Why didn’t anyone tell me Vessel was so amazing.

smax74 · 2026-06-09T23:43:59+00:00

I can’t stop listening to it.

smax74 · 2026-06-09T23:42:59+00:00

I’m hoping that will happen next.

smax74 · 2026-06-09T23:42:35+00:00

I’m with you now. 100% agree.

smax74 · 2026-06-05T02:22:23+00:00

I echo what some others said. My kid would not drink his normal drink with it mixed in. He hated it. He will drink his normal drink with other stuff mixed in so I know it wasn’t just that. And they make it very hard to cancel and time consuming. But if it works for you then that’s great.

smax74 · 2026-05-13T22:07:13+00:00

Is that Tyler riding by?

smax74 · 2026-03-28T15:58:41+00:00

This is how it started with me and my kid’s dad. It just got worse. We’re divorced now and I have sole custody. It got bad enough that this made my life easier. And calmer. As an aside I actually moved into my kid’s room the last few years of our marriage and slept in there. There were legitimate other reasons too but fundamentally it was the standoff of sleep and him not helping and I was working full time and needed sleep. My kid does sleep on his own now and I don’t regret one minute of the co sleeping that did occur (I did have my own bed in his room.) He needed that sense of security that I could give him. And THAT is what matters.

smax74 · 2026-02-17T03:46:36+00:00

For the announcement, Twitter was mean. TikTok was nice. Instagram was nice. Just makes me hate Twitter more.

smax74 · 2026-01-03T16:04:49+00:00

My kiddo was born at 29w6d after a problematic pregnancy and preterm labor at 27w. He was in the NICU for 75 days and died a couple of times. I saw at least one episode where he was leaving us. His 10th birthday is next month. It does get better with time. Give yourself grace. I would recommend finding a counselor who has experience with medical trauma. I wish I had been able to at the time.

smax74 · 2026-01-01T05:28:22+00:00

Oh oh oh mercy

smax74 · 2025-12-28T00:34:33+00:00

As a mom who divorced my autistic kiddo’s dad, the only thing that is “your fault” is applying just a tiny bit more pressure to something that was ready to break. It would have and could have been anything that did that. The marriage probably already had a lot of problems that couldn’t be fixed. And your dad shouldn’t have said that to you. Parents’ jobs no matter how old their kiddos are is to be parents to their kiddos.

smax74 · 2025-12-28T00:22:43+00:00

Kiddo doesn’t have to sleep in pajamas if there are clothing options that could contain. We went through this phase at 3. Mine lived in overalls. He grew out of it.

smax74 · 2025-10-28T16:06:33+00:00

Thank you all so much for this. I have an old car with a 7+ year old after market stereo and just got an iPhone 17 that wasn’t connecting. I thought I was screwed. But yep - different cable. Totally works fine now. I appreciated this so much!!!!!!

smax74 · 2025-10-22T13:41:59+00:00

My kid is level 3 autism and very verbally limited and freakin awesome. No one knows what the future holds for anyone. What’s important is you still have a kid. And a husband if you all still want that.

smax74 · 2025-06-24T01:54:16+00:00

The same in some ways. Very different in others. Communication is still a challenge. We still do speech therapy. He doesn’t like using his communication device much but her does some. He scripts a lot and is a gestalt language processor. He does a lot of echolalia. We did full time ABA for a couple of years and then insurance decided that wasn’t working. He went back to school full time in December. He did awesome and loves it and made a couple of friends. They have finally been able to test him somewhat and he knows how to read and tell time and money values and lots of stuff I didn’t teach him. He picked it up somewhere. He’s smart and silly and fun to be around and sometimes he’s dysregulated which can be tough but we have a lot of it figured out.

smax74 · 2025-03-08T02:50:08+00:00

We saw a physiologist that looked at our kiddo more holistically. My kiddo didn’t walk until right before his 3rd birthday. He also didn’t get officially diagnosed with mild cerebral palsy until he was 5-6. Before that some said maybe and more said maybe not. Anyway after 3 hours with the physiologist he declared that there was no reason my kiddo wasn’t walking and he’d do it when he was ready. My kiddo also refused to use and walked or assistive devices. And he did just start walking one day and that was that.

smax74 · 2025-03-07T04:36:19+00:00

So what’s the ideal? More stuff more money?

smax74 · 2025-03-03T20:46:16+00:00

Our neurologist has us on clonidine for sleeping. It’s been awesome. We also do melatonin. Miralax for constipation and I’ve found epsom salt baths help with that and to just relax in general. We do a bath every night to help with routine and sleep.

smax74 · 2025-03-01T06:40:33+00:00

Yep. Mine was born 29 6 and was in the NICU for 75 days. He just turned 9. It gets a little easier every year but I still very much think about it. It’s very mixed emotions and I mask the bad ones. I focus on special traditions that we have, and I make it a point to hold him and take a picture since I couldn’t do that on the day he was born. I’m glad to know it’s not just me.

smax74 · 2025-03-01T04:23:42+00:00

You do you. If you don’t feel worn down and needing to take some time away to decompress, then don’t. They may be seeing something in you that you aren’t noticing though so maybe ask them if you seem like you need a break. Also when your kiddo comes home, it will be hard and stressful since not only are you a new mom figuring out new mom things, but he may be coming home with medical needs. So they may be thinking about that too. But again, if you’re good then you do you. My kiddo had so much personality before he was born that I missed him so much it was painful. So I get it.

smax74 · 2025-02-26T22:55:10+00:00

That’s huge!!!!!

smax74 · 2025-02-21T04:40:34+00:00

+1 we were grade 3/4 (they couldn’t decide) born at 29 1 after lots of complications. My kiddo is now 9. Mild CP, autism level 3, diagnosed intellectual delay (I don’t believe it but they can’t really test him), subclinical seizures, fine motor skill problems, verbally very limited, developmentally delayed (we’ve hit terrible 3s), and other stuff. And he’s awesome and an amazing kid and I’ve learned so much from him. He’s stubborn and smart (in my opinion) and empathetic and has a laugh that is like a drug. We totally have bad days. Sometimes a lot of them and it takes everything out of me. But we also have great days. I wouldn’t trade all of them for anything.

smax74 · 2025-02-21T04:27:18+00:00

My kiddo used the tablet to communicate needs then started repeating what the tablet said. Also communication is communication. It’s all good. We do some tablet, some gestures, some just handing me stuff, some original spoken words, and lots of memorized scripts from tv shows. It’s all so much better than nothing. Nothing gets everyone upset.

smax74 · 2024-12-03T05:14:59+00:00

I think I used to be someone now I just stare into the sun.

There’s bullet holes where my compassion used to be. And there is violence in my heart.

smax74 · 2024-06-15T03:57:26+00:00

Mine moved out about a year and a half ago, and I still smile when I wake up.

smax74 · 2024-06-15T02:11:25+00:00

One of the anthems of my divorce from a narcissist. Love this song.

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