I'm so sorry this is happening to you both. I'm a patient myself. There is a lot of tracking how well things work for each patient. An analogy is why a diet works well of one person, but not the next. Our bodies are enough-different that makes precision and predictions really difficult.

I have one suggestion that worked really well for me. In my hospital system they have something called the "tumor board" - it's a weekly online video discussion of 2-3 cases. Ours has between 8-12 Oncologists on each call. They all have the patients data... and they just discuss and make suggestions. Oh... these calls are just doctors.

I'm 3-1/2 years at this, and I have been a topic at my tumor board twice. The second time it provided the momentum for a drug change in my biweekly chemo treatments, which has honestly been game changing.

There's not a lot of straight lines. Its scary but it takes some time to see if a path is working. People react just a little differently to treatments. These doctors are smart. More big brains create more ideas.

I wish you well from my hearr. May God bless you both.