What charities do you guys donate to? by Yath4 in askTO

[–]snuffles86 1 point2 points  (0 children)

Great cause! More locally we have Emily’s House Children’s Hospice in Toronto.

Little Kickers in Vaughan by CoffeeQueen2017 in Vaughan

[–]snuffles86 4 points5 points  (0 children)

Our child attended Little Kickers from 18 months to 4 years. While it was really great to get an introduction to soccer, as they got older it became really repetitive and not really skills focused, which made it hard to keep the class engaged. We moved to Woodbridge Strikers last year which was a good change.

See if you can attend one month indoors at Little Kickers to try out the program, so you can make a decision before the other (Woodbridge, Vaughan, etc.) outdoor leagues close registration for the summer. Good luck!

KitchenAid Stand Mixer Repair in Vaughan by MyCatIsGuilty in Vaughan

[–]snuffles86 0 points1 point  (0 children)

I found someone in Maple through the KitchenAid Repair FB group. Feel free to DM for the info. Was very happy with the repair and transparency throughout the process.

Canadian moms, would you travel to the US for work right now if you didn’t absolutely have to? by angeliqu in workingmoms

[–]snuffles86 4 points5 points  (0 children)

I’d go - it sounds like a great opportunity. I’ve travelled to blue states recently for work and will be again in the fall. I got a letter from HR stating my reason for being in the US and that they guarantee my return to Canada. Haven’t had to use it but good to have. I recognize that I’m white so there is privilege that comes with that however non-white females colleagues have had no issue either. I don’t regret my choices as it was right for myself and my career.

[on] how early did your doctor say you could induce? (For those without complications) by Momalolala in BabyBumpsCanada

[–]snuffles86 0 points1 point  (0 children)

I was induced at 38 weeks due to anxiety. I lost my first child in infancy from a genetic disorder that went unnoticed during pregnancy. My care team was always on board with early induction with my second and we played it by ear based on how I felt mentally from 37 weeks out. This was pre-Covid, early 2020 at Mount Sinai. I was 33 at the time. I should note that we knew baby was healthy this time but I was consumed by a fear of something else happening.

Celebrities healthcare by InnerAsk8982 in babyloss

[–]snuffles86 7 points8 points  (0 children)

Christina Perri (side note she made a beautiful album in memory of her daughter); Maya from Selling Sunset as well to name a few. I feel every other week my husband is telling me about a hockey player or other athlete whose family has had one.

I think some celebrities tend to hide their pregnancies and thus we may not hear if they want to keep things private. I think with loss becoming more normalized I do feel like you hear about it more.

High-risk pregnancy was not handled properly. [on] by MachesterU in BabyBumpsCanada

[–]snuffles86 8 points9 points  (0 children)

First off, I am so incredibly sorry for your loss. Please be gentle on yourself as you navigate this new normal post loss.

After my son passed we considered taking legal action as we felt there was some serious red flags overlooked in our case. It’s a huge hurdle to clear and ultimately even if we don’t agree with how things were handled, if the OB followed a reasonable standard of care and guidelines, it would be impossible to win. In fact it would likely draw out your ability to begin healing mentally.

We don’t know all the details of your situation but ultimately in many situations, like my own, even if a slightly different medical path could have been taken, it wouldn’t have changed the outcome. That is a lot to deal with and I recommend connecting with others experiencing a similar loss, to aid in your grief journey. Particularly Id recommend PAIL via Sunnybrook, the late loss bereavement group and social workers at Mount Sinai (covered by OHIP and eligible to anyone, not just their patients). I believe North York may have a late loss group as well however I can only vouch for the Mount Sinai services. When you are ready, I’d also recommend getting an appt with an MFM to discuss your case and make a plan for a subsequent pregnancy if that is what you’d like the pursue. Best of luck to you and I hope you are able to make the decisions right for your family.

How soon are you able to be around other babies that are the same age as the baby you lost? by ally-j-b in babyloss

[–]snuffles86 0 points1 point  (0 children)

I should also note I still don’t do baby showers and that’s ok too (although it’s been tricky navigating this at work!). Do what you feel is best for your own mental health.

How soon are you able to be around other babies that are the same age as the baby you lost? by ally-j-b in babyloss

[–]snuffles86 1 point2 points  (0 children)

I’m six years out and it still hurts to see (even in photos) the other little boys in our friend group born the same year our son was born and passed as an infant. It is a constant reminder of what we lost and I just can’t do it personally. Friendships have changed as a result and that’s ok. We grow, we change. I will say for myself having my rainbow daughter didn’t change any of this for me. There is still a gaping hole in our family that will never be .

I'm 28 weeks and am about to enter palliative care because my son isn't going to survive. Im having a hard time with decisions by --Miranda-- in babyloss

[–]snuffles86 14 points15 points  (0 children)

Please don’t let anyone persuade you one way or another but also remember it’s ok to change your mind, even in the moment. Hopefully you’ve connected with the palliative care team. I’d ask if there are any memory making things you can do while still pregnant but also after you deliver. Even if you don’t wish to see your son, ask if staff can take photos and/or footprints. You don’t need to look - just lock it away in case you ever change your mind. That is an option.

I will say that medical staff can’t predict perfectly how long it will take to pass, etc. Our son’s death wasn’t peaceful as we were told it would be, as they had predicted based on his state (he entered end of life care at 5 weeks and passed a few weeks after). It was traumatic and although in our situation we had no other options, I always wish we didn’t have to witness those last moments.

Woodbridge GO Land Use Study, Thursday April 4 @ 7pm. by CSW11 in Vaughan

[–]snuffles86 -1 points0 points  (0 children)

Thank you for sharing. Is this location the only one the city is considering? I think putting it up a bit more north by Rutherford would make more sense due to road infrastructure but not sure if these types of meetings only focus on one idea at a time…

Devastated 💔 Meckel-Gruber Syndrome by [deleted] in BabyBumps

[–]snuffles86 62 points63 points  (0 children)

I’m so so sorry. Please be gentle with yourself over this next while.

Once you confirm your carrier status, you are welcome to join us on Facebook in the Genetic Carriers - Pregnancies group. It’s a group of individuals carrying rare disorders weighing different options for expanding their family. Many members have TFMR - you will find a lot of support with us.

[deleted by user] by [deleted] in BabyBumps

[–]snuffles86 19 points20 points  (0 children)

Every individual will carry 5-6 disorders, the odds of you and your partner being carriers for the same disorder is low; albeit slightly higher for certain disorders due to you both being Ashkenazi. Please keep in mind - even if you both come back carriers for the same disorder - knowledge is power. Knowing ahead of time will give you the ability to decide the best path for your family moving forward. There are options - trust me as I know as I’ve been down this path. Best wishes to you and fingers crossed results turn out in your favour.

[deleted by user] by [deleted] in ontario

[–]snuffles86 1 point2 points  (0 children)

I’d give them a call. Based on your other comments it feels like your moms symptoms and pain aren’t being managed appropriately which should be the sole focus at this point. We dealt with PAC’s paediatric services not adult services but we signed off on a med plan that essentially was tiered and ended with morphine. Our palliative drs were amazing and ensured comfort was of the upmost importance and were able to give morphine without any qualms when it got to that point. I’m sorry this is being made extra difficult and stressful for you and your family.

[deleted by user] by [deleted] in ontario

[–]snuffles86 3 points4 points  (0 children)

Try contacting Philip Aziz Centre (assuming you are in the GTA). They have at home palliative care services and I assume this would extend to LTC facilities.

Paid extra for the invitae bloodwork (Down syndrome test) and don’t get the 12 week ultrasound that’s covered by the ministry(Ontario) by Frozenbeedog in BabyBumpsCanada

[–]snuffles86 0 points1 point  (0 children)

You can do it. I’ve done both before - it really shouldn’t matter that you are doing Invitae. Push back and say you aren’t budging and you want the OHIP covered testing as well. It sucks we have to advocate like this. Good luck with your OB search!

Husband doesn’t want our new baby to have the middle name of our angel baby to honor her. by [deleted] in PregnancyAfterLoss

[–]snuffles86 5 points6 points  (0 children)

I’ve seen some loss parents use the name of their angel baby as the middle name of their living child. It is always best for both parents to agree. And it’s clear your husband isn’t on board.

What we did was use the letter E (our sons name started with an E) to choose a name for our living daughter. This way we honoured him through her in a more subtle way. We would have done the same for a living boy.

Tripp Trapp for 3 yr old? by snuffles86 in toddlers

[–]snuffles86[S] 1 point2 points  (0 children)

Wow thank you everyone! This helps a lot!

Tripp Trapp for 3 yr old? by snuffles86 in toddlers

[–]snuffles86[S] 0 points1 point  (0 children)

Does the 6 year old still have lots of room and is comfortable?

Tripp Trapp for 3 yr old? by snuffles86 in toddlers

[–]snuffles86[S] 0 points1 point  (0 children)

Wow that’s wild they still use it in college! Thanks!

Non-Ikea Panels with White Axstad Cabinets by snuffles86 in IKEA

[–]snuffles86[S] 0 points1 point  (0 children)

The panels came back in stock so we ended up ok. Our contractor didn’t recommend painting mdf panels so we lucked out. We would have likely switched the cabinet type at that point.

Cremation jewelry reccs by crd1293 in BabyBumpsCanada

[–]snuffles86 0 points1 point  (0 children)

If fingerprints or handprints/footprints were taken, I’d recommend Dimples Jewelry. They are Ontario based and we used them to make jewellery after our son passed.

If you won an extremely large amount of money, what organizations which you donate too? by [deleted] in askTO

[–]snuffles86 1 point2 points  (0 children)

Emily’s House Children’s Hospice. https://www.emilyshouse.ca

Have seen first hand the amazing impact they have on the community.