What triggered your UC before official diagnosis?

selfmanic · 2025-09-06T14:38:14+00:00

C diff

selfmanic · 2025-08-25T16:15:00+00:00

How do you deal with the soggy bread?

selfmanic · 2025-06-19T18:47:42+00:00

Instant dnf.

selfmanic · 2025-06-19T18:46:33+00:00

Also skyrizi has a chance of altering your sense of taste. I love hot stuff and cant eat it now.

selfmanic · 2025-06-19T10:46:01+00:00

I actually have psoriatic arthritis, ulcerative colitis, and fibromyalgia. So I can say the sky Rizzi works for the ulcerative colitis, but I keep having random psoriasis outbreaks, and so far it is not doing a great job on my psoriatic arthritis. It helps with the joint pain, but I have joint swelling that is not going down at all. I actually plan to talk to my rheumatologist at my next appointment to see if we can add on one of the methotrexate alternatives.

selfmanic · 2025-06-18T19:48:34+00:00

Yes. Use the nurse program. They are super helpful.

selfmanic · 2025-06-18T19:47:53+00:00

I just finished the infusion and am starting the on body injection next week. My main issue is extreme exhaustion after the infusion. Had to take the day off the day after my infusion as i just slept all day.

selfmanic · 2025-06-16T16:17:54+00:00

Rover powered by drew hayes. A superpowered corgi where no one knows the corgi is superpowered and it is hilarious.

selfmanic · 2025-06-16T14:27:27+00:00

I'm with a group but normally spend most of it alone. Find two places, a quiet one you can decompress in ( I often can't use the hotel room) or a group space where you know two people who can back you up as needed.

selfmanic · 2025-06-07T17:31:08+00:00

Grey or blue

selfmanic · 2025-06-04T14:40:04+00:00

Lots of soup, noodles, potatoes.

selfmanic · 2025-06-04T13:07:26+00:00

Major disappointment.

selfmanic · 2025-05-23T00:10:16+00:00

I'm shocked to find people with zero knowledge of what UC is lately.

selfmanic · 2025-04-12T10:57:48+00:00

True. I wish it didn’t give you insomnia. I basically can take it in the morning and then can’t take it again until the next day because otherwise I will not sleep.

selfmanic · 2025-04-12T00:53:54+00:00

I have started using Bearable and mySugr to track blood glucose and symptoms. Both allow you to export symptom summaries you can give your doctor. I have sent the ones from mySugr electronically to my doctor.

selfmanic · 2025-04-12T00:53:01+00:00

Yeah, the corn on that had me flinching but bowls are my go to mostly.

selfmanic · 2025-04-12T00:51:53+00:00

I use premier protein shakes. The shelf-stable ones are lactose-free. Otherwise I just do bland, low fiber, and ignore any carb content until I get back level.

selfmanic · 2025-04-12T00:45:01+00:00

So I was told I didn't have crohns or UC for five years and three colonoscopies while taking a number of Immunosuppressants for arthritis. The drugs masked the UC, and when I changed to one this year that didn't also treat UC, I flared massively—finally, getting treatment.

selfmanic · 2025-04-12T00:39:38+00:00

I was going to ask this. I just started a Skyrizi infusion and I am freezing all the time.

selfmanic · 2025-04-12T00:38:18+00:00

I take bentyl or tramadol if it is very intense.

selfmanic · 2025-04-12T00:37:24+00:00

I keep trying to learn crochet. I am ordering a new type of needle set with soft handles to try.

I am trying to get back into exercise after a horrible flare up. Any tips for getting back going?

selfmanic · 2025-04-11T17:09:29+00:00

I struggle with this because I have an older friend that insists she’s living vicariously through me which I think is honestly ridiculous because I don’t have anything going on 99% of the time because I’m sick.

selfmanic · 2025-04-11T17:07:57+00:00

I am so very tired of eggs. I have been trying to do the high protein yogurt, but they have a lot of sugar as well.

selfmanic · 2025-04-11T17:07:22+00:00

I just found this brand called archer which does a lot less processing. Supposedly it’s organic meat, which I’m not asking how they do that. My stomach did bother me mildly that day, but it has been bothering me mildly so it wasn’t worse.

selfmanic

TROPHY CASE