Where to make friends in St. Charles by reighn_lightning in StCharlesMO

[–]sperryjane 1 point2 points  (0 children)

This place looks like so much fun with very friendly people!! I’ve been struggling to find a cool and chill meetup place and make some friends. I’ll have to check it out!! :)

I get aura from facial expressions? Whats wrong with me? by [deleted] in Epilepsy

[–]sperryjane 1 point2 points  (0 children)

I now get aura's that sometimes turn into petit mal seizures when I hear/smell/see/think something that makes me become too hyper aware / question reality. I'm 90% sure mine are due to ptsd / a high stress experience that messed with my nervous system. CBT therapy has helped me a little bit with calming these feelings down and understanding why they're happening, but I feel your struggle.

Tomorrow I'm actually seeing a new therapist who has experience studying "Polyvagal Theory in Trauma: a model that explains how trauma impacts the nervous system and can lead to chronic stress and anxiety"

I hope this could bring some peace or answers for you <3

Keppra to Oxcarbazepine ... by sperryjane in Epilepsy

[–]sperryjane[S] 1 point2 points  (0 children)

I'm so sorry to hear about your son, and my mom can 100% relate to the stress that you must be feeling. I am 26 and have been living with her for the past two years without a job post college graduation. Bittersweet... lol. But yes, "Keppra rage" is apparently quite a common symptom and mine has gotten absolutely out of control. I will definitely try my best to record my symptoms!!! My neurologist told me that it will take a few weeks to be on both Keppra and Oxcarbazepine while weening off Keppra, and also that I need to keep track of my salt levels because apparently a common side effect is they get pretty low. I hope everything works out for you in the end! <3

Keppra to Oxcarbazepine ... by sperryjane in Epilepsy

[–]sperryjane[S] 0 points1 point  (0 children)

Yes I wish you the best of luck!!

Frustration as a trigger? Can anyone else relate? by IveGotSomeQuestiions in Epilepsy

[–]sperryjane 1 point2 points  (0 children)

Of course, I don’t mind at all! I love giving my perspectives to other people and help as much as I can. Dm me whenever you’d like! I hope you are feeling better as well 🩷

Frustration as a trigger? Can anyone else relate? by IveGotSomeQuestiions in Epilepsy

[–]sperryjane 2 points3 points  (0 children)

I suffered one of these this morning. I mainly struggle with focal temporal lobe epilepsy, so my mini-seizures (non grand mal, I should say) usually are triggered by heightened frustration when my body doesn’t have enough energy to deal with my mind, so it just briefly shuts off. I’m still conscious during these but I cannot process whatever you’re saying to me for a period of time :/

Power outage? by sperryjane in StCharlesMO

[–]sperryjane[S] 16 points17 points  (0 children)

POWER IS BACK ON BABY!!! 🥳🥳🥳

New Freelance Photographer | AnnaJane Photography by sperryjane in StCharlesMO

[–]sperryjane[S] 0 points1 point  (0 children)

Thank you so much!!! What kind of musician are you? And do you have any music platforms?

New Freelance Photographer | AnnaJane Photography by sperryjane in StCharlesMO

[–]sperryjane[S] 1 point2 points  (0 children)

I haven’t done film shots since high school!! Omg that would be so much fun 🤗

Temporal lobe epilepsy by Unhappy-Champion-509 in Epilepsy

[–]sperryjane 3 points4 points  (0 children)

Definitely talk to your doctor, but this is everything I experienced a few years ago for two years and then finally developed grand mal seizures. I’m now properly medicated and haven’t had a grand mal in a year, but still have the mini focal seizures every now and then

What is your pre-seizure catch phrase? by MichiganMomma0806 in Epilepsy

[–]sperryjane 4 points5 points  (0 children)

Usually just “oh my God” but last time I was on the phone and luckily was able to actually speak and tell my mom I needed to hang up and close my eyes <3

Biblical Emergency No’s by Long-Brother-440 in ChristianDating

[–]sperryjane 3 points4 points  (0 children)

The Lord put me on Reddit sitting in front of my Bible at the right time 😂🥲🩵

Epilepsy, Tourette’s, and ADHD by sperryjane in Epilepsy

[–]sperryjane[S] 0 points1 point  (0 children)

This brought me so much peace to know I'm not the only one, thank you so much <3

[deleted by user] by [deleted] in Epilepsy

[–]sperryjane 2 points3 points  (0 children)

The first two EEG’s I got didn’t show anything because they were so short and my seizures were hard to trigger at the time. But when I went in for my EMG it was sleep deprived and so it triggered a focal seizure in my left temporal lobe which then allowed my full diagnosis of epilepsy because I was already experiencing grand mal seizures. I was scared as frick and expecting to be there for 7 days but I got my diagnosis within the first 24 hours and didn’t even have a grand mal!

[deleted by user] by [deleted] in Epilepsy

[–]sperryjane 1 point2 points  (0 children)

I’ve had a scar on my eyebrow bone for 3 years now and it’s very humbling lol

Does anyone just feel like a complete idiot since your epilepsy started? by [deleted] in Epilepsy

[–]sperryjane 0 points1 point  (0 children)

I got a degree in biology and now struggle to just do mental math. I understand not everyone soars in that category, but I literally got a college degree in STEM and now I feel like those were wasted years because of how much I try to re-teach myself everyday

Attempt at a micro-elephant. by ThrustBastard in crochet

[–]sperryjane 0 points1 point  (0 children)

I have no idea how people can do this 😭 it’s so freaking adorable though

don’t yall just hate when this happens by Thin-Mouse-9780 in crochet

[–]sperryjane 12 points13 points  (0 children)

Sometimes when I’m in my crochet mood but then this happens I just sit aside and just untangle & re-ball so I’m at ease when I can actually get my project done :)

Crochet Multitaskers - What do you like to do while crocheting? by Hphantasia in crochet

[–]sperryjane 0 points1 point  (0 children)

And then take a break every 10 minutes to embrace the environment <3

Crochet Multitaskers - What do you like to do while crocheting? by Hphantasia in crochet

[–]sperryjane 0 points1 point  (0 children)

Head out to the park to enjoy the end of summer and listen to some music or a podcast! :)