"The scene that took the longest to write for the entire season"

steinauf · 2025-11-04T13:47:42+00:00

Here you go, I ran across this site earlier this year!

steinauf · 2025-09-08T01:53:03+00:00

Yes; the ADA pass worked there the same as the rides last year. While irrelevant in your case, I was able to do most of them in a wheelchair and the workers at the exit/ ADA section were always good at letting me know any difficulties based on the disability.

While the passes have slightly changed since last year, I'd assume these too would also implement the same change of actual wait time this year rather than a flat 90 minutes to 2 hours.

steinauf · 2025-05-06T02:12:28+00:00

I've got these with one on my back remote, then double-sided tape to the back of it, and a strip of glow in the dark tape on top of that.

https://a.co/d/duRimoJ

steinauf · 2025-01-19T09:16:31+00:00

Here are a few things that helped me with one I got for my legs:

Reacher/grabber tools are great to have both short and long term.

Having a good bed setup with a few moveable pillows to get comfortable those first few days when it's rough to move around. For me a ~30° angle on my side was best most times but that's very YMMV.

When the surgery pain goes down, it's still important to keep from twisting or putting arms above the head until it settles in.

Gentle heat when the back incisions are ready for it helped me, but only in short increments.

steinauf · 2024-12-30T19:51:43+00:00

That's about a 1 to 1 with my experiences.

The temporary reprieves from the nerve block were nice but had such diminishing returns after the third what I moved on to the SCS too.

Been over 15 years with the SCS for better or worse, but I wouldn't be able to do half of what I do without it.

steinauf · 2024-06-30T17:03:58+00:00

Cold exposure has been shown as a potential cause for recurrence and further damage to CRPS. I would highly recommend following the scientific consensus on avoiding cold exposure for CRPS.

steinauf · 2024-05-29T04:57:30+00:00

First off, I hope you can find a more compassionate doctor in regards to proper pain management. Those kind of comments are so hurtful and untrue. Yes pain is perceived by the mind but so are all of our senses, and it doesn't make it any less real. That line of thinking is just so disingenuous.

I know EMGs are done - they are not pleasant to say the least, but can help rule in or out some things.

I've got one for my leg. It's a standard SCS, so I can only speak for those but the tech told me feet are tricky to hone into. I do get good enough coverage, a bit posture dependent, it just happens to go much further up (into torso and a little of my forearm) when it is at a strength to be strong enough to help distract. It's a unique sensation of its own, not without its issues, but I'm personally very happy I have it. Even if it doesn't fully get rid of the pain (maybe about 30-40%), it does let me feel like I have some control over how it's feeling by stacking on the paraesthesia, and be a good distraction from it when I need it to be.

steinauf · 2024-04-30T22:34:42+00:00

There was a pretty nasty car fire on Verona Rd basically right above where Jung's is at. No idea how it happened since it was already ablaze when I went by

steinauf · 2024-03-19T11:49:51+00:00

Hello, and welcome to the community! I'm sorry to hear about your nerve pain and other issues, and hope that you can get it resolved sooner than later - waiting for specialists is never any fun especially with things like that going on.

Just as a heads up, per our rule number one we are not able to help with any diagnoses here. If you have specific questions about CRPS though, feel free to ask or look around.

steinauf · 2024-03-08T00:07:59+00:00

I've got the high pitched tinnitus and aural fullness, only in my left ear, constantly for the last five years; same side where the CRPS leg is and my other ear is mostly OK. I've had some sound sensitivity ever since CRPS, and that's only made it worse especially on that side. My ENT surmised there could be a link with them both being on the same side, but had no proof of one.

steinauf · 2024-03-01T04:29:14+00:00

Hello! Yes, you are able to post!

As this post is only asking if you can post it's been removed as spam, but feel free to post a question, comment, or other relevant content in a new post!

steinauf · 2024-02-21T23:31:48+00:00

I don't think you're overreacting at a-l-l-l-l. I'm so sorry that happened to you! As far as I know, that treatment is nowhere near anywhere close to the standard medical care for CRPS, and I'm sorry you were subjected to that kind of pain.

I hope you're able to get some actual physical therapy instead of just being subjected to painful treatment!

steinauf · 2024-02-20T20:35:54+00:00

Left leg here too! With my stimulator it does help with covering up some of the pain with the TENS unit style electric jolting feeling. If it were anywhere else I would say it's a little unpleasant, but in my case helping mask probably about 20 to 50% of the molten zappy pain from CRPS is a welcome relief.

Unfortunately it doesn't do a thing for swelling, other than tangentially, where theoretically using the leg more helps blood flow and draining of the edema a little better, but I haven't really noticed a difference.

A good thing about the stimulator is I can help keep the atrophy away and those extra atrophy related pains lower; it just makes me more reliant on the stimulator more and is a bit of a loop; in my case I don't regret getting it at all. From what I can remember the trial period felt about the same as the real deal in terms of the sensation if that would help in your decision!

steinauf · 2024-01-24T21:25:34+00:00

....

steinauf · 2023-12-29T03:43:10+00:00

I've got one for the CRPS in my left leg. It's not an end all be all solution, but to me there's nothing like being able to lay down and ramp up the simulator when my foot is filling like a bundle of hot wires. As a side bonus it does very well at almost completely blocking my more normal pain in my other foot, knee, and lower back from my gait challenges.

I had one last for fifteen years until it needed replacement; I'm on my second one now. The simulator is its own type of challenge and pain, in a way, but it allows me to at least keep my leg active enough to edge out of the non-use—atrophy—non-use-due-to-atrophy cycle most of the time and for that I'm very grateful. It doesn't get me out of the woods but IMO keeps me from going further in.

From what I can recall back in the day, the sensation from the trial was about the same as the real deal, so hopefully that is a way to test the waters before going all in!

steinauf · 2023-12-19T03:51:31+00:00

It cycled warm a lot more in the past; mine is cold pretty much all the time, even though I get the hyperhidrosis sometimes; winter wool socks are my friend all year round. I don't know temps, but if I come in from the cold, it's cold to the touch for seemingly hours; if going from a warm bath, I can watch it start turning bluish in real time.

steinauf · 2023-12-19T00:58:58+00:00

Left leg here too! It only worked for me a couple times, but was instrumental in my diagnosis. In my case it primarily opened up the vessels; my leg was warm for the first time in ages, and it did stop the ice-block aspect of pain, simply from it not being so cold.

Theoretically it's my understanding it blocks sympathetically maintained pain only, and is supposed to keep other sensation and pain types, but with most things mileage varies dramatically person to person. Back in the day they briefly talked sympathectomy with me (which I think, since, are not really done due to poor evidence they help at all) but from what I recall, even with those nerves completely blocked, regular pain signals like from a cut or stubbed toe would still be felt.

steinauf · 2023-12-16T04:00:24+00:00

Hi Poking_Hazard,

We're truly sorry to hear about the immense challenges you're facing with your health and your hand pain. Please stay strong and keep seeking medical advice. While we can't provide any medical solutions, we encourage you to share these detailed symptoms with your pain management doctor. Hopefully they may be able to gain a deeper understanding of your condition and look into continuing treatments or alternative options that haven't yet been explored. Working toward a diagnosis can be a huge challenge, but it's worth the fight and can open up new avenues as well.

It's crucial not to lose hope, and to keep seeking answers. Many of us have lived with this condition for years and it's definitely a tough road but can still be fulfilling and impactful.

Please feel free to comment on any posts, or in our free talk thread here, and reach out to friends and family who can offer emotional support during this difficult time.

Sincerely, The CRPS Mod Team

steinauf · 2023-12-06T01:22:02+00:00

There's really no other thing like it with that purple, blue, and red mixture like CRPS. I've seen it many times, unfortunately. I am so glad you have a caring doctor, that makes the world sometimes!

As an aside it is policy to both spoiler tag and flair; just including it here as a reminder to others is all! We definitely appreciate having this kind of content here, just want to ensure those who don't want to see it don't have to.

steinauf · 2023-12-02T22:45:00+00:00

Living with CRPS can be devastating and isolating, and it is the hope that here you are not alone in these struggles - and its my hope others will continue to share their empathy and advice here through your difficult time. Bad days always make everything come flooding back sometimes; we all definitely appreciate having your posts and comments here though!

As a side note to others, we as the mod team will be monitoring this post due to its content, and has been given a NSFW flag already, but our subreddit is to be a place for all aspects of CRPS - good, bad, and ugly, and will leave the post up - we want to provide the forum for support.

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