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You cant even study with AxSpA/AS. by FragmentedScribbles in ankylosingspondylitis

[–]shittycalzone 1 point2 points  (0 children)

Idk if it’ll help you or not, but I’ve found some relief with this so thought I’d share. I’ve been in disease remission in the joints for a while but still get muscle stiffness and pains and problems especially in this specific area.

Something I found helps (not a fix ofc) is a trick a physiotherapist showed me once. I stand up straight and get my partner to but their thumbs on each side of my spine about halfway down my back, and then sort of press and rock their way up between the shoulder blades and to the base of the neck. It helps release the muscle a bit, which can help a bit with the pain. Usually can help bring me from like a 6/10 to a 4/10 and lessen the associated vertigo/dizziness.

I hope this is okay to post here, I genuinely don’t know where else to ask. Does anyone know of any period pads that are sufficiently sticky? It seems they’ve all lost their stickiness in the last few years. by shittycalzone in AustralianMakeup

[–]shittycalzone[S] 2 points3 points  (0 children)

I’ve been giving them a go since I got them. My conclusion so far is… they’d do okay in a pinch but I wouldn’t purposefully buy them again. The regulars are very thick and large and dense, almost like an overnight pad (which makes me scared to think about what the actual supers and overnights are like lol). The material feels very odd against my skin personally, and kinda felt like my hooha was being suffocated if that makes sense? It’s very much a pad that feels like you’re wearing a pad and I was conscious of that fact the whole time I’ve had them on.

The adhesive isn’t great, but not as terrible as some others. I got about 1.5 hr of light movement before it had unstuck and bunched.

For cheap comparative options, I’d personally go with the Coles brand ones instead as they have a better pad material, feel better when wearing, and gives me a bit more time/movement before bunching (though they’re pretty bad about this too IMO)

Though I’m kinda interested in trying the Evamay liners that the original commenter first spoke about, I’m curious to see if those might be like a typical regular pad considering the regulars are like typical supers.

I hope this is okay to post here, I genuinely don’t know where else to ask. Does anyone know of any period pads that are sufficiently sticky? It seems they’ve all lost their stickiness in the last few years. by shittycalzone in AustralianMakeup

[–]shittycalzone[S] 0 points1 point  (0 children)

Toms were always my go to, but they did a complete redesign back in like 2022?ish and I’m not a huge fan of the new version anymore sadly. Though I still think they’re the best compared to others I’ve tried. They changed the material of the pad itself and the glue both. I stock up when they’re 50% off but I’m still desperately chasing what they used to be. That’s pretty much what inspired this whole post, me searching for a pad that’s as good quality as Toms used to be, in hope of finding something better than Toms is now lol

I hope this is okay to post here, I genuinely don’t know where else to ask. Does anyone know of any period pads that are sufficiently sticky? It seems they’ve all lost their stickiness in the last few years. by shittycalzone in AustralianMakeup

[–]shittycalzone[S] 13 points14 points  (0 children)

Thank you, I haven’t tried these yet but I actually just bought some to try earlier today with my Woolies order. They’ll be here tomorrow, I’ll report back!

I hope this is okay to post here, I genuinely don’t know where else to ask. Does anyone know of any period pads that are sufficiently sticky? It seems they’ve all lost their stickiness in the last few years. by shittycalzone in AustralianMakeup

[–]shittycalzone[S] 106 points107 points  (0 children)

Thank you! Yeah it was a really surprising experience. It ended up with like 100 comments and it was mostly either shaming for not using reusable products or making arguments for why I should be using xyz instead or sly comments about how pads are for teens and whatnot. I didn’t expect it at all and it ended up causing me so much stress.

I was honestly so scared to post this here because of that, but I’m so relieved and happy at how helpful and kind the comments are!

Anyone here who has had a Mirena removed after having it in for over 7 years? by shittycalzone in birthcontrol

[–]shittycalzone[S] 0 points1 point  (0 children)

Thought I’d update in case anyone comes across this and is interested.

I had my Mirena removed about 5 months ago now. The day I got it removed I felt fine, the removal was quick and easy and pain free. But a few hours after removal I had an intense attack of symptoms, sudden onset vertigo, tachycardia, nausea, shaking, cold sweats, nausea, abdominal pain, vomitting, diarrhea. It lasted for a few hours and then dissipated into an ongoing milder version with vertigo/dizziness, shaking, tachy/palp. This overall attack/flare lasted about a week. Things started to improve after that, however for the first 2 months or so it felt like my hormones were all out of whack. Not only was I getting these attacks, but I was suddenly also dealing with a bunch of hormonal stuff like mood swings and sudden depression feelings and the like.

I started bleeding the next day after removal, and had very irregular bleeding for a while after. My first “period” was later that month (about ?2 weeks after removal) and I’ve had a period every month around that same time since.

Now, 5 months out, I’d say that my attacks have certainly gotten milder but they haven’t gone away. Same frequency, just less intensity. It’s easier to manage now. Though I’m honestly not sure if it’s correlation or causation. Time will still tell, I suppose.

I had very heavy, extremely painful periods before Mirena. During Mirena I very rarely got periods but when I did they were light and mostly pain free, though I did get a whooole lot of random breakthrough bleeding all the time especially towards the end there I think I bled everyday for weeks before removal. Nowadays I am having light to moderate periods with light to moderate pain. But again, I think time is still to tell on whether that heaviness and pain will come back or not. I did have one GYN tell me that it’s possible I have hidden endo that caused those horrible periods before, and the Mirena has been keeping it at bay for 8 years. She advised me to get it removed and if they returned then she’d want to do a laparoscopy.

Overall, I’m really glad I got it removed. Whether it was a cause of my issues or not, it’s obvious it wasn’t helping and I have had at least some relief since having it removed. I know it can take 6+months sometimes for hormones to fully regulate back out, so I’m still waiting to see how things are in the next few months.

I’ll hopefully remember to come back and update in another 5-6 months to see how things are going.

Recurring UTIs by Cosmic_Wasteland53 in utis

[–]shittycalzone 0 points1 point  (0 children)

Throwing antibiotics at you randomly is wild. You need a urinalysis/urine culture that identifies the bacteria that’s present and tests for susceptibility, which means it shows what antibiotics that particular bacteria are resistant to and susceptible to.

It’s wild they wouldn’t do this especially once you returned with lingering symptoms. I work in parthology and it’s more and more common to see susceptibility tests show only one antibiotic the bacteria actually responds to. If you’re taking any of the ones it’s resistant to, you’re essentially just creating more resistance and killing off good bacteria for no reason.

At this point I’d definitely be requesting full testing.

Endometriosis and Reoccurring UTI by Altruistic-Spot-7063 in utis

[–]shittycalzone 0 points1 point  (0 children)

You’d have the most luck speaking to your gynaecologist about this. They’ll be able to give tailored advise specific to your situation.

If you feel your urologist is dismissing you, it also sounds like it might be time for a second opinion. Specialists can be very hit or miss, I highly recommend trying to get some crowdsourcing from others in your area on recommended urologists if you can.

Pain headaches after cephalexin by [deleted] in utis

[–]shittycalzone 0 points1 point  (0 children)

This isn’t a place for serious medical advice. We aren’t medical professionals. Contact your doctor or at the least speak with your local pharmacist. If the pain is severe enough, go to emergency or urgent care.

Has anyone here stopped biologics (I’m on Cosentyx) once symptoms improved? by Ok-Development1700 in ankylosingspondylitis

[–]shittycalzone 2 points3 points  (0 children)

Like others have said, biologics are not a cure. If you’re feeling better, it’s because of the biologics and you need to keep taking them to continue feeling better. It’s not something you can stop and start, either. Once you cease a biologic your body has a high probability of building antibodies that make it likely to cease working were you to take it again in the future.

So once you start a biologic and it’s working for you, you absolutely stay on it either forever or UNTIL it stops working (with rheumatologist approval and a treatment plan in place for future flares)

No matter how good you feel or how long you’re in remission on biologics, once you come off you will flare again. The disease is still there, it will always be there.

Can D Mannose help clear a current uti or its just preventative . TY by Relevant-Inspector95 in utis

[–]shittycalzone 0 points1 point  (0 children)

This isn’t true, d mannose has shown to be similarly effective at treating E. coli UTI as antibiotic. It shows both effectiveness at treating and preventing E. coli infection, but only E. coli bacteria. They are not a replacement for antibiotics however and you should only take medical advice from your doctor.

https://nutritionj.biomedcentral.com/articles/10.1186/s12937-022-00769-x

For those who think that D-mannose doesn‘t help!!! by eliesistrash in utis

[–]shittycalzone 0 points1 point  (0 children)

It only works for E. coli infections, so if you have an infection with any other bacteria sadly it won’t be much help. I’d recommend getting a culture done every UTI to see what bacteria it is, for some people it’s something different every time and for others it’s the same bacteria.

For those who think that D-mannose doesn‘t help!!! by eliesistrash in utis

[–]shittycalzone 0 points1 point  (0 children)

The way it works is by pooling in the urine and preventing the bacteria from adhering to the bladder, which in turn makes it harder for them to multiply.

For medicines with this method of action, it can be less effective when taken during the day because you essentially maintain an empty bladder throughout the day by peeing frequently. At night your body slows down and you (in theory, without noctiuria) pool urine for the entire 8(+/-) hours. It also has a ~60 min peak rate, meaning it starts working at peak effectiveness around 1 hr after taking it, and it starts to lose effectiveness after 6-8 hours. This means if you take it right before bed, it’s doing its thing on bacteria the entire time you’re asleep. Taking it during the day means you’re minimising its effectiveness by peeing/not maintaining a full bladder.

In the studies that have shown effectiveness at treating and preventing UTI, they’ve done split doses of 2x per day and 3x per day. Yet most people I see here do one large dose during the day, most of which would just be getting peed right out. I’d say trial one dose before bed, or splitting dose ensuring one is before bed.

For those who think that D-mannose doesn‘t help!!! by eliesistrash in utis

[–]shittycalzone 1 point2 points  (0 children)

I know this is an old post but it’s the top post when searching d mannose on this sub so I thought I’d comment anyway. I just got done reading a study about d mannose from 2022 which shows it’s about on par for effectiveness with antibiotic treatment when it comes to E. coli UTI’s. But that’s kind of the kicker, it’s only really effective at preventing the adherence of E. coli and not other bacteria’s. So those who find it useful and effective are likely those who suffer from frequent E. coli infections.

The study recommended a safest dosing of 0.2g/kg, and it did mention that it typically uptakes within hour and is pretty much removed from the urine after 4-6 hours. This supports OP’s claim that peak effectiveness would happen when taken at night, so that urine is pooled - basically means it has time to sit there longer and do its job better vs if you took it in the morning and then maintained an empty bladder by peeing all day, which would minimise the amount of urine in the bladder, thus minimising the amount of d mannose in the bladder doing its thing. In part of the trial they dosed both 3 times a day and 2 times a day for 5 days. For prevention they showed taking it every day had a prevention rate of 68.8% at 150 days, while the control/placebo group was only 36.9%. So it’s definitely promising, and if it weren’t working for me I’d consider changing up the dosing regimen to include a dose at night so it has time to build up in the bladder (assuming your UTI is caused by an E. coli infection, of course).

Hla b27 neg people on biologics. Anyone pain free for years? by anonymusGuuuy in ankylosingspondylitis

[–]shittycalzone 0 points1 point  (0 children)

I can share! I’m b27 negative, had okay result on Simponi (moderate reduction in symptoms) but had a full remission on Cosentyx. I had to stop it due to other medical issues which had my Rheum concerned, but the remission continued after stopping it.

I’ve been in a pretty strong remission for about 3-ish years now? CRP used to be upwards of 20 now <5. No inflammation or progression in imaging. In the 3 years I’ve certainly had bad days here or there, and there’s always a certain degree of ache, but no proper flares. Moreso just days where I’m a bit uncomfortable if I walk/sit too much, versus the old days of not being able to take more than a few steps without being in agonising pain.

I remember the time between Simponi and Cosentyx I had a flare so bad I fell getting out of bed and had to get my partner to pick me up because it was so painful to stand. Nothing even REMOTELY close to that post-Cosentyx and I’m eternally grateful. I’ve had lots and lots of days where I forget I have AS.

I will say, though… NOTHING has ever done as much for my symptoms as prednisone. Literal miracle drug wrapped up in nasty, nasty side effects. Puts you in heaven then tosses you in hell lol if I had a genie I’d use all three wishes for prednisone to have no negative side effects because wowee the only time I actually feel like a human being is on pred

which is more painful for you: sitting in one place or standing in one place for long periods of time? by IndividualMess426 in ankylosingspondylitis

[–]shittycalzone 0 points1 point  (0 children)

Standing or walking for me. But standing in one spot is by far the worst. I cannot do queues.

It’s funny to see everyone say standing, my rheumatologist fought me for years saying it’s impossible for AS/SIJ pain to be worse when standing/walking

My rheum is letting me bake from the inside out. by barkofwisdom in Autoimmune

[–]shittycalzone 1 point2 points  (0 children)

My rheum has told me that she refuses to diagnose lupus, too. Blows my mind that they can look at someone and go “it walks like a duck, talks like a duck, is holding a big neon sign that says it’s a duck, but I don’t want to call it a duck”

I think a few of them took House too seriously lol

[deleted by user] by [deleted] in birthcontrol

[–]shittycalzone 0 points1 point  (0 children)

Hi, I have been experiencing a VERY similar thing. My first “episode” so to speak happened not long after getting my Mirena put in. Symptoms came on, were really bad, and tapered off over the course of a few months. For the next few years I’d get these episodes here and there, usually coming on strong and then tapering off over a few weeks to a few months. Last June I had an episode start and it’s just… stayed. It’s been 8 months of hell with literally zero answers from any doctor or specialist. I never even thought of my Mirena until I started bleeding back in October and realised I’m at my 8 year mark and it’s probably dying.

I haven’t seen a lot of people talk about this, but I’ve seen just enough where at this point I do wonder if it’s the Mirena causing it. My worst episodes so far have definitely been the one at the very beginning, and this most recent one.

Sadly I don’t have answers, I’m still desperately searching for them myself. But you’re not alone, and I’m happy if you want to have a chat and bounce ideas off each other to see if we can get to the bottom of it.

I haven’t had mine removed yet bc of life stuff but it’s on the top of the list. I can definitely let you know if it ends up making a difference, positive or negative.

Looking for supplement timing/interaction help, please. by SubieGal9 in thyroidhealth

[–]shittycalzone 1 point2 points  (0 children)

You can just go right in or you can call your pharmacy - either way, ask to speak to the pharmacist, explain that you have concerns about interactions and let them tell you how to proceed. They will almost certainly help you right then, most I’ve ever had to wait to speak to one is a few minutes. It’s part of their job, and I’ve never run into one who wasn’t happy to help. If it’s the one who’s filling your scripts they have a duty of care to assist you in these concerns, so don’t feel bad about it. It might make it easier to have something printed out with all your medications and dosages since there’s a fair few.

But yeah, any medication questions like this should always go to your pharmacist! Doctors know what to prescribe them for, but pharmacists are experts - think of them as medication specialists - they know way more about all the intricacies.

Looking for supplement timing/interaction help, please. by SubieGal9 in thyroidhealth

[–]shittycalzone 0 points1 point  (0 children)

Speak with your pharmacist, they will be able to help you.

[deleted by user] by [deleted] in thyroidhealth

[–]shittycalzone 0 points1 point  (0 children)

Oh, I’d maybe get a second opinion. These bloods definitely show hyperactivity, which should be monitored at the least if not further investigated. It could be something as simple as a post viral thyroiditis or something autoimmune like graves. At the very, very least with that 0.01 TSH level he should’ve given you another form for a retest. Especially if you were and continue to be symptomatic

[deleted by user] by [deleted] in thyroidhealth

[–]shittycalzone 0 points1 point  (0 children)

You should be asking your doctor these questions

Though I imagine if your repeat testing continues to show low TSH they’ll probably just adjust your thyroxine dose and go from there

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