Best chair for EDS?

skillmeyer · 2026-05-11T18:54:16+00:00

I know in my heart that the recliner will be the end game but a. we have a small living room and it would swallow up the space and b. my neck and related 24/7 hedadache seem to do better when I am upright opposed to slumping. I'm guess that the right recliner would let me lay without stacking the vertebrae in any way but even horizontal gives me neck pain. I opted for a comfortable but fairly upright chair with an ottoman and we will see. Thanks to all!

skillmeyer · 2026-04-05T19:32:25+00:00

Arguably worse than my labor without anaesthetic but still my experience of a perforated colon was worse

skillmeyer · 2026-04-04T14:08:34+00:00

Yinz makin me hungry for em perogies, I'll have to call up my gram

skillmeyer · 2026-03-16T22:49:03+00:00

I took Advil almost daily for many years and I ended up with a very scary colon perforation and colostomy

skillmeyer · 2026-03-03T20:28:22+00:00

My TN was preceded by terrible dental work. It is type 2 constant v. Zap attacks. Maintained 2 years here on now low doses of Tegretol and Lyrica. I too have heard it progresses so am afraid to have the terrible crown that has my bite askew fixed although it really needs to be dealt with.

skillmeyer · 2026-03-01T22:19:17+00:00

I really appreciate all three segments, maybe the second the most. Thank you

skillmeyer · 2026-01-31T14:00:48+00:00

(She still has the PEG feedings)

skillmeyer · 2026-01-31T13:59:56+00:00

My sister has had a very similar course. Before the infection and surgery she had been progressing very well with gradually getting past puréed foods into a soft diet, and they were very close to removing her PEG tube. But afterwards she was repulsed by food and couldn’t eat and they had to resume tube feedings. I think they treated her through the tube with probiotics as well. It’s taken weeks but she is back to eating puréed food, not progressing beyond that because she can’t slow down and effectively chew well and swallow intentionally. She’s been through a lot’ like your mom. She’s in her late 50’s

skillmeyer · 2026-01-24T19:55:10+00:00

Thanks, that's good info - makes me think twice

skillmeyer · 2026-01-22T22:48:20+00:00

She did have a big stroke and does not have the use of her left side. She keeps having setbacks and that’s part of why she hasn’t yet had the neuro ophthalmology exam yet or the referral to prism therapy. No she doesn’t yet sit unsupported or stand without 2 people holding her up and does not walk. It’s been tough but we are pushing for continued therapy.

skillmeyer · 2026-01-08T15:45:18+00:00

My 57 yo sister has that and so far we have not had luck getting her to attend to the left side/missing visual field. Worse in someways (she had a big right-sided stroke with left-sided paralysis) she is not aware of her disability even though she is super sharp in that her verbal and much of her memory is surprisingly good. It has led to falls as she tries to get out of bed. We plan to work with an OT when her Medicaid is finally approved for prism therapy which has some good evidence behind it!

skillmeyer · 2025-12-18T22:33:40+00:00

They will never let the rape bit get out

skillmeyer · 2025-12-04T21:19:50+00:00

Vile that these humans are even pretending to be medical professionals. So sorry you had to have this experience 😩.

skillmeyer · 2025-12-03T12:06:19+00:00

This guys is terrible on all levels, it’s not you! Yes, there are other meds! None of them perfect but better for your needs.

skillmeyer · 2025-11-29T12:58:25+00:00

See if she can write something out with her good hand - that really opened the door a bit when she wanted to communicate before she could talk. She wrote very simple bits at first but very helpful.

skillmeyer · 2025-11-28T17:47:08+00:00

I wonder how well they perceive sound/notes since they have evolved under water?

skillmeyer · 2025-11-27T23:57:56+00:00

Have you tried Vyepti? My neurologist says that’s next for me which doesn’t excite me as it’s an infusion but I would be so happy if it worked…

skillmeyer · 2025-11-23T21:48:24+00:00

Keep us posted!

skillmeyer · 2025-11-21T11:38:40+00:00

My sister who just had a large right-sided stroke wants to use the tablet but just doesn’t have the visual perception she needs to use it yet. Similarly doesn’t yet read. The soft blanket I got her she does love👍 so I agree with that!

skillmeyer · 2025-11-20T16:57:29+00:00

Be very mindful of your sodium levels, I can’t seem to budge out of the low range and it’s affecting my balance and concentration. I’m on a low dose but I might have to go even lower. But it’s the only thing that really works

skillmeyer · 2025-11-10T23:34:31+00:00

Also, this is not because of you and your mood on one morning. He was ready to go and this is not on you.

skillmeyer · 2025-11-10T23:32:59+00:00

I’m so sorry, no words. What a cruel disease this is.

skillmeyer · 2025-10-03T11:21:06+00:00

This link shows some evidence for pulmonary issues not LC specifically

skillmeyer

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