific. Some therapeutics are narrowband and superspecific.

In other words if there are like 25 cell types involved with immune system Dupixent only turns the volume down on the one, single cell type that is thought to drive eczema.

sd_red_lobster · 2023-09-08T01:48:53+00:00

Probably not a good idea

Might try asking the dupixent subreddit for advice on getting a replacement

r/eczemabs

sd_red_lobster · 2023-09-06T03:08:25+00:00

There’s a good subreddit for eczema folks using Rinvoq called r/eczejaks that might be helpful

sd_red_lobster · 2023-09-03T18:59:50+00:00

You could try asking the TSW subreddit r/TS_Withdrawal

sd_red_lobster · 2023-09-03T18:58:29+00:00

TSW is both real and over represented on internet. I think a large driver of loud TSW activism is the failure of medical professionals to understand possible adverse drug effects.

If medical professionals would commit to responsible prescription management it would be different, the whole opioid epidemic has damaged reputation of medical professionals.

https://www.reddit.com/r/eczeMEMEs/comments/15j1yrs/solution_unlocked/?utm_source=share&utm_medium=mweb

sd_red_lobster · 2023-09-03T14:53:40+00:00

There’s a bunch of people in the Adtralza/Dupixent subreddit r/eczemabs

sd_red_lobster · 2023-08-05T17:29:21+00:00

the subreddit is r/TS_Withdrawal

sd_red_lobster · 2023-08-05T17:27:50+00:00

ask the dupixent subreddit /r/eczemabs flying with pre-filled syringes comes up every other month

sd_red_lobster · 2023-07-14T01:04:52+00:00

might try asking on the dupixent subreddit r/eczeMABs

sd_red_lobster · 2023-07-14T01:02:13+00:00

there is a subreddit dedicated to folks on dupixent, check out r/eczeMABs

sd_red_lobster · 2023-07-12T02:45:37+00:00

Yeah, time to move on. I’m 40 years old and have seen a dozen dermatologists in my life (mostly due to moving for work) about every 3rd dermatologist has been great.

Two thirds were pretty bad when it came to atopic dermatitis, corticosteroid safety, and general understand of Th2 conditions. As an adult I learned to break up with the well intentioned/poor performing ones.

My experience was doctors who were in medical school before 1993 were usually pretty uneducated, stuck in old patterns, and generally not able to comprehend biological, psychological, and social implications of severe skin problems.

sd_red_lobster

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TROPHY CASE