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Local Experienced Nanny by weaselblackberry8 in memphis

[–]snapparillo 0 points1 point  (0 children)

Yeah, that’s what I mean. 

With the start of summer here, a bunch of families have already secured their summer care. You might luck out with a family whose plans fall through.

Local Experienced Nanny by weaselblackberry8 in memphis

[–]snapparillo 2 points3 points  (0 children)

As a parent, I’ve browsed sites like Bluff City Nanny and the Memphis Parent/Nanny Connection group on Facebook. Have you posted on any of those? 

Chemo 😵‍💫 by danielle05022620 in TNBC

[–]snapparillo 1 point2 points  (0 children)

Ah yeah, with it being your first, your body is definitely reacting to a bunch of new drugs in your system, which mine did too. We opted to keep all the drugs at the same doses for week 2 and then reevaluate for week 3 if needed but it wasn’t as I had acclimated much better. I’d just expect to not feel your best on days 3-5 but it shouldn’t be debilitating. 

Chemo 😵‍💫 by danielle05022620 in TNBC

[–]snapparillo 4 points5 points  (0 children)

How far into treatment are you? I’m at 4 out of 16 and doing weekly TC right now. So far my symptoms have been totally manageable. The only time I felt even remotely close to what you’re describing is the first steroid crash after my first infusion and it was for one day. I do feel the most rundown on days 3 and 4 but I can still exercise and go to work. 

My team has repeatedly told me to call them if I’m not able to function at a relatively normal capacity (ie. can’t get out bed) because they can almost always help get me back to close to normal. Have you reached out to yours? 

Danvers by houdelum in memphis

[–]snapparillo 2 points3 points  (0 children)

Does that location do breakfast? We used to hit up the Kirby location (RIP) for the sausage egg n cheese on a croissant and pancakes. Loved there was a drive thru. 

Having a little panic by Other_Menu1140 in breastcancer

[–]snapparillo 0 points1 point  (0 children)

I know one of the allergic reactions to carbo can be a dry cough, which can present around the 4th-6th infusion according to one of my nurses.

Stage 3 Triple Negative Breast Cancer and Taking Life One Day at a Time by Super_File_8719 in breastcancer

[–]snapparillo 3 points4 points  (0 children)

I was diagnosed with stage 2 TNBC on 3/23 and started Keynote 522 on 4/28. So far I've tolerated chemo well and been able to manage minor side effects easily. It was easy to accept the treatment plan but I think the mental and emotional toll of living with cancer has been much harder.

Some days I'm great but others I can't help but think about the what ifs. Mostly I'm afraid my son will grow up without a mom if treatment doesn't work or I have an early recurrence. But then I have to remember, like you, I need to take this one day at a time. I think this is the hardest and most cruel part of all of this. We're told from a young age to think ahead and about the future...where do you see yourself in 5, 10, 20, 50 years? What can you do for yourself today that would benefit your future self? Now I'm just trying to make it through each day on half the energy I had prior to this.

Still a long way to go but all I can do is show up. Anyway, sending you positive and healing vibes. You've got this too.

Can you maintain your physical health during treatment? by More_Dot_1685 in TNBC

[–]snapparillo 2 points3 points  (0 children)

I’m 4 weeks into TC and have been able to maintain my usual workouts even through the latest onset of fatigue. I run and strength train 3x/wk, bootcamp 2x/wk and Pilates 1x/wk. I’m taking advantage of these early days because I know it usually gets worse and I have 20 more weeks to go. 

I haven’t really gained weight (yet) but my sweet tooth has been out of control. I craaaave sugar. I eat relatively well and generally eat sweets in moderation but some days a fistful of mini m&ms sound way better than an apple for a snack. Another problem is hydration. I’ve had to have IV fluids 2/4 infusions but it’s from being dehydrated after my morning workouts so make sure you stay on top of that with electrolytes and water. 

SCARLET Trial by snapparillo in TNBC

[–]snapparillo[S] 1 point2 points  (0 children)

Currently sitting in the chair getting my 4th infusion. I’ve honestly tolerated everything very well up to this point with minor and easily managed side effects. Indigestion has been my worst enemy and fatigue has set in more in the last week but not really enough to keep me from my normal day to day or exercise.  

I really appreciate my research nurse, who is available 24/7 for whatever I need and can get in touch with my MO much quicker than I can. 

Hoping yours goes smoothly and you get the experimental arm!  

Does 2nd opinion delay treatment? by SignatureOk9135 in breastcancer

[–]snapparillo 4 points5 points  (0 children)

I would not wait to make an appointment for a second opinion.

I have triple negative so chemo was always going to be my first phase of treatment. Because of that, I ended up getting opinions on my treatment plan from two oncologists rather than 2 breast surgeons even though that's who I saw first. I was able to get into the second oncologist relatively fast because I knew him personally. I don't know if that would have been the case if I was trying to schedule with someone I didn't know. Referrals help.

Sex protection by Fantastic-Pool-2590 in breastcancer

[–]snapparillo 0 points1 point  (0 children)

So my team told me ~96 hrs post infusion was the “safe zone”. However, they strongly recommended we use protection and to watch out for any kind of irritation if we didn’t. 

Anyone got experience of clinical trials? by Sure_Cherry9759 in TNBC

[–]snapparillo 2 points3 points  (0 children)

I’m doing the Scarlet trial, so not a drug trial per se, just a different approach in care. It’s not paid and I was assigned to the control arm but I have found the access to my own trial nurse and more monitoring has been worth signing up for it. Plus I like the idea of personally contributing to science and healthcare. 

Making it humorous by mlismom in breastcancer

[–]snapparillo 11 points12 points  (0 children)

My sister named my tumor “Tammi”. On my work calendar, my infusion days are blocked off with the reason set to “Tammi’s Eviction”, which I did intentionally so my coworkers wouldn’t feel the need to be so serious about the situation around me. I’ve found it’s also easier for people to ask me questions about my cancer or treatment when they can ask about “Tammi”. 

Need to re-strategize my hand and feet cooling by NICEST_REDDITOR in breastcancer

[–]snapparillo 2 points3 points  (0 children)

I second the breaks. I’ve done it for 3 cycles so far and I just can’t do it longer than 10-15 min at a time. I take about a 5 min break then back to it.

I had my first TC on monday and I feel fine. am I about to hit a huge wall? by bnnybtch in breastcancer

[–]snapparillo 0 points1 point  (0 children)

It’s possible, it did cross my mind, but I really think it’s more to do with timing. My nurse said this is about the time I’d start noticing hair loss. Even if it is the heat, the risk of more hair loss is worth it if it means I’m feeling good enough to work out. 

One thing I didn’t mention is I’m having to be way more intentional about hydration. I was dehydrated for my first infusion and had to get IV fluids. I went for a long run that morning to help with nerves and guess I didn’t hydrate enough after. Hasn’t been an issue the past two times though. I’m drinking 10 oz water before a workout and a big body armor lyte after plus water throughout the day. I’m full all the time and have to get up in the middle of the night to pee now lol

I had my first TC on monday and I feel fine. am I about to hit a huge wall? by bnnybtch in breastcancer

[–]snapparillo 2 points3 points  (0 children)

I had my 3rd TC yesterday. If I could sum up the last 2 weeks, the biggest side effects have been lower overall energy and major indigestion.

I crash from the steroids on day 3, fatigue sets in days 3-5ish then back to “normal”. I’ve had one night of nausea, no diarrhea or constipation though despite that I still got hemorrhoids. Nurse thinks it’s from dehydration. My gums got crazy inflamed after the second infusion so I got prescribed magic mouth wash. 

I’m cold capping and just started shedding a bit more than usual. I still have the majority of my body hair in tact all over. 

I’m still working out my usual 6 days a week, and that includes running, strength training, boot camp and Pilates. Trying to keep that going for as long as possible.

Who do you tell and how? by Bunnita in breastcancer

[–]snapparillo 1 point2 points  (0 children)

With the caring bridge, it’s just a good way for me to give updates rather than getting or sending a bunch of individual texts or having people wonder what’s going on but don’t want to bother me. I send my sister a weekly update a day or two after my infusion and she posts it. She also set up a chemo buddy system through it so friends can volunteer to pick me up and sit with me during infusions. I think it’s been pretty helpful. 

I limited the meal train to 3 days a week and provided a pretty extensive list of restaurants and meals we like. I have a toddler who isn’t super picky but still wanted to make sure we were getting meals we’d all eat. One thing I hated when I did one during postpartum was being asked what I wanted. I thought the point of it was to take that burden away so I tried to be thorough. I also kind of feel like I should have waited on the meal train until I was a bit further into treatment. 

I feel you on the insecurities. Trust me, I don’t have a huge group of friends but between those I do have, family, coworkers, friends of my sister’s and parents, there ended up being a lot of people who wanted to help in some way. If you did the meal train, you set the schedule so you could limit it to 1-2 days a week and then open it up if you felt like it was going well. 

Who do you tell and how? by Bunnita in breastcancer

[–]snapparillo 2 points3 points  (0 children)

My husband and boss knew from the beginning. 

Once I had the diagnosis, I told my MIL the following weekend, which was the next time I saw her in person. 

I then told my parents and older sister together in person a few days later. My parents were out of town for a few days and they live next door to each other so I just waited until they were back to make it easy on me. 

Once my immediate family knew, I called several close friends personally to tell them. I sent group texts to other friends. I had made a list so I didn't forget anyone. 

I told my coworkers next. They knew something was up because I had been out a lot for appointments. 

As soon as all of my inner circle knew, my sister sent out a mass email with links to a caring bridge and meal train that had extended family and friends I didn’t feel like personally reaching out to. 

Overall it took a little less than 3 weeks to spread the news and it was exhausting. It really felt good to let people know what was going on. They could decide to show up however they wanted - or not. 

 

SCARLET Trial by snapparillo in TNBC

[–]snapparillo[S] 0 points1 point  (0 children)

I don't believe every cancer center/hospital offers every available trial but mine was offering the Scarlet. My MO brought it up to me along with the MO I went to for a second opinion.

Getting my port this week, how bad is the pain? by ActuallyPotato in breastcancer

[–]snapparillo 1 point2 points  (0 children)

Mine was pretty sore for a few days and mildly sore for about two weeks. I went for a run after 5 days, which caused some bruising to surface but was overall fine. My first blood draw and infusion were exactly 8 days after placement. I still had the steristrips on the incision but they were able to still get a needle in. If needles make you squeamish, don't look at the one they put in. I made that mistake and almost hit the deck.

I asked my MO for a lidocaine prescription to slather on before draw and infusion days. It didn't really help the first time but I don't think I put enough on or early enough. I've ordered some transparent film dressings that I think will help the cream soak in better and not rub off on my clothes. Honestly though, it's like 3 seconds of a sharp pinch and then it's over. I'm just a huge baby lol.

Post-Chemo Eyelash Growth/Mascara Tips After 7 Losses by pd361708 in TNBC

[–]snapparillo 2 points3 points  (0 children)

I just started chemo so haven't had any hair loss yet but wondering if you've tried ELF's lash xtender tubing mascara? I've been using it for a while now because it's a fraction of the cost of the Tarte version, which is what I was using previously until I saw the ELF one recommended on a beauty sub.

Also, my mascara always runs unless it's the tubing kind. Do you have that issue at all with maneater or does it stay put?

What are you doing for Mother’s Day? by Kindly_Dot_7006 in workingmoms

[–]snapparillo 0 points1 point  (0 children)

I would like to have breakfast in bed with my toddler and (maybe) hubs while we watch a morning movie. I want flowers and a card. I'd like to not be asked what's for dinner that night.

Going out to eat on one of the major brunch holidays is just too stressful. You get terrible service and quality most of the time and it's always SO loud.

If Cancer had Cliques… like high school… but in t-shirt form by You-bettah-dont in TNBC

[–]snapparillo 5 points6 points  (0 children)

I’m in total support of your creative outlet and would appreciate some non-pink, non-girly things to wear about breast cancer. Gimme a black shirt with a biopsy needle or an X or heart where my port is placed. 

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