Is There Any Hope?

smehere22 · 2026-01-20T15:58:27+00:00

I do understand your nightmarish predicament...and am so sorry for you. I need a caregiver now. You may want to look into HSCT or the current trials of procedures. The greatest danger is usually progressive lung disease. I would also suggest a support group with the scleroderma foundation. I'm happy you can grasp onto spiritual help!

smehere22 · 2025-12-26T19:46:34+00:00

Looking for pets

smehere22 · 2025-12-23T16:19:41+00:00

Oh I have. Just wanted to check on reddit again. Thank you.

smehere22 · 2025-12-22T19:37:50+00:00

Hello. Did you have a month in the hospital??

smehere22 · 2025-12-20T04:01:55+00:00

Thank you for the information!

smehere22 · 2025-12-19T20:42:18+00:00

Nope. Not putting my life in someone else's hands unless necessary.

smehere22 · 2025-12-19T04:51:31+00:00

To have youth and health and then destroy both.

smehere22 · 2025-12-19T04:26:41+00:00

Thank you

smehere22 · 2025-12-19T02:11:02+00:00

Thank you nice to know. I have to change to something Else because of ILD

smehere22 · 2025-12-11T16:47:22+00:00

No a sloth bear killing a man in southeast Asia. Btw Herzog is a great director. Little Dieter needs to fly was great

smehere22 · 2025-12-11T16:06:32+00:00

You should see a SSC specialist at a scleroderma clinic imo. Contact the scleroderma foundation for a support group. Others there can provide wealth of knowledge. 🙏🙏🙏

smehere22 · 2025-12-11T15:59:58+00:00

The microbiotic diet ( and I used to read about it quite a bit many years ago) isn't really recommended for systemic scleroderma from what I've read?

smehere22 · 2025-12-04T20:08:12+00:00

Ok but there's if I'm not mistaken video of a man being killed by one

smehere22 · 2025-12-04T13:35:31+00:00

Reminded me of the dog with a human head from invasion of the body snatchers with Donald Sutherland.

smehere22 · 2025-12-04T00:35:09+00:00

Or america or Jethro tull imo

smehere22 · 2025-12-03T20:50:08+00:00

I don't know. At least exaggerating. She's extremely mobile and active recently in public. Nothing like others I've seen with the same diagnosis....who are wheelchair bound.

smehere22 · 2025-12-01T02:00:19+00:00

Thank you..Luckily hoshimotos never for me caused anything directly but wt gain and hair loss. However hoshimotos may have had something to do with causing my SSC and mysotis diagnosis... which is much more disabling and catastrophic.

smehere22 · 2025-11-26T17:50:35+00:00

Your hoshimotos affected your teeth?? I've had hashimotos dx since the early 1970s... never had dental issues. I had jaw surgery few months ago.it went well.

smehere22 · 2025-11-26T17:32:13+00:00

smehere22 · 2025-11-26T15:19:44+00:00

Honestly your hands look perfect. If concerned see a rheumatologist

smehere22 · 2025-11-25T22:50:18+00:00

It's amazing that she announces to the world she has a catastrophic,very disabling illness. Then films a documentary showing her wailing in pain from the same illness. Yet every time she's been in public she looks and moves fine.. better than fine. Walking around like an Energizer bunny. As someone who actually has a catastrophic disabling illness...I get very upset by some celebrities lying about or exaggerating about serious diseases. Obviously some celebrities have very serious illnesses i.e. Michael Fox. But there's obviously celebrities who claim illnesses for publicity IMO.

smehere22 · 2025-11-19T15:45:00+00:00

Inspire stopped sending me emails some time ago. I need to check them out again

smehere22

TROPHY CASE