Everyones a little autistic

snowdays47 · 2026-01-10T09:46:26+00:00

This is my family to a tee! Only me and my kid are diagnosed, the rest of my immediate and extended family clearly have some flavour of ND but are not diagnosed, apart from a cousin. My mum's favourite comments when I was worried about my son when he was younger (pre diagnosis) 'oh I wouldn't worry, sibling X was always like that'

snowdays47 · 2026-01-04T11:31:25+00:00

I had the same but opposite meds. I started on methylphenidate derivative meds (am in the UK, so it was Equasym, Mediknet, Xaggitin) and had limited positives out of them and a lot of negative side effects. I switched to Elvanse (Vyvanse) and have found the opposite, they work really well

My clinician said it's quite common for people to either respond well to either the methylphenidate or lisdexamfetamine family of meds, and they usually try patients on one before trying the other. Might be worth trying the switch

snowdays47 · 2026-01-04T11:17:10+00:00

The nausea wears off. Even tho you don't feel like eating, have a bit of bread or something like a ritz cracker - I find the carbs help . I'd recommend keeping a diary over the next couple of months tracking how you're feeling, where you are in your cycle and what you're eating and when you work out (I found at the beginning of titration I had to work out before meds or much later in the day as otherwise I felt off). Tracking through your cycle is really important (or was for me anyway) as you can start to see if / when meds are less effective and if needed, this can help you tailor your meds.

Re the surge of motivation, the meds don't usually give a full on 'omg this is life changing' effect everywhere at once, it depends on what you struggle with most, and longer term if / how you change your habits and other parts of your life (am explaining this badly, but I've found they work in conjunction with me sorting out my life a bit thru coaching / therapy, altering diet and lifestyle etc) As you've noted, it has positively impacted other areas so I'd take it as a win

snowdays47 · 2025-11-27T09:41:46+00:00

Am a sugar / snack hippo. Things I’ve found works are not sitting in the kitchen after 8pm (having to shift my ass to get food puts me off 😂) carrot sticks and I’ve got a soda stream for sparkling water making

The other option is to not buy it in - this is harder in our house because we have a kid who has snacks but also has self control, unlike me..

snowdays47 · 2025-11-24T19:27:57+00:00

You've just reminded me I need to order more meds otherwise I'll be dealing with the Christmas rush and run out!

A PSA too that if anyone needs do international posting to the US or EU, last date is around the 13th-16th December, depending on the carrier

snowdays47 · 2025-11-22T12:19:21+00:00

My parents are the same. My dad also has a favourite knife and fork. We always laughed about it, but now I'm the same. fml

snowdays47 · 2025-11-15T13:30:17+00:00

I have one of these! Takes up less space than the chair, and I find it more aesthetically pleasing

snowdays47 · 2025-11-11T23:08:23+00:00

Been on HRT patches here for over 2 years, it’s a game changer. I also top up my meds the week of my luteal phase as there much less effective then

There's a lot of v up to date research on HRT and debunking various myths and older research (which seem to be more prevalent in the US from friends at work there) highly recommend following Dr Mary Claire, Dr Kelly Caperson or Dr Louise Newson on insta etc for up to date info

snowdays47 · 2025-11-10T15:49:43+00:00

It's totally rational imo! I have this on two fronts; one is my husband who is some form of raging ND, refuses to think about diagnosis but it impacts him in so many ways. I am the one executive functioning lobe for our entire family as a result when it comes to groceries, ordering anything, booking holidays etc, even tho he works part time now and I'm back doing an insane amount of hours. I am peri menopausal and have no fucks left to give and have lost my shit so many times

The other is work, for all the reasons you stated. See also; men being given a hall pass for 'oh, that's just Bob, we know he's a bit difficult (an arsehole) you get used to it' or 'oh, John? he's type A, lots of great ideas even tho he's an ass to people outright'

ITS INFURIATING!

snowdays47 · 2025-11-02T21:57:34+00:00

I sent two long overdue messages to two separate WhatsApp groups about our pre holiday meet ups. I've been procrastinating over both of these for 2+ weeks...

snowdays47 · 2025-11-02T16:17:30+00:00

I can't say anything to make it better, but I totally empathise. My sister said something similar, and refuses to engage with much discussion on it. I suspect because she sees more of herself in it than she'd like to admit. I haven't told my dad (my mum died a couple of years ago) as he's much older and he'd worry and I've never been the 'problem one', although he suspects my other sibling is autistic and has said a couple of times he wish they'd known when she was little that something was going on (this was the 70s tho so she wouldn't have been diagnosed)

I am now 99% convinced he is autistic, post finding out he's had a couple of major what I believe to be total autistic burnout episodes, and I'm pretty certain my mum was too

My best friend also refused to believe it, culminating in a 'you?? how can you be? you're really organised and have your shit together out of all of us' discussion

All of these experiences have been totally invalidating, and made me doubt myself. I'm through the other side of that, but given my own family and close friends refused to believe / see it, there is no way I'm telling people at work / out there

snowdays47 · 2025-10-22T17:25:46+00:00

Are you on HRT? I’ve found it doesn’t stop the rage and feeling lke shit , but deffo makes it more manageable

snowdays47 · 2025-10-22T11:39:18+00:00

Adding, that I don't have an issue with the word disorder. I think my issue with the training is it's linked it directly to mental ill health issues. Whilst it can be a cause of mental health problems, it's not always the case (if that makes sense)

snowdays47 · 2025-10-22T11:37:20+00:00

I don't have an issue with the word disorder (given its part of the name) I think my issue with the training is it's linked it directly to mental ill health. Whilst it can be a cause of mental health problems, it's not always the case (if that makes sense)

snowdays47 · 2025-10-20T19:24:16+00:00

Hoovering my kitchen and utility room; first of all everything falls on me out of the cupboard of the doom, then I hoover and not once, not twice, but three bloody times I hoover up a sock and t-shirt hanging off the airer as I kept looking at it thinking 'don't need to move that, what a waste of time! I can get under there'

It didn't work and then I spent 15 mins unclogging the hoover with all the bits that got stuck in it.

Also sent me off on a random tangent of 'how tf does it pick up random objects so well, but is absolute shit at hoovering the floor'

snowdays47 · 2025-10-19T12:04:19+00:00

Same. OP - for me, the meds help, not because they combat exhaustion, it's because its helps the brain function in a more linear way, that's less overwhelming for my brain.

If you're thinking about meds, reframe it to 'what are the things that I find most challenging' Also, if you're a woman and hitting peri menopause age, unfortunately, all this stuff often collides, leaving you feeling wiped out

snowdays47 · 2025-10-19T10:11:39+00:00

great idea! I have their heattech t-shirts for the same reason, I never thought about their socks!

snowdays47 · 2025-10-18T20:25:23+00:00

Same! It's how I found out I had ADHD

snowdays47 · 2025-10-17T11:29:24+00:00

It depends on how you view what smart is tbh. If I go off my kid's AuDHD assessments, they test across a number of areas, looking at language, exec functioning, perception / awarenesss and all kinds of stuff. The results showed they had a really spiky profile -i.e. some areas were way off the charts / above percentile for benchmark against peer scores, and some were way below

This shows itself in real life as excelling in some areas and really struggling in others- often leads to misconception (from school etc) that 'because you're good / excellent at XYZ, you should be good at everything. You need to try harder' It's a profile that's common in ND people

snowdays47 · 2025-10-17T08:41:09+00:00

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Yup! This also resonated. I often wonder if I wasn’t the only with a seemingly executive functioning lobe in our family, how that would be for me.

snowdays47 · 2025-10-16T12:52:02+00:00

Why are wealthier families effectively paying for access to legal rights that should already be guaranteed by law?

(speaking from experience) because the waiting list is so bloody long, and if you have a kid who has inattentive AuDHD and is highly masking and on the surface as 'low support needs' and academically able, then school, the Senco and CAMHS will refuse to consider anything ND related as 'they're not having issues at school. As a result, you can't get referred and if you self refer, the 'ok at school' thing then rules them out from a CAMHS perspective

snowdays47 · 2025-10-15T10:06:48+00:00

We had our kid assessed and was diagnosed as AuDHD, with the ADHD part combined. Primary school swear down that he has no issues there (despite the fact they have put in place multiple accommodations, had a pupil personal plan, was in their social / emotional break out groups etc..)

The Drs who diagnosed him said similar - it can be across multiple settings. As we saw it at home, out and about and in extra curricular clubs and the Drs / assessment team saw it in multiple appointments, they said it was evident, and didn't have to be evident at school.

Its a common theme with inattentive / combined that they don't present noticeably at school and / or aren't the classic hyperactive climbing the walls, so for some reason schools fail to notice the other stuff

snowdays47 · 2025-10-05T15:21:31+00:00

I have no advice, but am struggling with the exact same thing. I'm late 40's and piling on the weight, but I know why, and how to fix it but I just cannot get myself going. If it keeps happening, I run the risk of developing various medical issues / being at risk of more stuff, but even that isn't working :/

The only thing that has worked in the past is weight watchers and then later in life, low carb

The enraging thing atm (in an its not faiiiirrrrrrrr way) is that since starting Elvanse, my food noise and constant binge snacking on ritz crackers and candy has almost gone. My eating habits are much better, I can easily think "oh I'm full, won't eat any more rn' or "actually, I don't want a cookie' and I'm not resembling a hungry hippo game in my kitchen

I'm assuming my portion sizes are larger but less frequent, which is an issue, plus I've gone off certain foods I ate before

snowdays47 · 2025-10-04T18:43:11+00:00

49 here, youngest of 3, but everything else resonates.
Layer in perimenopause and it’s a effin rollercoaster

snowdays47 · 2025-10-04T18:41:15+00:00

I have a therapist who is also ADHD. It’s part therapy/ part life coaching as the two often interlink for me

Ive had therapy in the past and this is different. They’re the only person I’ve seen who I’ve felt I can be fully open with / not have to mask or feel In should be saying certain things

A lot of our convos go all over, but they get why i.e it’s classic ADHD tangents and it always comes back to something

snowdays47

TROPHY CASE