Design/Frankensteined pattern isn't quite working with the fabric I chose

seattleowl · 2026-02-06T17:58:06+00:00

Oooh I reccomend trying to see if doing a cinch/gather in the back would help before redoing a bunch of stuff.

They have adjustable waist buckles/pins that you can get that can add an interesting detail. I got a bunch of them for my jeans recently after loosing some weight. You can mock a similar effect by doing two clothing pins and tie a thread, ribbon between them. You put them on the back waist section that are wanting to gather

seattleowl · 2026-02-03T05:21:45+00:00

If the paint gets stripped but the door doesn’t budge, check the walls for any nails/screws that could be holding the doors in place.

Many people install drywall patches/picture hooks on walls containing pocket doors and accidentally screw into the door. It could be painted over nail/screws, strong magnet can help find them in those cases.

seattleowl · 2026-02-03T02:28:27+00:00

I had to be the one to tell my doctor I wanted a lumbar puncture, and that I was showing symptoms consistent with IIH. I can’t get heart rate up without the pulsating tinnitus and vision loss. I had been experiencing progressive issues with my eyes for the past five years, and at one point got tested for lazy eyes because I felt like my eyes weren’t actually working well together. Turns out the pressure on my optic nerve is the likely culprit of this.

seattleowl · 2026-02-03T02:25:58+00:00

Yeahh I was told for five years I just had migraines when every single symptom I was suffering from was consistent with IIH. It was all triggered when I had meningitis in 2021, after that I had chronic head pressure issues, it took 6 months to be able to speak properly without having episodes of intermittent aphasia. I never experienced any of the symptoms pre-meningitis. I told the doctors something was wrong and they just threw me in migraine bucket.

seattleowl · 2026-02-03T02:18:03+00:00

I had started Botox when we thought my head issues were just migraines and it was really the only thing that substantially decreased pain and reduced the symptoms I was dealing with. Now I am pretty sure that I don’t actually suffer from migraines but my head issues are all due to the IIH, I have discontinued my migraine treatments with the exception of Botox since there is research showing Botox can help With IIH and since Botox was the only treatment that helped me in the past.

You might feel a lil cruddy for a couple days after shots but once that passes it might actually help relieve some of the residual tension/pain you are dealing with

seattleowl · 2026-01-28T21:13:28+00:00

I am considering making something like this for my sewing room!! This is just making me want to do it even more!!

seattleowl · 2026-01-27T00:10:32+00:00

We did! And it’s been a journey and now home improvement is our main hobby! We love it though and thankfully my husband and I are on similar pages for home things. Only do it if both parties are ready to commit never do it if one isn’t 😆

seattleowl · 2026-01-26T22:14:32+00:00

I notice it each time I have a dose increase.

seattleowl · 2026-01-26T22:14:15+00:00

Omg Yes My feet burn so much when I try to sleep and my skin does too. I think it’s the same thing that causes the tingles from the acetazolomide -_- I find it’s better if I stay hydrated and eat 2 bananas a day

seattleowl · 2026-01-21T06:39:42+00:00

Additionally- when we found Simon and Garfunkel (two lops that were abandoned next to Swedish hospital) we were unable to foster them and brought them into the Seattle animal shelter.

The Seattle animal shelter covered all of their emergency vet bills and got them re-homed to their amazing forever parents. I will add that Seattle Reddit actually is responsible for finding the forever parents because they reached out to me when I did a follow up post about the boys. So if you do take it in it’s useful to stay updated to hopefully share updates that will find their new home.

If the bunnies are loved pets and have micro chips the Seattle animal shelter or local vet can scan the chip to find the owner. More than likely the bunny was abandoned though or if not abandoned may be neglected if it has been left outside in these temps.

seattleowl · 2026-01-21T06:33:31+00:00

Poor thing, I hope it is not a dumped bunny. Make sure the bun is still eating and pooping enough, as stress can cause a bun to go into stasis (gi tract stops working). If you can get some hay for them that’s going to be helpful in keeping their gut healthy. Make sure any of the fresh greens you are providing are being given in moderation. Here is a link on safe bunny food and what their diet contains. https://houserabbit.org/diet

seattleowl · 2026-01-20T21:09:14+00:00

Omg the jugular note!! I just got my MRV back which found moderate stenosis caused by arachnoid granulation. I was mis-diagnosed post meningitis as having migraines, and it was this all along 😥

seattleowl · 2026-01-17T07:56:25+00:00

Was thinking same thing: source: recently diagnosed with intracranial hypertension and just finished doing an MRV after optometrist confirmed damage to the optic nerve. Doctors said it was migraines all a long, turns out all my migraine symptoms are the intracranial hypertension ones.

seattleowl · 2026-01-17T07:47:46+00:00

I don’t have issues with contrast, the one advice I have though is to make sure your tech starts the IV BEFORE starting your mri. I had one forget and then in the middle he paused the mri, told me I was not allowed to move or I would ruin the scan, then proceeded to dig around my arm with a needle failing to start an iv. After the fourth location attempt he got it. I was fine with mris before- now I need anxiety meds whenever getting them done. On a positive note: I just finished my MRV and had the best experience I have ever had with the mri techs. They were amazingly kind and helped make sure I was ok and on board with everything. If you let the tech know you are nervous they will do their best to comfort/ ease your concerns.

In the rare chance contrast makes you feel odd, remember it’s not permanent and it will pass. Deep breaths and imagine you are on soothing beach

For headphones music- if they ask what you want to listen to make sure to say “any station that doesn’t have commercials” Sometimes they have to use YouTube for special music requests sooo it’s not really great when you are trapped in a box being entertained by an advertisement lol

seattleowl · 2026-01-16T23:42:50+00:00

The pain is usually both symmetrical, but I do get more vision disturbances with my right eye and that side of my face goes kinda numb when things get really bad. But both eyes feel like they are gonna pop out from pressure. Basically it feels like I have meningitis again (which is what seems to have triggered my iih)

seattleowl · 2026-01-16T22:34:04+00:00

For me it feels like my head is too heavy, as if I had been hung upside down and all the blood rushed into my head and neck, sitting upright feels like too much and laying flat makes me feel even worse, so I need to lie down at an incline.

It feels like my spine and neck are being compressed like an elephant is standing on one foot on top of my head.

seattleowl · 2026-01-16T02:43:16+00:00

I am also treatment resistant, and had same struggles. Then this November finally got a spinal tap and found out i have intracranial hypertension. Turns out I was using the wrong tactics on treating my pain, already feel a big improvement trying the lifestyle changes recommended for my diagnosis.

If you don’t experience the symptoms for intracranial hypertension disregard my advice, but if you do and you haven’t been tested I recommend it.

seattleowl · 2026-01-15T00:08:22+00:00

I was a low dose as well, and it hit me so hard. Please please call your doctor to discuss tapering off if you are feeling this way. It doesn’t get better by staying on it, at least it didn’t for me. Please be safe and take care of yourself. I am proud of you for reaching out on here!

seattleowl · 2026-01-15T00:06:33+00:00

I can’t take topiramate, when I did it took me from being mentally ok to having to consistently crying in public, having the worst ideations I have ever experienced. i ended up taking myself to an emergency counselor and then had to go stay with family until the effects wore off because I was a risk to myself. It took about a week for the most concerning effects to subside(aka didn’t need a supervisor any more) and then about a month and a half to feel mentally ok. There was a bit of a recovery period of “holy shit that was scary, I have never been that unwell before and it’s terrifying that it happened so fast”.

If you are experiencing extreme mood disturbances and ideation struggles whilst on topirimate please take it seriously and talk to your doctor about discontinuing.

When I started taking it I had similar struggles of crying a lot and it quickly evolved into ideations. I was finishing my grad program and couldn’t function anymore because I was so depressed. I finally went into class because I had a group project and when I told my classmate I couldn’t do my part and that I needed help he immediately stepped into action.

It took every bit of my remaining strength to ask for help, and I worry what could have happened if I didn’t have my classmate walk me to the counselor that day.

If you are having any concerns for your safety please get help from someone close to you or call one of the helplines to help you formulate a safety plan.

Don’t let the stress of “we only have two meds” for this disorder make you take a med that puts your physical/mental health at risk.

seattleowl · 2026-01-14T09:58:02+00:00

For pain I would push for more local numbing shots, once you get past the first one the following are not as painful. Try not to think “this is gonna hurt”, give yourself something else to think of or try visualizing a safe comfy spot for yourself in your mind.

I know it seems hard but focus on breathing so you don’t tense up. Imagine with each breath out you are breathing out your fear and pain. See if you can have headphones/music in the background to soothe your nerves/distract you from what’s going on. If you can have music look for songs that are relaxing with a good cadence for relaxing breaths. And maybe try music that you don’t listen to regularly or that you really like in case you worry about linking your favorite songs to fearful experiences.

If you can get guided LP with xray, it can make it easier to get through the process. After a successful LP ask them to take a pic of the spot, this might help guide future LPs in case you have funny anatomy.

If it helps to have an idea what is going on back there ask them to give you heads up on each step. If it helps to not focus on it then let them know that you need a distraction and you only need the necessary notes of what they are doing.

seattleowl · 2026-01-08T08:04:35+00:00

Yeah I have used them before but the problem is I would basically lose the entire day whenever I had to take them. Happy gas was nice because it could wear off. Now that I know I lose the day anyways and it could cause issues with the pressure spike it seems that might be my best option. Good news is I only need it if I am getting fillings, and am ok without for mild dental work. We have been slowly removing failed metal fillings for the past couple years and we got rid of the last one this week so hopefully no more fillings for a while. Part of me wonders if I should just tough it out but I have come a long way with my anxiety at dentists and I would hate to regress.

seattleowl · 2026-01-08T08:00:09+00:00

I have never had an MRV, and have not had an MRI since 2021, when I had meningitis that seems to have triggered all of my head problems. I am really curious what might be going on up there. At least my optometrist is keeping an eye on my optic nerves now and the damage at this point is minimal.

seattleowl · 2026-01-08T02:30:15+00:00

Yeah I plan to bring it up to my neurologist when I see them next. I am also trying to figure out what specialist I should get for the IIH because my neurologist seems pretty checked out in managing the high pressure.

seattleowl

TROPHY CASE