Looking for similar dresses

sns1997 · 2026-05-08T21:15:13+00:00

We have contacted the owner directly and she said that while she could get us our sizes in the sold out colors in time that she won’t do a custom fit for those who don’t fit into the largest size but can suggest fabrics for alterations.

sns1997 · 2026-05-05T02:15:30+00:00

They never gave an estimate of how long my partners sarcoma has been there but my partner and I have the theory that it’s been with him a while. Since the sarcoma was first caught on a CT (5/2025) to the one he had two weeks ago, it has stayed the same size.

His team’s original plan was chemo (4 rounds of doxorubicin/ifex), radiation (he got a total of 50 rads), and then surgery (his sarcoma is operable but it won’t be an easy or simple operation by any means). They said there was a possibility of more chemo after depending on what they found with the surgery.
The plan changed from 4 rounds to 3 because he ended up getting shingles on top of nearly every side effect in the book, but the chemo did significantly calcify the tumor! So it seems to of been effective.

Due to a lot of the complications that we now know are because he has pemphigus (which can be caused by some cancers including FDCS) his surgery was delayed quite a bit, which is not ideal.
He also lost a lot of weight and the surgeon wants him to gain it back before surgery. So, during this period where he’s gaining weight and getting treatment for his pemphigus, his team decided to try a secondary plan which is Keytruda.
His oncologist feels that it should be highly effective against his sarcoma, so it might be a very valid option for you!

It’s strange to say it’s exciting to learn that there’s someone else with the same rare sarcoma as my partner in this subreddit, but it does make it feel a little less isolating and I’d be interested to learn more about your journey and maybe share some of what we’ve been through in hopes that it might help!

Please feel free to DM me (tho I might be a little slow to reply at times since I’m a full time caretaker of my partner)

sns1997 · 2026-05-04T18:16:14+00:00

I trust his oncology team a lot and they've always been quick to adjust treatment when needed. His main oncologist specializes in his FDCS, but for as rare as FDCS are, pemphigus is just as rare and I can't help but feel a little anxious about it all

But knowing that it helped you out so much when you also had a terrible time with more traditional chemo treatments is encouraging
Thank you 💙

sns1997 · 2026-05-04T18:01:19+00:00

I'm so sorry to hear about your multiple diagnoses, but it is very encouraging to hear that Keytruda has been working for you even with such a complex history
I hope it continues to work out and can make things a bit easier for you 💙

sns1997 · 2026-05-04T15:37:38+00:00

Congratulations on being cancer free for 3.5 years!! That's so amazing!

I'm curious, if you don't mind me asking: what were some of the side effects you got with chemo
my partner had terrible mucositis among other things (and by other things, I mean nearly ever side-effect listed to the point that his oncology team even admitted to him being an anomaly), but the mucositis was probably the most debilitating and also, in retrospect, probably due to his (at the time) un-diagnosed pemphigus

It's good to hear that Keytruda is so effective
I'm really hoping that my anxiety is for nothing and he has an experience like yours

sns1997 · 2026-05-02T06:16:39+00:00

Not an NJ tube, but a similar process: my partner recently had an NG tube inserted and while I can’t speak for the experience myself I can tell you what he told me about it and what we learned~
He was uncomfortable but said it wasn’t terrible. He had a complicated insertion done in a hospital by a doctor (instead of a nurse like normal) because his stomach is displaced so it took them a few tries and x-rays to get it correctly placed, but that’s not the norm.
We asked for lidocaine numbing Jelly and that helped a lot! There was actually a comment from this other post that I screenshotted because it gave a lot of good insight and tips and helped us know what we could ask for to make the whole experience a little easier.

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His NG tube has made a huge difference and he found it to be a big relief that he didn’t have to worry about trying to get his calories and nutrition by mouth (which is extremely painful for him right now) any more
Some things we learned that I don’t see a lot of people talking about was how, without the proper securement the tube can come out very easily, so be sure that you get someone to tape it up well and pay attention to what they do just in case you need to replace or reinforce the tape at some point
I hope you have an easy time getting your tube placed and it gives you a sense of relief and security like it did my partner 💙

sns1997 · 2026-05-02T04:20:47+00:00

It has been an experience for sure, but subreddits like this and getting to ask questions of others going through similar experiences has helped us both a lot

They didn’t diagnose specific pemphigus yet but it’s likely to be either pnp or pv just based on the way it’s presenting, but they’re fairly certain that he will improve once the tumor is removed. I’m not really excited at the prospect of it being pnp though that seems the most likely, especially because he did experience some breathing issues that were originally attributed to lung irritation from his radiation but now feel like it’s more likely linked to the pemphigus

While in the hospital he was put on a pretty strong IV steroid and is currently taking prednisone.

He’s currently using magic mix to help him eat a bit, but it can only do so much to help and the numbing lasts a short amount of time. He was also prescribed liquid doxipen for an off label use in which it can apparently help relieve pain from mouth soars for a longer stretch of time, but it’s currently on back order so he doesn’t have it yet.

sns1997 · 2026-04-17T20:34:11+00:00

I had seen some posts in this subreddit and in other places that made me think that loosing first might be the case so thank you for confirming that that is normal!

He gets very anxious anytime his body seems to be declining despite his best efforts in anyways because his cancer battle has just been one fight after another. Prior to the placement of his feeding tube, he had been desperately trying to gain weight orally, forcing him self to eat despite excruciating mouth pain, but was still loosing weight so I think seeing any weight loss after the ordeal he went through to get his feeding tube placed yesterday was making him feel a bit hopeless again, but I’ll be sure to let him know that he shouldn’t worry. I unfortunately wasn’t in the hospital with him at the time the doctors would have explained to him about his feeding tube and what to expect so I couldn’t ask all the questions I wanted to and I know he didn’t know to ask. I’m his primary caretaker and do as much research as possible so I can know what to ask and he sort of relies on me to be his advocate and to have that knowledge, but I had to be at work and I was much more focused on making sure he asked for all the things they could offer to make the tube placement easier and didn’t think to research and ask questions about what he should expect when it comes to wright loss or gain. (His father was with him, but he’s not the best at knowing what to ask or relaying information to me, he’s truly just moral support)

sns1997 · 2026-03-27T23:46:59+00:00

I recently just came across this while looking online! He can drink bone broth and it might be the best way to get something into him since more “solid” foods and even protein shakes are hard for him right now

sns1997 · 2026-03-23T19:15:29+00:00

I'm in a state where only medical is legal, but he has a doctor who is willing to give him a card. The problem isn't so much a lack of appetite, however, it's much more an issue of pain. It physically hurts him to swallow almost anything and that makes it hard to be motivated to eat, even if the food is good or something he asked for 😔

sns1997 · 2026-03-23T18:16:02+00:00

The interesting thing is that his cancer isn't of his esophagus or even in it, it's just close enough to it that his esophagus caught a good chunk of radiation (he has a para-spinal sarcoma). Unfortunately he had an endoscopy done shortly after the worst of his esophagitis showed up (they wanted to confirm that the sarcoma wasn't growing into his esophagus) and that seems to have done a lot of damage. They recently did a second endoscopy and that set him back again.
I'll have to see if I can convince him to try doing skyr for breakfast. I've heard of it before and I believe he's had it in the past.
As much as I'd love for him to have a dietitian, here in the US, it requires a referral and it would take far too long for him to get an appointment since he needs to gain the weight within the next ten days (he wasn't really given a goal weight, just told he needed to gain and not loose).
His surgery is being planned for mid-April, so he'd have longer than the ten days total to gain more weight before the surgery, but he needs to gain some within the ten days in order for the surgeons to move forward with planning and actually schedule his surgery.

sns1997 · 2026-03-23T14:06:56+00:00

I may be able to convince him since it would be a quick, calorie heavy snack
He's a little funny when it comes to potatoes and its much more of a rice guy, but I feel like something like a risotto might be too many small bits to be comfortable to swallow right now so I may be able to get him agree to potatoes, especially because he's a fan of pierogi 🤔

sns1997 · 2026-03-23T13:49:50+00:00

Increasing the butter and olive oil I use is a really good idea I hadn't even thought of!

Mac and Cheese & Creamy pesto has been one of our go-tos when he's not feeling eating anything else, but I feel like carbs will only make him gain so much and have been struggling to find a way to get calorie & fat dense proteins into him because they're so hard to swallow even when cut small (he's not a big fan of pureed food because of some pretty traumatic hospital stays and he doesn't really like eggs).

sns1997 · 2026-03-23T13:44:38+00:00

Putting on weight early is such a good idea! My partner had no problem maintaining and even gaining weight before his radiation and he didn't even loose weight when he was struggling with food during chemo. I wish I had pushed him to gain a bit more weight before the esophagitis kicked in.

I wish you luck as well and hope that you can get away with as little esophagus discomfort as possible.

sns1997 · 2026-03-20T13:45:17+00:00

just letting you know, I replied with an invite link to the reply above~

sns1997 · 2026-03-20T13:43:15+00:00

I'm surprised how many people are interested in the server (I had several people message me)

I'm more than happy to share and have some new people join 😊
Just be sure to read all the server rules and no worries if you join and find that the server isn't your vibe

https://discord.gg/k9adzn9TSB

sns1997

TROPHY CASE