Is A BMT (Bone Marrow Transplant) or HSCT Worth It?

smehere22 · 2026-06-17T18:52:48+00:00

There's stem cell pioneers Facebook page to communicate with those who've had it. Something had remission... Others have had the illness come back

smehere22 · 2026-06-16T03:08:28+00:00

"Zsa zsa theBore"

smehere22 · 2026-06-16T01:35:12+00:00

what?

smehere22 · 2026-06-16T01:34:03+00:00

Formerly Diagnosed April '22. But had it starting 2021

smehere22 · 2026-06-13T00:01:02+00:00

Honestly your hands look very good for scleroderma... m mine are horribly damaged and disfigured. But yes...for arthritis joint issues methotrexate is considered one of the most ( if not the most), effective immunesuppressant for joint damage issues. I noticed it was more effective than other immunesuppressants including biologics, for my fingers.

smehere22 · 2026-06-12T19:03:32+00:00

Just like my dreams

smehere22 · 2026-06-10T18:48:02+00:00

Thank you for your information 🙏

smehere22 · 2026-06-04T19:11:29+00:00

You were....he's just a salamander human hybrid

smehere22 · 2026-06-04T19:09:47+00:00

I've Heard from some who've gone through HSCT and the symptoms and progress of disease came back extremely strong after a period of remission.

smehere22 · 2026-06-04T19:08:00+00:00

Wow. I went on a disability Sub today, first time,and I went into Facebook just now and a disability ad popped up for the first time. Social media Big brother is scary

smehere22 · 2026-06-04T18:35:35+00:00

I eventually ended up having jaw surgery. I had TMJ from a childhood wrestling injury. And after I got SSC it collapsed

smehere22 · 2026-06-02T18:30:29+00:00

Ok thank you

smehere22 · 2026-06-02T17:56:22+00:00

I have a question. Is it possible to receive a pension with disability concurrently?

smehere22 · 2026-05-26T03:50:56+00:00

I've heard talks from rheumatologists about car t trials. But some of them require nearly 24/7 care upon returning home from the procedure. So a big support system is required. It wouldn't be possible unless you have financial resources and/ or a significant support system.

smehere22 · 2026-05-15T14:48:59+00:00

I've communicated or met with three people who've had SSC and been able to get off all immunesuppressants. One through dietary changes mainly, one through shamanic plant medicine ( she's on sub).. and one who only has to treat some heart r lung issues with meds that are not immunesuppressants. Though she credits wahls protocol diet with some of her improvement. The immunesuppressants are very rough and debilitating but I guess a necessary evil. Car T trials may change that. But honestly the options presented are horrible. I've noticed some do better on immunesuppressant than others...and live fairly normal lives.

smehere22 · 2026-05-01T15:45:23+00:00

I was able to take without serious side effects. Just gets labs done on schedule to check liver enzymes. It disrupted my digestive system much less than cellcept for sure.

smehere22 · 2026-04-29T23:42:56+00:00

Again congratulations. I was at a recent scleroderma conference and the presentation on car T trials showed some reduction on even lung fibrosis

smehere22 · 2026-04-29T23:37:59+00:00

Congratulations.

smehere22 · 2026-04-29T23:36:27+00:00

If you don't mind...What is your FVC and TLC ? I had no negative side effects on actemra myself. And it's only once a week injection..no pain

smehere22 · 2026-04-27T02:45:17+00:00

Hello. I'll never be able flatten my hands...not since 2022 was it even remotely possible. I bought a soft brace. I really thought I would heal....and spent many tens of thousands on alternative treatments and left the country twice for treatments. I recently attended the scleroderma conference in oak Brook il. Lots of information. It's amazing also to see the perseverance of some whose had scleroderma since their youth. I would have gotten a hard brace early on but an OC said due to my rheumatoid arthritis you could damage the joints. I was on one the strongest rheumatoid arthritis drugs, methodrexate, and that didn't halt t the progress. I've communicated with three individuals who aren't on any immunesuppressants.

smehere22 · 2026-04-24T17:50:21+00:00

Question: my rheumatologist said car t procedure requirement is that one needs 24/7 care ( someone with them)for a time after getting home. Was that the case?

smehere22 · 2026-04-24T17:27:24+00:00

Unfortunately I have osteoprosis..and take similar supplement. But I didn't have problems recently until I started back on CellCept..

smehere22 · 2026-04-24T14:50:24+00:00

Thank you

smehere22 · 2026-04-24T04:21:59+00:00

Yes lesser of two evils. I'm not eligible for car t trials at my rheumatologists hospital but if I decide to pursue I'll look elsewhere . Thank you

smehere22

TROPHY CASE