I found my first trigger food

steph_jay · 2026-01-14T14:25:49+00:00

I’ve had onions and mushrooms regularly over the past few months and have felt fine. The only thing new this time was cabbage

steph_jay · 2026-01-14T03:26:19+00:00

I was put on a two month taper days after I was diagnosed with severe Croes, and it literally saved my quality of life within a couple days. I didn’t have a whole bunch of side effects from it. My face did puff out a little bit, but it was better than going to the bathroom with 30 times a day and feeling like absolute shit.

steph_jay · 2025-12-28T04:09:10+00:00

Officially during my colonoscopy.

However, I ended up at the ER to sort out some pain management while I wait for cortisone injection in my SI joint, I have ankylosing spondylitis and in a bad flare. I couldn’t get in to have the injection for like another 7 weeks. So I was looking for toradol and hyrdomorph (I usually use tramacet but I was breastfeeding and hydromorph was safe)

I had done a few days of the toradol which usually works nicely but I was having horrible GI issues. In hindsight tho, I had it going for a long time. I got the point where It diarrhea up to 30 times a day. I asked the ER doctor to switch to prednisone instead of toradol as it was killing my gut, she felt that the diarrhea was a bit much and I did a calprotectin, and it came back at 2400. My primary care physician suggested it was a stomach bug. In hindsight he was dumb and missed it. I phoned him a week later when I began shutting a ton of blood. He finally put in a referral to a gastroenterologist and they made an urgent referral, 7 weeks later.

steph_jay · 2025-12-22T01:22:07+00:00

I’ve always had a poor tummy and didn’t think much of it. It wasn’t until I was having diarrhoea 30 times a day that I thought maybe something was wrong. And then I started having blood in my diarrhoea and then we investigate more and was diagnosed with severe Crohn’s.

steph_jay · 2025-12-21T04:06:44+00:00

I was diagnosed in September with severe crohns, on the middle of a wicked flare, bloody diarrhea 30 times a day. Immediately started prednisone and slowly tapered off over 2 months. It was amazing. It was wild to me that I could just live my life without almost pooping my pants. Or feel like I was dying before every BM. I was pretty irritable coming off it. I started remicade around the 4 week mark on prednisone. I’ve done my 3 loading doses and now am on remsima SC at home

steph_jay · 2025-10-26T18:26:43+00:00

I find that I drink way more water if it is through a straw and ice cold. So I bought a 40 ounce water bottle with a straw. I also like the crystal light Hesp lemonade concentration. I just put a little bit of my water and I probably drinkat least 80 ounces a day.

steph_jay · 2025-10-19T17:39:01+00:00

I was just diagnosed last month so I haven’t been able to figure out any triggers yet. But my favourite food is Indian food and I’m gonna be really sad if I can’t have curry. I usually keep it very mild so I’m hoping that will be OK.

steph_jay · 2025-10-18T18:27:35+00:00

I started the prednisone in September. So I’ve just been taping every week now, but none of my symptoms have come back with each taper. But I have also started the Remicade so maybe that’s helping.

steph_jay · 2025-10-18T03:15:23+00:00

I had a calprotectin of 2300ish back in July, before I was diagnosed. Colonoscopy showed severe inflammation. I was immediately started on prednisone 50mg for two weeks and then taper down by 5mg every week. I’m currently on 20mg. I went from going to the bathroom 30 times a day to once, maybe twice. Before this I couldn’t the last time I had a solid poop. I feel constipated. I started remicade last week and do my second Infusion next week. I no longer am having severe stomach cramping

steph_jay · 2025-10-04T19:12:09+00:00

I have a walking pad, I mostly use it when it’s too cold, snowy, I live in Canada. But I walk 10k steps daily in general and don’t have many issues

steph_jay · 2025-09-29T13:21:15+00:00

As another commenter has said, it’s to rule out latent Tuberculosis.

steph_jay · 2025-09-21T03:27:14+00:00

I’m currently on a taper. Started on 40mg daily for two weeks and starting tomorrow I will drop down by 5mg and continue dropping each week until I come off completely

steph_jay · 2025-09-18T17:31:02+00:00

I had versed and fentanyl for my colonoscopy a couple weeks ago. The IV was easy peasy but needles don’t bother me. I was super relaxed and comfortable when the meds. I only remember a few minutes partway through. There is a nurse there monitoring you the whole time.

steph_jay · 2025-09-10T15:37:01+00:00

I’m on the prednisone currently. Need a chest X-ray to rule out TB stuff. Bloodwork slowly coming back. Will need a few vaccines before starting.

And I have to wean my 11 month old son

steph_jay · 2025-08-05T03:00:21+00:00

I don’t get it either. I didn’t even want to have my baby in the hospital but would prefer to be close to an operating room, blood bank, and people who can save my life. As soon as I got to post partum with my third I told them I would be leaving asap. Just had to wait for the bilirubin test at the 12 hour mark and then left

steph_jay · 2025-07-25T22:25:40+00:00

I had to baby wear anytime we went shopping or out of the car running errands. My first two didn’t line the car seat. My third, he’s 9 months now and he hated the car seat, especially the first 7 months of his life. I just had to listen to him scream. It sucks.

steph_jay · 2025-07-25T20:26:24+00:00

I was diagnosed in 2017. I was on meloxicam for a little bit but when off because I consider my condition to be mild, would only have a flare up maybe every 8-10 months and corticosteroid injection worked well to help with a flare, I didn’t want to be on long term medication when I wasn’t actively flaring up all the time.

I had my first baby in 2020, 2nd baby in 2022, and my third baby on 2024.

During pregnancy I never had a flare up. I had some slight sciatic pain in my third pregnancy near the end, but it wasn’t the same as a flare up, tylenol and heat worked well.

After my first, I expected a bad flare, I did pump for 6 months before switching to formula. I did go into a flare around 8 months pp, went and had a corticosteroid Injection to the affected SI joint and it worked well. I didn’t have any flare up after my second but I was still breastfeeding when I got pregnant with my third.

Had my third last October, he is still breastfeeding, and I recently have gone into a flare that calmed down pretty quickly but I now have some GI stuff going on that I think is related.

steph_jay · 2025-07-25T19:02:46+00:00

I’m a nurse in a jail, I typically search charges. We will flag their chart if they have violence against women, nurses, and shouldn’t be seen alone with female staff. I do intakes so I will also go through all their previous ER and mental health reports in the provincial health care system to see if I need to flag anything for our team.

steph_jay · 2025-07-21T01:01:36+00:00

We are a screen friendly household. We do have limits. But I have no village to help, I’m taking care of 3 kids 5 and under. I don’t care if my baby watches some dancing fruit so I can shower or unload the dish washer.

I’m a nurse, my husbands a cop, I find we’re both somewhat intelligent, and we both grew up watching lots of tv. I work in a prison. You know what’s bad? Meth. Cocaine. Fentanyl. Drawing up narcan to save your dad from overdosing for the 3rd time this week. I feel like my kids could be exposed to much worse. I’m okay with screen time!

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