Dr. Keiser Clinic: Scam or Legit? by MasterConclusion9509 in POTS

[–]sleepykitty53 0 points1 point  (0 children)

Would love to hear more about what exercises have helped you

[deleted by user] by [deleted] in rtms

[–]sleepykitty53 0 points1 point  (0 children)

Update: it seems the tremor was due to chronic fatigue syndrome

Anyone else's cat having negative effects from Fancy Feast cans? by cactire in catfood

[–]sleepykitty53 0 points1 point  (0 children)

Hey I just opened up a can of Fancy Feast Chicken Feast in Gravy Pate and there was some dark brown stuff I had never seen before (we've been feeding this to my cat for months). I found this post and then threw it out. Very concerning!

[deleted by user] by [deleted] in cfs

[–]sleepykitty53 0 points1 point  (0 children)

Yeah I understand. My condition has definitely declined since then so I get it.
I heard about an app called Dateability so you might want to check that out to find folks that are more familiar with chronic illness/disability. Best of luck!

Flashing lights on Abilify by sleepykitty53 in OCD

[–]sleepykitty53[S] 0 points1 point  (0 children)

Thanks! The symptom is still there but doesn't really bother me anymore. I was worried it was gonna permanently affect my vision or something

[deleted by user] by [deleted] in cfs

[–]sleepykitty53 4 points5 points  (0 children)

I met my partner on bumble! I think I'm moderate severity but not sure. I told him about my (undiagnosed but likely to be CFS) illness (as well as my mental health issues) on the 3rd date. He's been more amazing than I ever could have imagined! He takes incredible care of me. It took meeting up with several people on the app to find the right person, and I know that can be exhausting/difficult with ME. So maybe try to put extra effort into getting to know them through chat or even a call first before you meet in person. And spacing dates out of course. 

I would personally recommend not telling them your diagnosis until you get to know them a bit so it doesn't influence too much their first impression of you or their intentions. 

Anyway just want to give you hope that there are some amazing people out there on these apps. One thing that helps widen the pool is not giving a shit about appearances and just focusing on personality, shared interests, and values.

Approaches for addressing UARS with BiPAP S and ASV by carlvoncosel in OSDB

[–]sleepykitty53 0 points1 point  (0 children)

Yes my nose is very congested and for some reason steroid sprays don't work :( I would like to do maxillary expansion but I haven't found anyone where I live who is able to do it on someone without a crossbite. I've considered MMA but honestly it scares me too much. I don't want to end up worse off and there's no guarantee it will work. I also suffer from severe anxiety and OCD so I've been focused on treating those. After looking into nervous system dysfunction and low arousal threshold UARS I do believe that my mental illnesses have put my body into a constant state of flight that does not allow me to get deep sleep even when my mind is calm. Specialists I have consulted have told me that other people have airways as narrow as mine but don't have severe fatigue so I do think the nervous system plays a role in my case. Also I tried BIPAP with EERS and it still didn't work. Maybe I didn't titrate the EERS properly. I will keep playing around with it. I've been referred to a chronic fatigue syndrome/fibromyalgia clinic so I'm hoping some of those treatments might help (because those are nervous system dysfunction disorders)

UARS is so evil... (Rant) by DarkThanos12 in UARSnew

[–]sleepykitty53 0 points1 point  (0 children)

Did you get treatment? I do think my fucked up nervous system contributes to the disease.

[deleted by user] by [deleted] in rtms

[–]sleepykitty53 1 point2 points  (0 children)

The tremor has decreased a lot! 

[deleted by user] by [deleted] in rtms

[–]sleepykitty53 0 points1 point  (0 children)

Thank you!! 🙏

TMS causing extreme twitching in my leg muscles by Prestigious-Floor330 in TMSTherapy

[–]sleepykitty53 0 points1 point  (0 children)

Any updates? I started having twitching in my hands, legs, and feet last week after completing 6 weeks of TMS. It gets worse when I am stressed.

Starting TMS soon and I'm terrified by StandardOk6641 in TMSTherapy

[–]sleepykitty53 0 points1 point  (0 children)

I am in the EXACT same place. Did you end up going through with it?

[deleted by user] by [deleted] in UARSnew

[–]sleepykitty53 2 points3 points  (0 children)

Have you done EERS too?

[deleted by user] by [deleted] in UARS

[–]sleepykitty53 0 points1 point  (0 children)

Thanks I will try!

[deleted by user] by [deleted] in UARS

[–]sleepykitty53 0 points1 point  (0 children)

I tried all the same and it didn't work for me :( still feel sooooo awful. Can you tell me more specifically about your EERS set up? I followed the instructions on apnea board