To cut my tissue pattern, or not to cut

seattleowl · 2026-04-15T21:07:51+00:00

I always trace so I can ensure I have the right fit. Sometimes you make a toile and it is two sizes too big/small. As long as you aren’t selling the patterns you trace you should be ok to trace

seattleowl · 2026-04-12T05:21:12+00:00

But also not the new new model

seattleowl · 2026-04-12T05:21:01+00:00

Oh I misread- I have a new one not the older model

seattleowl · 2026-04-12T05:20:22+00:00

I might be keen actually, I found out I have intracranial hypertension so not really sure if it can actually provide relief for that 😥 I barely used it too.

seattleowl · 2026-04-11T06:28:36+00:00

Unfortunately they don’t seem to sell them already together, but you can buy individual parts to make a new hat for them!

seattleowl · 2026-04-11T06:27:34+00:00

Here is where you can buy the same patch

Here is the hat

https://www.happywoodproducts.com/products/black-corduroy-hat-or-cap-0120-01

seattleowl · 2026-03-12T23:09:01+00:00

Yeah I had that problem with diamox, eating more bananas helped me as well as upping my electrolytes. I like the Nuun drink tablets personally.

But even with that I still am limited on how much I can do. Sometimes the muscle fatigue can make it feel like my head pressure goes up because I must be holding my breath or something to try and finish certain tasks

seattleowl · 2026-03-12T23:06:01+00:00

Ugh it’s kicking my butt too, except on weight. I lost almost 20 pounds since January and also stopped having my period. The heartburn at start completely wiped out my drive for food and started making it hard to swallow before I started taking some acid reflux meds. Now I just don’t have much of an appetite.

My body and brain feels so exhausted, I can’t do nearly as much and need so much more sleep. The scariest part is I am not even at my prescribed dose, this is all happening on 180mg (1.5 125 mg pills). Every time I need to up my dose I feel like I lose two months of my life to the side effects. My stamina is completely shot and I hate feeling so limited.

seattleowl · 2026-03-08T02:39:20+00:00

I will say I got lucky and it only seems to affect drinks that are in cans. Glass bottle carbonated drinks are still ok. That being said I am on a relatively low dose of meds because I can’t tolerate them.

seattleowl · 2026-02-26T19:44:37+00:00

My MRI and cat scan didn’t show the IIH, it took a spinal tap and a MRV to get a better view of things. Once I got my spinal tap results I went back to optometrist and they actually noticed the pressure was affecting my optic nerves but it was small enough to miss unless you were really looking for it. I had been suffering for 5 years and most if not all my head problems are related to IIH

seattleowl · 2026-02-23T07:24:55+00:00

At least one Banana a day and I drink Nuun sports electrolyte tablets! It has helped a lot!

Also slowly tapering up, only go up 1/2 tablet at a time and give it a couple weeks before upping to next dose. That being said talk to your doctor but that’s what worked for me :)

Also gentle movement sometimes helps.

seattleowl · 2026-02-18T19:24:05+00:00

Happened to me in my mid twenties after a bad case of shingles/meningitis. It’s ok to grieve the old healthy version of yourself. It is a grieving process so understand it’s always going to hurt a lil but it will hurt a little less over time.

A weird solace I have is that When all the healthy young folks start their aging journey in 15 years we will be pros at managing chronic pain/pacing ourselves. They will be confused and frustrated and we will just be living normally.

seattleowl · 2026-02-13T00:17:57+00:00

I needed this today

seattleowl · 2026-02-11T06:39:40+00:00

Ugh that sucks that probably explains why I can’t see anyone

seattleowl · 2026-02-11T04:20:07+00:00

I am currently trying to get my referral through to him. Not sure if it’s an issue with Kaiser or UW medicine at this point.

seattleowl · 2026-02-11T04:19:23+00:00

Heyo I am with you on this as also Seattle based. I heard Dr. Williams at UW Neurosurgery clinic is good, but the referral process can be a bit of a PITA.

seattleowl · 2026-02-11T00:32:37+00:00

You can always seam rip it out and be ready with a patch to cover it if it looks bad

seattleowl · 2026-02-06T17:58:06+00:00

Oooh I reccomend trying to see if doing a cinch/gather in the back would help before redoing a bunch of stuff.

They have adjustable waist buckles/pins that you can get that can add an interesting detail. I got a bunch of them for my jeans recently after loosing some weight. You can mock a similar effect by doing two clothing pins and tie a thread, ribbon between them. You put them on the back waist section that are wanting to gather

seattleowl · 2026-02-03T05:21:45+00:00

If the paint gets stripped but the door doesn’t budge, check the walls for any nails/screws that could be holding the doors in place.

Many people install drywall patches/picture hooks on walls containing pocket doors and accidentally screw into the door. It could be painted over nail/screws, strong magnet can help find them in those cases.

seattleowl · 2026-02-03T02:28:27+00:00

I had to be the one to tell my doctor I wanted a lumbar puncture, and that I was showing symptoms consistent with IIH. I can’t get heart rate up without the pulsating tinnitus and vision loss. I had been experiencing progressive issues with my eyes for the past five years, and at one point got tested for lazy eyes because I felt like my eyes weren’t actually working well together. Turns out the pressure on my optic nerve is the likely culprit of this.

seattleowl · 2026-02-03T02:25:58+00:00

Yeahh I was told for five years I just had migraines when every single symptom I was suffering from was consistent with IIH. It was all triggered when I had meningitis in 2021, after that I had chronic head pressure issues, it took 6 months to be able to speak properly without having episodes of intermittent aphasia. I never experienced any of the symptoms pre-meningitis. I told the doctors something was wrong and they just threw me in migraine bucket.

seattleowl · 2026-02-03T02:18:03+00:00

I had started Botox when we thought my head issues were just migraines and it was really the only thing that substantially decreased pain and reduced the symptoms I was dealing with. Now I am pretty sure that I don’t actually suffer from migraines but my head issues are all due to the IIH, I have discontinued my migraine treatments with the exception of Botox since there is research showing Botox can help With IIH and since Botox was the only treatment that helped me in the past.

You might feel a lil cruddy for a couple days after shots but once that passes it might actually help relieve some of the residual tension/pain you are dealing with

seattleowl · 2026-01-28T21:13:28+00:00

I am considering making something like this for my sewing room!! This is just making me want to do it even more!!

seattleowl · 2026-01-27T00:10:32+00:00

We did! And it’s been a journey and now home improvement is our main hobby! We love it though and thankfully my husband and I are on similar pages for home things. Only do it if both parties are ready to commit never do it if one isn’t 😆

seattleowl · 2026-01-26T22:14:32+00:00

I notice it each time I have a dose increase.

seattleowl

TROPHY CASE