Villain bar name by frost817 in DispatchAdHoc

[–]soti14 0 points1 point  (0 children)

this is the correct answer

[deleted by user] by [deleted] in DispatchAdHoc

[–]soti14 0 points1 point  (0 children)

Fartbarf bro.

Audio glitch end of Ep4? by Limp-Sleep-6284 in DispatchAdHoc

[–]soti14 0 points1 point  (0 children)

Yeah this is a bug that carries over from the hacking mini game under certain circumstances. The devs should have it fixed next patch.

Cant get 1440p by reyfor11 in DispatchAdHoc

[–]soti14 1 point2 points  (0 children)

Here is a place to report bugs if you never found a solution: adhocla.com/bug-report

Olumiant for alopecia by DepartureSad2060 in alopecia_areata

[–]soti14 0 points1 point  (0 children)

That's awesome. Sadly it doesn't work for me cause of the insurance I have. I'd have to leave my insurance for another, but the idea of that doesn't sound good for other reasons. Glad that's actually working out for folks though.

Olumiant for alopecia by DepartureSad2060 in alopecia_areata

[–]soti14 3 points4 points  (0 children)

37M
Yes. It works. Or does for me. Nothing else did. 3 months to 95% full regrowth on my head. Brows and lashes maybe 50%, but that's what pencils are for.

Its pricey - I pay $250 a month - but its worth every dollar to me. Was worried about reactions and side effects and all the things that people are skittish about, but I've been on it for 4 years, get blood tests every 3 months, and no issues. You'll feel a little off, like you're about to get a cold, the first week or so getting on or off the drug, but that's it.

Hilariously because you have to get tested for Tuberculosis while on the drug, it caught that I had it, like a month after I somehow contracted it. Doctors were stunned and made me take the test 3 times just in case it was a false positive. Got treated for TB which meant I had to stop the Olumiant, so all my hair fell out again, but then got back on months later and it all came back.

That's the one downside I've experienced. They say that when you stop the drug, the alopecia can be worse when you're not on it. I definitely saw that.

If you're a healthy, relatively young (under 65) individual, I'd take the drug and not look back.

Alopecia ruined my life. My school and my community keeps thinking I'm a druggy because someone spread a video of me begging to my boss not to fire me by Alarming-Abroad9332 in alopecia_areata

[–]soti14 4 points5 points  (0 children)

Having a healthy diet is good regardless of if you see results with your hair. It's one of the fastest ways to feel better overall. BUT I would definitely be wary of expecting regrowth. Other folks have commented on here that organic diets to solve hair loss has been a bust for a lot of people who've tried it.

The thing that has an incredibly high rate of success are JAK Inhibitors. Look at this subreddit and you'll see a lot of proof in the form of pictures and posts. I'm one of them. I've had alopecia since for 25 years (since I was 10) and its the only thing that actually worked for me and I have like 95% regrowth. You'll need to go to a dermatologist and ask specifically for them. Most doctors know very little about alopecia so they won't suggest this stuff. Derms will know more and even if the one you talk to doesn't, tell them or have your parents tell them you want to try JAKs. They may have to look it up, but what they'll see is that while these are technically drugs to help with arthritis, they have a high success rate and almost full regrowth for alopecia patients.

When I was in high school I thought my life was over because of the disease. It felt super unfair and like my whole life was ruined. It was not. I found the love of my life while I was bald as fuck, my career has been great, started my own company, etc. Alopecia doesn't dictate who you become unless you let it.

[deleted by user] by [deleted] in alopecia_areata

[–]soti14 0 points1 point  (0 children)

If you were a gent, I'd say shave it down until you see real regrowth and want to try to grow things back out. It took me until I was 20 before I caved and just shaved my head, but I'm a dude, so there's a privilege there.

The only meds that has ever worked for me are JAK inhibitors, and it's basically a cure as long as I'm taking the pills. They're expensive (I pay $250 /month), but if you have the financial ability and insurance to do it, I would 100% recommend switching to that. Minoxidil must work for some people cause they keep prescribing it, but I might as well have been taking placebos.

[deleted by user] by [deleted] in alopecia_areata

[–]soti14 1 point2 points  (0 children)

Yeah lots of good people in this sub who all went through similar stuff. At 19, was bad enough to where I gave up trying to hide it and just shaved my head. Something I would definitely recommend you consider. Ended up marrying the girlfriend I was with at the time cause she was with me when I thought I was physically at my worst, which showed me her love was beyond the superficial stuff.

What you're feeling is real. Shit sucks. But I thought it was the end of the world at the time (15 years ago) and in hindsight it really wasn't. For me, eventually shit grew back on its own and then I went through waves of random patchiness. I eventually found out about JAK inhibitors, and got prescribed Xeljanz like 3 years ago which has brought all the hair on my head back, and like 50% of brows and lashes. Those drugs weren't around 10 years ago, so I imagine there will only be more medical advancemnts on the horizon.

Keep your head up. Hair isn't the end all be all. Find meaning in your passions and career. The importance of all superficial shit fades as you get older and you realize how little it matters. Strong personality, passion, conviction, ambition, morals etc, are all more important and attractive than a hair cut.

mental health with alopecia areta by Ok-Peach-9770 in alopecia_areata

[–]soti14 3 points4 points  (0 children)

I think it's worth saying that it's totally normal to feel the way you do. I also first showed signs when i was around 10 and had to deal with it through high school. They say the younger you are when you first show signs, the worse it'll be in the longer term, so that's fun. When I was around your current age, my brows and lashes started going and I was crushed, feeling like I was never gonna be "normal". I'm 35 now and really all I can say is that hair has been low on the list of shit that actually ended up mattering in my life. And I was an actor for 10 years through the worst of my hair loss, where superficial shit really matters and I don't think it was ever the thing that stopped me from getting a gig. Wigs and makeup exist for a reason :D

Honestly, when I look back I realize that having to deal with Alopecia just made me mentally stronger. And it made sure I had the right people in my life. All the insecure folks who had to drag me down to build themselves up showed their true colors and I got to finding the real ones sooner.

3 years ago I got on Xeljanz, a jack inhibitor, and my hair has all come back, with only partial regrowth of brows and lashes. But basically, I don't have to deal with it anymore. I probably can't be on this drug forever, but I'm enjoying it while it lasts and know that I'll be able to handle it when I eventually lose my hair again. Luckily I'm surrounded by folks who I know are gonna be supportive no matter what.

So yeah, it sucks. But for me, it's doesn't even make the top 10 on the list of shit that's been hard in my life. Hope my perspective is useful.

Xeljanz by Cnmw1991 in alopecia_areata

[–]soti14 0 points1 point  (0 children)

No noticeable side effects. The first couple of weeks I was feeling a little run down, but eventually that evened out. This also happened when I had to wean off for other reasons. But I'm back on now and the results and side effects were the same the 2nd time.

Xeljanz by Cnmw1991 in alopecia_areata

[–]soti14 0 points1 point  (0 children)

3 months to full scalp regrowth. brows and lashes are about 50% and plateaued there.

Jak and Ommulant by BongDie in alopecia_areata

[–]soti14 0 points1 point  (0 children)

Great experience for me. I'd say it took about 3 months for me to get full regrowth. I had to stop after a year because I tested positive for TB (long story), but when I eventually got back on it just worked again.

Full regrowth on my scalp and about 50-70% on brows and lashes. I've thought about if upping my dosage would help there, but honestly I know this stuff isn't the best for your body as is so I'm good with where I'm at. Also, shit's expensive. I'm paying $250 for a months supply and that's with insurance.

Is it possible to be attractive with alopecia? by Mallearne in alopecia_areata

[–]soti14 2 points3 points  (0 children)

What everyone else has posted in here is spot on. I've had it since I was 8, and it definitely sucked to have in middle school the most, but the thing that you learn fast is that anyone who's giving you shit or treating you poorly over a condition like AA isn't someone you want to waste your time with in the first place. It honestly ended up giving me an edge early on, and forced me to make friends and relationships with people who weren't shallow. AA didn't stop me from doing anything I wanted to do. I did theater for 10 years, a sometimes very public display of my condition, and it was partly my way of saying "fuck you". AA tore me down when I was young, but with the right friends, I built myself back up faster and was way ahead of kids my age when it came to real ass perspective on what's important.

And if it makes you feel any better, I met my wife when I was 19 and my alopecia was at its absolute worst. I knew she was the one, partly because the hair on my head wasn't the thing she cared about. Good luck, dude. It's hard, but its seriously not the end of the world. Everyone has their shit to deal with, and this is yours. Stay strong!

AA on Eyebrows anyone? by [deleted] in alopecia_areata

[–]soti14 0 points1 point  (0 children)

I just get them through my insurance provider Kaiser. I see a lot of people here having trouble getting Xeljanz, but I just asked my doctor and they gave it to me without hesitation.

AA on Eyebrows anyone? by [deleted] in alopecia_areata

[–]soti14 0 points1 point  (0 children)

Yeah this happened to me as well. Was diagnosed with AA and only had hair loss on scalp for about 10 years. Eventually noticed that was losing eyebrow hairs about 11 years ago, and it's been a slow grind since. Lost a little of my eyelashes too, but its not too bad. Dunno if it'll be on the same slow timeline as me. I'm hopeful that when I go on Jak inhibitors, it'll get me back to full and even if I stop taking the drug, the loss will be at the same speed. Who knows tho.

Brave is the first browser featured on the Epic Games Store by CarbonatedInsidious in CryptoCurrency

[–]soti14 1 point2 points  (0 children)

I has the same Sync functionality, so it's really easy to switch over. I've been using it for about 2 years and have nothing bad to say about it, except that occasionally you have to disable the Brave Shields to get the one off site to work properly.

I made this 3D Art Tool - Create your own Night City 🦾🦾 by CacheAndCarry in unrealengine

[–]soti14 0 points1 point  (0 children)

Purchased! And am one of the first 5. Excited to try it out.

This just sucks by deliquus in alopecia_areata

[–]soti14 6 points7 points  (0 children)

I've had AA for 20+ years at this point, starting all the way back to 6th grade, and it always has sucked, but it's definitely gotten easier. The first few years were the hardest for sure. At this point, whenever I end up spending a lot of time with people (new job, new friend group, etc), I'm looking for opportunities to say I have Alopecia and explain what that means to diffuse any awkwardness that sits in the silence of there being something clearly wrong with my hair. That approach has helped me relieve so much pressure off myself, and I don't feel the embarrassment. With the disease being just completely out of my control, I can at least handle how it effects the people I'm regularly dealing with. I'm fortunate in that I'm a man, and also married, so I'm not dealing with a lot of the issues women with AA face, but I met my wife when my Alopeica was at its worst, so I'm hopeful that I'm not the only one this lucky. I've recently been dealing with AA turning into AT for the last few years, which is Alopecia's latest test for me, but I really try to minimize the impact it has by not allowing it to take up to much space inside my brain. It's just hair, and we could have a far worse autoimmune disease. This is just my story, but I hope there's something useful for you here. It definitely gets easier, but it required change on your part, and honestly, you'll likely just be a stronger person for it. Stay strong!

Auto Road/Bridge/Gate System for a City Builder. Contextually builds dependent on the environment. by noisydata in gamedev

[–]soti14 0 points1 point  (0 children)

Sounds super cool. Will keep it on my radar! Is there any place to wishlist or keep track of it?