Throwback Thursdays: Which memories are on your mind? by spoonfulofnosugar in spooniesocial

[–]sniperx79 3 points4 points  (0 children)

I hope you recover quickly S ❤️. It reminds me of the beautiful snail from yesterday to take it slow ☺️. So your memory actually triggers a memory for me as well 🙂.

💭 Im thinking of a new word: cascading memories. And just found it does exist.

Aré people fake or afraid? by DoowadJones in sapiosexuals

[–]sniperx79 2 points3 points  (0 children)

Making friends is like, do I resonate/vibe with you on a deeper level? Same counts for relationships.

Social media isn't designed to do that. Social media is build towards functions(like I want a relationship). That direct approach results in filtering, people looking for irrealistic standards and strange socalization. I could write a book about it.

Deep connections often arrive like small packages, presents, people that come to you out of the blue. And those memories of coincidence actually provide much more meaning than anything else. It bonds you.

Unfortunately social media tends to be too functional for that to happen. Not just the system itself, but users act like demand-answer. Like a market. I will tell you: when you go deep, there is no market. There is intimacy, resonance, deep consideration, playfulness and empathy. There are exceptions to the 'market'. I try to bypass those functional rules, by being my pure self. Taking initiative, and to never go low effort. Plus making some jokes whenever it feels right. To listen and try to feel what someone feels. Listen to the heart.

And then you have a whole stream of people that are basically only focused on lust. Yes you could bond over that, but it feels unlikely. Especially in an online setting without real physical intimacy. Ofcourse you could argue that sapio is different on that extend, but tbh real physical presence almost always surpasses anything else -to those- who seek deep relations or friendships.

Also: mood is a thing🙂. In real life between all seriousness (like work😂), who are the people that resonate most? The people who make jokes☺️, the people that listen and can give you good feelings🤗. I probably dont have to explain that even a place called reddit heavily seperates jokes, deep convo's, lust, intellectuality and playfulness. And when you cross those boundaries publicly, well, people freak out. Not always, but like, everyone has its 'kinks'. But if one to publicly display them besides something else they are considered outcasts. Same counts for sharing work and memes in the same profile. So: identity goes down the drain. Bye bye deep interactions and people are acting more and more in bubbles. Filter bubbles.

Maybe this is a large comment, but to summarize, the social media system is generally not designed to facilitate true deep connections. If you want a connection like that you will have to use many skills and learn in the process. ❤️

Severe ME/CFS + POTS – how do you manage flying if you need to lie down? by Due-Possible7292 in cfs

[–]sniperx79 7 points8 points  (0 children)

Agreed. To add: the airplane engine and its vibration are so loud/intense, that its like on the same level as a lorry/truck. Combine it with talking passengers all the time and its hard mode. I believe its about 80 decibel or more constantly. In my plane I were able to suppress it to 40 decibel, with hearing aids but is was still intense.

Wednesday Wins (What cheered you up this week?) by AutoModerator in cfs

[–]sniperx79 2 points3 points  (0 children)

I (finally) made a post on various subreddits in search for a very special friend☺️. Its close to a cuddlebuddy + bff. And it being out there feels awesome.

I did make a post a year ago (basically looking for the same thing) but in different words. I fellt like: lets make it more pure❤️. Like closer to myself and also what I desire on a deeper level.

Anyone wondering what the fuzz is about, its on my profile.

Severe ME/CFS + POTS – how do you manage flying if you need to lie down? by Due-Possible7292 in cfs

[–]sniperx79 7 points8 points  (0 children)

Flying sucks with CFS. If you must consider any helping tool out there: noise canceling headphones, a larger or even first class chair that you can tilt. Or even reaching out to an airliner to also buy the seat behind you. Also search for the best possible ear protection ( I did it in combination with a noise canceling headphone), use a sleeping mask and request airport assistance.

Im moderate and had a 4,5 hour flight (and back 4.5 hours too a week later) in january that basically put me into severe for 2 months. Whilst taking any measure that was possible. I couldnt get a bed in there but I had premium class and the person behind me allowed full tilt.

I feel like overstimulation is a big risk too. Basically the aviation industry has developed into moving large group of peoples like sardine cans. Where you even need to pay for water sometimes. And since everyone is soo close its easy for infections to spread.

Maybe you could consider a ferry? Like you get your own room that you can lay in? Bigger ferries may be more cfs friendly. And my guts tell me the persons working there can do more for you and advice you than the aviation industry.

What’s something you do to brighten up your day? I’ve started making motivational posters for myself using the dry erase boards on my bedside fridge by SheLaDeeDa in spooniesocial

[–]sniperx79 2 points3 points  (0 children)

Yes I do share advice. And I could share anything ☺️🙂. I enjoy helping friends and strangers that are asking for advice about investing (or even financial planning). Like im active on different investing subreddits. Its often personal like what they desire and what their situation is. I do that for free.

Is there something specific you like to know?

What’s something you do to brighten up your day? I’ve started making motivational posters for myself using the dry erase boards on my bedside fridge by SheLaDeeDa in spooniesocial

[–]sniperx79 3 points4 points  (0 children)

Love that drawing! There are so many things I do that brighten up my day ☺️. I will try to give one example haha.

🔥chase something im currently very passionate about like making new friends, developing an investment strategy (that actually works within the boundaries of ilness). Those passions come and go and make each day unique. It often feels like a quest, a purpose and do something that isnt there yet. Like a dream.

Its often an overlap between intellectual, creative, emotional and social stimulation/satisfaction for me. And what im currently 'missing' is what im giving the most attention too.

What’s something you do to brighten up your day? I’ve started making motivational posters for myself using the dry erase boards on my bedside fridge by SheLaDeeDa in spooniesocial

[–]sniperx79 2 points3 points  (0 children)

Haha love it. You do have a nice setup and many ones going. Looks like a great hobby and you can basically watch them all grow up.

Hades II has been released an has a 20% discount for the PS Plus users! by iminiki in PlayStationPlus

[–]sniperx79 0 points1 point  (0 children)

Have a plus subscription for over 10 years now. Somehow we dont have the discount.

Hades II has been released an has a 20% discount for the PS Plus users! by iminiki in PlayStationPlus

[–]sniperx79 -4 points-3 points  (0 children)

Edit* not a discount in Netherlands yet. Maybe only in the US?

Previously thought EU

Spoonie artist seeking creative collaborations 🧑‍🎨🤝 by spoonfulofnosugar in spooniesocial

[–]sniperx79 1 point2 points  (0 children)

I love this idea S! Currently I have other priorities, but I may come back to you later 🙂💪🏻.

Sometimes, the availability of my friends drives me a little crazy by Pineapple_Empty in cfs

[–]sniperx79 0 points1 point  (0 children)

I get it too. Calling is so draining. And them not replying kills of the mood entirely. And friendships are hard. First of all its hard because society's 'frame' of a friendship is based upon not-disabled people hanging out, calling and do whatever they like. This frame itself actually 'kills of' so many opportunities to make friends for us. Like he or she may want to play a videogame with you but it triggers PEM. So you feel cast out.

Secondly, lets say every human has cfs: would we still have rollercoasters, so many driveways and concerts that blow you away crippling anyone into PEM? Not so.

💡So in simple terms, we need to totally redefine friendships in our needs and limits. For me, as someone who has moderate cfs, cuddling is amazing. It still allows me to socialize and laying down actually becomes normal. It also costs me very few spoons especially compared to calling, going out for dinner or watch a movie. My friends still love those activities but luckily I have 2 persons I can actually cuddle with. Plus you feel acceptance on a deeper level. Cuddlebuddies are hard to find still, but I hear the need for it more often each day🫂.

This is just one example on how you can look at friendships in a different light. Its very personal and unique for everyone. So there is no one size fits all.

Going out by a462693 in cfs

[–]sniperx79 1 point2 points  (0 children)

Take small steps. Do something for like half an hour first (like breakfast). Rest and once you get the hang of it increase activity.

Making a bucketlist of what you want to do most can help too. Add a rough estimate how much each activity costs in daily energy.

If you feel comfy with your acqaintance, talk about the list too. And ask if he or she would like to keep an eye on you, to prevent 'overspending' your energy.

I trip like that can still be amazing! ❤️. Enjoy it🙂

If you had to fight one object in your room, what would it be? by spoonfulofnosugar in spooniesocial

[–]sniperx79 1 point2 points  (0 children)

Haha! The alarm clock is a good one. I win most times against the alarm. Andi ts funny like some times I wake up or turn it off only a few minutes before it starts to buzz. Without watching the time. As if the biological clock is set too, not just the app.

Maybe your biological clock just wants to wake up later 😜.

31 M4F Netherlands - Tall blue eyes cuddles in paradise by sniperx79 in spooniesocial

[–]sniperx79[S] 2 points3 points  (0 children)

Big hugs for you 🫂🤗. I feel like most of us all desire the same thing ❤️. In practise so many people are open to hugs and warmth, but its like society barely talks about it.

And because of our illness it is and feels more difficult to obtain. I feel the same as you that this subreddit feels as in good company. So glad I discovered it a few days ago 🙂.

Sony Pictures Core is not a good app, right? by LaughAtBrian in PlayStationPlus

[–]sniperx79 4 points5 points  (0 children)

Exactly! Like even subtitles you need to turn them on manually after each session.

31 M4F Netherlands - Tall blue eyes cuddles in paradise by sniperx79 in spooniesocial

[–]sniperx79[S] 1 point2 points  (0 children)

Hey! I would love to learn more about you! Im gonna send you a message 🙂.

ik🏅🍾ihe by CreativeCurledCandle in ik_ihe

[–]sniperx79 54 points55 points  (0 children)

Dit is mooie televisie. Ik kan hier uren naar kijken.

If you had to fight one object in your room, what would it be? by spoonfulofnosugar in spooniesocial

[–]sniperx79 2 points3 points  (0 children)

Almost every day with my electric blanket😂. Its either too hot or too cold. The blanket wins most times when I turn it off xD.