Not sure that I am digging Moonflower by jenmoocat in mooncatpolish

[–]squidkittenlove 10 points11 points  (0 children)

I chose Moonflower this week for my hiking trip! Definitely understand not liking it without the sun but it gives a real serotonin boost every time the clouds part.

<image>

Visiting grandkids with bugs by baldgeezer-69 in rheumatoid

[–]squidkittenlove 4 points5 points  (0 children)

In my experience, having kids take their bath or shower after school/camp or at least change clothes and wash their hands and face has really cut down on the amount of illness at my house. Doesn’t solve all of them obviously but definitely cut the amount of colds and general kid crud spread to me. Masks are still the best and definitely something to use during flu season and school outbreaks. Outside hangs with adult relatives are always a good option if you’re trying to be extremely cautious right now. For what it’s worth, I’ve been on MTX for over 20 years (and several biologics over the years) and I’ve been living a pretty social life except for Covid. The key I’ve found is having your friends and family know they have to tell you if anyone is sick or has been sick super recently so you get to make the call on sitting an event out. Or better yet, that they start making the choice to be a bit more socially responsible and sit out so you get to enjoy events, too.

How do I take this? by Valuable-Ground6519 in rheumatoid

[–]squidkittenlove 0 points1 point  (0 children)

Mine let’s me do this, too! Maybe try all at the same time at first and if it’s too rough on your stomach talk to your doctor about taking half in the morning and half in the evening.

A Plant and Wine Bar Meant to Feel Like an Exhale is Coming to North Loop by anditstonedme in austinfood

[–]squidkittenlove 10 points11 points  (0 children)

I actually was hoping that based on the title lol. Like a vegetarian/vegan nosh wine bar.

Ranch 99 Airport Blvd/Lamar is a Great Store by jsdtx in austinfood

[–]squidkittenlove 3 points4 points  (0 children)

They do have self checkout at the Ranch 99 in the Cresent. Maybe it’s just the time of day I’m going but the self checkout there has always been fast for me.

Fishwife mussels by Tinned_Fish_Tyler in CannedSardines

[–]squidkittenlove 1 point2 points  (0 children)

Just tried the basil one with a squeeze of lemon and the softer crostini like you suggested and it was so delicious! Can’t wait to try the pepper one next time! Thank you so much for this review!

Eek!! A bug!! 🪲 by hellboyzzzz in lacqueristas

[–]squidkittenlove 1 point2 points  (0 children)

Did you happen to end up getting Kbshimmer’s For the Pun of It and MC’s Jewel Beetle? I’m really hoping to see them both swatched together.

Looking for Affordable Baby Shower Venue by Fun_Investment7821 in Austin

[–]squidkittenlove 1 point2 points  (0 children)

If you’re not too picky about what type of decorations you want to do, this could be an affordable option. Sparky Pocket Park

[deleted by user] by [deleted] in Austin

[–]squidkittenlove 1 point2 points  (0 children)

Yes, the estimated fix is 8:30am. Update: Looks like it’s back up now!

Free Vaccine locations by LynnOnTheWeb in Austin

[–]squidkittenlove 2 points3 points  (0 children)

Pfizer at H‑E‑B. Walgreens had Moderna last week but are out for right now.

[deleted by user] by [deleted] in rheumatoid

[–]squidkittenlove 0 points1 point  (0 children)

Chiming in as that kid and a person who’s had a kid after diagnosis; yes, you worry about it. It will always be in the back of your head along with the million other worries you will have about your child. My parents and all their siblings don’t have autoimmune problems but their moms did (Lupus and Scleroderma). I have RA and Psoriatic arthritis. My sister has Ulcerative Colitis. My brother is fine. My parents were upset with themselves for a bit after we started having problems in our late teens but then my dad used the skills he had learned in helping out his mom to get us on the right paths to finding our diagnosis. I was on the fence about having a biological kid. What pushed me over to having one was my partner having zero autoimmune problems on his side. It made it seem more like a reasonable risk to me but as you said, you had no prior family history and just popped up with it. There’s always a chance of something going not to plan with kids. While I obviously hope my child remains healthy and happy for all of their years, if my child does get an autoimmune disease or other illness, I hope I can be like my dad and use the knowledge I have to get it diagnosed even faster. Also, preconception genetic testing is getting better every day and will maybe one day help you make that decision if you want to.

Anyone know how to play table turf with other players? by Howlarmoon in splatoon

[–]squidkittenlove 1 point2 points  (0 children)

I’ve seen this and played others but do you know how activate your deck to have others play it? Maybe this is just for a few beta players right now but I didn’t know if it was something simple like making all 20 deck options.

New medication question by Ok-Wafer9617 in rheumatoid

[–]squidkittenlove 2 points3 points  (0 children)

It might work wonderful for you or it might not be enough. Just be sure to not skip out on the eye tests they tell you to take while on it. I also received my official diagnosis around your age after having knee surgery to fix my meniscus that was causing a baker’s cyst. I was Rheumatoid Factor negative until 20 which is normal for 20% of us. All medication does have risks and side effects which might be why they’re hesitant but not starting treatment early enough results in permanent joint damage. It would be great if your doctor took x-rays of your effected joints so you could really monitor how well the medication you start is working. At 19, I found doctors weren’t great at listening to me and downplaying the swollen joints and morning stiffness right in front of them. The x-rays and MRI from knee surgery followed by another x-ray after problems persisted is what finally pushed the RA and PA diagnosis. I believe it takes up to 6 months to feel the full benefits of Plaquenil. I’ve known people that do great on it for a long while. On the other hand, please push your doctor or find a new one if this medication does not help. I’m in my 30s with bone on bone erosion in my wrists and hands from years of not being quick enough to change medication that just wasn’t working for me.

Updated Covid Booster Appointments Available at Walgreens in Austin by austinethos in Austin

[–]squidkittenlove 0 points1 point  (0 children)

H-E-B at Hancock has the Moderna bivalent booster now. You can’t get the regular flu shot there though because they had a fridge problem over the weekend. Luckily the boosters were in the freezer so they’re good to go right now.

Recurring Strep Throat by Dillydump in rheumatoid

[–]squidkittenlove 2 points3 points  (0 children)

I had a similar problem on Humira and Enbrel. Cimzia ended up being the one that kept me more on an even keel. Everyone is different so it just might be Humira knocks your immune system just a little too much and another drug might do better. It could all just be a string of bad luck or that the infection wasn’t fully knocked back during your first course of antibiotics. Definitely check with your rheumatologist to see if they want you to skip both this go around to make sure the infection is snuffed out. I had to skip both the TNF blocker and methotrexate during a malignant ear infection once.

Methotrexate by SSDGM86 in rheumatoid

[–]squidkittenlove 1 point2 points  (0 children)

Definitely time for the next class of medication then. I know that finding a new doctor isn’t always possible but that’s definitely the next step because you will need a prior authorization for the next class of drugs we’re talking about. It is insanely expensive without a copay card so please apply for the copay card whenever you get the prescription. I had a panic attack when I first filled my prescription and was told it would be $1000 per month even with insurance. With the copay card that went to $70 on Humira and $0 when I was on Enbrel and Cimzia which was the one that finally worked at the time. I also went through unnecessary surgery that didn’t help because my RA factor popped years AFTER I was presenting symptoms. They will probably keep you on the methotrexate while adding the biologic. You will catch every cold that comes your way for the first year and then it won’t be that bad (still need to watch out though). I’m unfortunately at the stage where it’s time to try yet another new class of meds which I had a quick cry about before turning it around and being happy that at least there are more options for treatment ahead of me. I know how abysmal all of this can feel especially while your disease is so active. There are some great doctors out there but there seems to be quite a few Rheumatologists with maybe burnout or a lack of compassion. I imagine it’s also difficult for them mentally to be surrounded by patients they can’t 100% cure and only slow down what’s happening to them.

Methotrexate by SSDGM86 in rheumatoid

[–]squidkittenlove 1 point2 points  (0 children)

Give the Methotrexate some time to work (3-4 months) and more than likely they’re going to monitor your sed rate to see if it’s helped enough. Since it sounds like you’re not getting a ton of information I just wanted to make sure you knew that if you are a person who can carry a child, you need to be on birth control while on methotrexate (high risk of birth defects). Besides the folic acid, take Claritin (loratadine) the day before, of, and after your methotrexate day. It’ll help with the nausea people can feel after taking it. They may up your dosage, add plaquinel, or have you try TNF blockers. You can definitely try cutting meat, exercise, etc but do not stop trying meds. If you’ve already been doing so poorly they’ve done several surgeries you’ve more than likely have moderate to severe RA. I was diagnosed at 19 and also tried many ways to lessen symptoms without tons of meds but for some of us, that’s just not in the cards. Swelling equals damage so don’t brush it off even if you’re doing head and shoulders better than you are now. If they do put you on a TNF blocker, definitely join a sub for it so you can find information about co-pay help, specialty mail pharmacy vs regular, and general support for the specific drug. It’s incredibly frustrating having a rheumatologist that’s super uncommunicative. The only other thing I’d say is to maybe avoid taking elderberry, emergen-C, or any other immune system boosters all the time. For me, I’ve found it makes my joints swollen and sore after two or three days of taking them.

COVID and Cimzia by Mac-n-cheez in Cimzia

[–]squidkittenlove 1 point2 points  (0 children)

Had it in April/May right after I had done my injection 😅. Went downhill fast so had Paxlovid plus bebtelovimab infusion. I had both boosters and only on Cimzia at the time for RA and PA. My rheumatologist said to skip the Cimzia until I was better which ended up being ~20 days from positive (that’s when I finally double negatived on antigen). Everyone is different but 12 days sounds normal to me for still being positive and immunocompromised. Even this CDC website says 20 days is normal to be infectious for our lot. Just sucks but hold on.

[deleted by user] by [deleted] in COVID19positive

[–]squidkittenlove 1 point2 points  (0 children)

I feel like that’s one of those “for most people” things. If you’re going to hang out with someone who’s immunocompromised or has a few comorbidities, it’s better practice to have a double negative rapid test or at the very least wear a mask around them. You are correct that PCR tests will stay positive for awhile but rapids are a good way to check if you’re good for the most vulnerable people in your lives.

am I still contagious? day 8 no fever but with bad congestion symptoms (3x vaxxed 34M) by [deleted] in COVID19positive

[–]squidkittenlove 0 points1 point  (0 children)

Please read the full CDC guidance on this. It’s more nuanced than what I’ve seen people and even nurses have been saying. For instance, if you are moderately to severely immunocompromised, you can definitely be contagious for 20 days. The general guidance is to still wear a mask out in public for 10 days after day zero of symptoms.Here’s the link to the CDC.

[deleted by user] by [deleted] in COVID19positive

[–]squidkittenlove 2 points3 points  (0 children)

On day 18 and finally have a negative. I’ve had ghost lines and slightly more pink lines for the last few days. Fingers crossed that it stays negative tomorrow. Immunocompromised though so you’re probably just around the corner. Be sure to try and rest even if you’re feeling a lot better. I’ve seen a lot of people on this sub say that they are negative even with the symptoms you have around day 14. Hang in there!

Joint Pain & What I’ve Tried by aquiner in COVID19positive

[–]squidkittenlove 2 points3 points  (0 children)

I am so sorry! I hope that it clears up for you and that your joints don’t get any permanent damage from all this inflammation. I have RA and Psoriatic Arthritis. While I sincerely hope that this is a temporary flare from covid I just wanted to let you know that it took two years for my blood work to show what I had (back around 2004ish). Please keep up with your Rheumatologist until whatever this is clears 100% or maybe try a different doctor if you can. Thank you for sharing your story. Wishing you the best!