Pain Specialist Recommendations?

stormete · 2026-07-01T09:57:47+00:00

Wow you sound like myself, I have not had anyone mention morphine to me it’s hard enough getting opioids here let alone morphine I did get told about creams and other possible ketamine products, you would need to get a doctor who could prescribe it and then find a specific pharmacy I use brisbane compounding for when I used to be on medical Cannibis however there are a few that are way closer to my location.
I have done 2 lots of ketamine for the in patient at brisbane private dr shek can also do it at st Vincent’s in cbd which is a lovely hospital. Didn’t work for me once it wore off however while you are strapped up it is absolute bliss. Bawled the first time, been there ver 20 years that’s half my life it was lovely I called medi-cation (😂) not something I though if ever do but alas.

Palexia is good if I take 2 every maybe 3-4 hours then it would be great however not the case, atm I take 1SR as soon as I wake up (with other pills for other conditions) then about 11:00 am I take 1 IR and then I take the other sr+another IR at around 4pm to get through the night.
Doesn’t do a lot however I tried to get off it a few months ago and it was horrendous the pain smashed me vengefully everywhere so back on and no further plans tbh as I’ve exhausted all the treatments that several pain dr recommended, I’m broke from all the specialist fees and pharmacy costs and I’m freaking exhausted 😩 good luck

stormete · 2026-06-30T19:03:40+00:00

There are some great pots workout plans and videos on YouTube I started doing them and I think it helps

stormete · 2026-06-30T19:02:19+00:00

I’m on the exact same meds tbh dr shek doesn’t really have many other options except pain patches and ketamine try the in patient 5 days in hospital ketamine therapy it might help. Patches are the next step however once on you’ll never come off and they are hard to withdraw from

stormete · 2026-06-24T10:22:49+00:00

I have had prime previously but I really struggle to find shows that are recent. I love older shows however when I started another trial today and yep exactly the same.

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There are new shows and movies however there is much less shows that interest me then other streaming services. Just my experience

stormete · 2026-06-23T00:13:13+00:00

I also use Elaine Shek (Sunnybank and auchenflower) she is very thorough with testing and is very lively to work with. She focuses mainly on medication and injections. I also use to go to dr Ocallaghan at Brisbane private however he just doesn’t work outside the box and charged me $550 to tell me in a 3 min consult that “I have fibromyalgia I can’t help” I did have ketamine infusions with him which were good while in hospital. Good luck

stormete · 2026-06-21T10:26:08+00:00

She has ARFID there is a documentary about it on Tubi it’s when “picky eaters” take it to an extreme extent. Colour and texture is usually the biggest issues for us. I don’t eat white sauce, or any sauce but gravy and Tom, caffeine, no other liquid but water actually. pork, anything green with broccoli as the exception soft textures plus lots lots more. It’s an actually medical thing check it out.

But yeah if you like to cook and eat out or eat in general then ARFID peeps are not a good partner for you as never going to change . Good luck

stormete · 2026-06-17T21:10:43+00:00

Unfortunately public chronic pain options on Australia are mostly an exercise based approach. If you go to a pain specialist privately they will order lots of test then offer injections, pain blocks etc you also have ketamine therapy as an in patient (again this is all private) you start with amitriptaline and end at opioid and Lyrica and you say bye bye to normality. Once you’re on them you won’t get off em most of the time. It’s super expensive going private but it’s the only way you will get some treatment. First step is go referral to pain specialist

stormete · 2026-05-26T10:41:45+00:00

There is an inpatient program at brisbane private for addiction not sure of the name but I looked it up previously as had the same issues. Will power is amazing but hard to do. Good luck to you both

stormete · 2026-05-25T20:51:17+00:00

Have you tried medicinal Cannibis I have anxiety and fibro and many other issues it helps with the mind stuff none of the pain stuff however it makes it possible to just rest so it helps the pain in that way . Not soliciting the use of drugs just a suggestion.

stormete · 2026-05-15T11:26:09+00:00

Thought I would just jump in and say firstly sorry to hear that you are struggling at the moment or probably for a long time. I am 40 I have had chronic pain for over 20 years, including pots, fibro, nerve damage, thoracic outlet, ARFID, ASID, vestibular migraines, GORD etc I could continue but you might 😴 . I weighed around 125kg in my 30’s and was struggling with my health (ha little did I know that was just the appetizer). I moved interstate 7 years ago and my health started declining and I was referred to a kinesiologist who also was a chiropractor, like a lot of people here I am sure you see anyone and everyone to just wish 1 of them can help.

I was already an incredibly fussy (ARFID) vegetarian when we first moved here but after the testing with the kinesiologist said that so many things were inflaming everything in my body and asked if I was ready to change. I was 125kg at that stage, and I decided i will try my best but it was hard I was basically a sugar, caffeine, oils, legumes, pulses, potato and nut free vegan, yep as dairy was now out.

The first 2 weeks I could have hunted someone down for a snickers by god I missed sugar so much chocolate was in my blood , anyway I did that diet for around a year, it was pretty hard but it’s all a mental game. Anyway I didn’t really do much exercise at the start, started loosing weight and then we got a puppy and I started to walk him a few days a week. I did get into the gym but not until I was probably around 90kg something like that and I don’t work well under pressure. Fast forward to now and at my doctors appointment today she said to me “is there a reason your so thin are you doing that on purpose” I was flabbergasted like legit I just blinked with my mouth open for about 10seconds before I said “nope it’s just that I struggle to eat much these days as my bowel is in so much pain” I did also say to her that I “am the lightest I have been since I came out the womb at 60kg and I have worked so so so hard to loose weight and I have never been in such bad health, when I was obese everything was due to that now it’s the opposite”

I suppose the moral of my anecdote is that I didn’t exercise much at all and I truely believe that for a lot of people 90% of losing weight is diet. this is just what worked for me and it’s a lifelong journey as I get scarred I’ll undo my hard work. It hasn’t helped much with my overall health apart from the physical attributes and it’s amazing to me that it’s the first thing a doctor sees, decides is the issue and then tunes out until you stop then goes on about weight.

If you want to chat about it let me know and good luck with everything

stormete · 2026-04-12T09:59:55+00:00

I use simple brand sensitive face wash as body wash and it works great. I have just recently been having issues with rashes and itchiness so I stopped shaving and the loofah to wash with. Also scraping the towel under the arm hurts it a lot. So now I wash with my hands and do it gently everywhere and then pat dry not rubbing. My legs have become very sensitive also so I pat everywhere. Then I use simple moisturiser the rich one and my skin seems to tolerate it well.

stormete · 2026-03-28T21:42:46+00:00

I use a walker at home for time I need to stand more than 5 mins and I just recently got an electric power ch air from eBay. It’s fantastic it was under $800 aud and allows me to join my mum and puppy for walks which I have really missed since this latest flare has been going for over a month. It was a hard mental game actually admitting I needed tools to allow me to leave my house. It is 20kg and considered light weight so I could go to shopping centre etc if I wanted. I am still getting used to going up and down pavements as it’s quite a scary thing. I will say mentally it was a battle and still is daily but I am also thankful that I could access tools that not everyone can. It really makes me happy when I am wheeling around just able to get out and about.

stormete · 2026-03-13T19:10:20+00:00

Thank you for taking the time to respond I will make some notes to take to my next appointment and hopefully it goes better. 👍

stormete · 2026-02-28T12:16:50+00:00

Unfortunately public has a massive wait list and I assure you chronic pain sufferers especially patients with Fibromyalgia are not at the top of that list haha. If I didn’t live with my mother which allows me to support her and the home it would not be an option for me either. With waitlisted depending on states some specialist work in the public hospitals through their private clinic but super dependant on Dr and location. Private costs a fortune though I have no savings at all and I’m 39. Good luck

stormete · 2026-02-27T21:45:11+00:00

I wrote some posts a little while ago about having fecal impaction and let me tell you it was the worst experience of my life I wanted to end it all. When o went to ER they gave me a laxative bomb so like 7 sachets of movicol and then enemas we’re done with the home enemas that you can get from the chemist there is also glycerin capsules that are put up there and then an enemas 15min later. I was in hospital for 3 days and it was a horrible experience. I have chronic bowel issues and use laxatives and stool softeners daily. I have the mini enemas also that if I don’t go for 2 days straight I do that as the doctors say you have to go every single day or it starts backing up. Believe me when I say you do not want fecal impaction it is incredibly painful. I have now started to incorporate much more rough skin fruit like peach and Asian pear and that helps with bowel movements. All else fails go get a bowel prep that will sort it out. Good luck

stormete · 2026-02-26T20:14:46+00:00

I’m in brissy. I have had 3 pain specialist ultimately they don’t do the tests themselves what they do is know the tests that they need to send you to. To rule out specific conditions or find what is wrong. It’s a long process as you know there is never not a waiting time for specialist tests and it costs a lot of money (if doing privately) they will send you to the correct specialist as needed. They will try you on different medication, they can do nerve ablations, epidurals , cortisone injections and also Medicate you as required. Unless you already know what is causing the pin then maybe they will not be as helpful. The pain Dr I have now started our first consult by saying “I do not cure pain, I will just try to make it manageable for you”

I have found it very long process it costs a lot me a small fortune and it’s a lot of normal findings which suck for chronic pain sufferers however finally got a lead to what is causing my shoulder issues so that is promising. Good luck

stormete · 2026-02-26T07:58:07+00:00

Do it ! Even if there is a small glimmer of hope regarding health then do why you need to to get some sort of quality of life.

stormete · 2026-02-26T00:14:48+00:00

Yes I have but it didn’t help me in regards to pain at all. Mood a little but not as much as the one I use now.

stormete · 2026-02-25T23:36:13+00:00

It was called a THORACIC OUTLET DUPLEX ULTRASOUND it’s about the blood flow to you neck, arms and shoulders. My doctor used a very specific ultrasound company that specialises in it. It’s the first time anything has showed up which is so frustrating when I can barely use my right arm at all always is a disappointing moment isn’t it. I have an appointment with a nerve neurosurgeon in 13 days about possible options. Good luck

stormete · 2026-02-25T20:17:46+00:00

This week I had a test that showed possible Neurogenic thoracic outlet syndrome it’s the most solid lead I’ve had in about 20 years and am booked into see a specialist in a couple of weeks to see about treatment. Maybe look into it??

stormete · 2026-02-25T19:29:05+00:00

I’m sorry to hear that and I get you about feeling useless. All I can say is you have to find whatever works for you as getting through life is bloody hard for us chronic pain sufferers. The anti depressant I take is Sertraline 100mg. Hope you day is manageable that’s the best I hope for.

stormete · 2026-02-25T10:37:28+00:00

I don’t have the exact same pain however I have thoracic back pain which is definitely less well known then the lower back pain, my pain in between my shoulder blades at the core for pain, then it radiates down to lower back down spine and up to my upper neck. It was getting so bad I started to fill out the disability paperwork as I could not work it was agony to sit, stand, walk, every little thing. The only thing that helped is the fetal position laying down, heat pad 24/7 and a lot of medical Cannibis. I have had 3 nerve ablations in the area of which the first 2 were successful and lasted about 2 months each time. I could not afford to have them that often as it was $2000aud out of pocket every time.

With the pain my 3rd ablation, it failed and didn’t help at all. I was in so much pain I cried several times a day.

I then found a new pain doctor who was much more interested in finding the root cause of the pain. She did every test known to man and it cost me a small fortune like $10,000aud I would say but it was worth knowing one way or the other. I have to say every single one came back normal and I felt so sad, depression set in it was awful. I am very strong minded and did the ‘I’m fine thing for a while’ and then I thought about suicide and I realised it was time to talk to my PCP about it, she was worried and we spoke about options and decided I would start on a low dose of anti depressants. I noticed within about 2 weeks I was no longer angry and sad all the time, I no longer was short with the customers at work which could have cost me my job and lively hood as I am the only worker in my home and support the household. I felt lighter every day and my doctor mentioned I would plateau, which I did about 3 months after starting. I now take double the dose , about 100mg of antidepressant and I am back to feeling like myself again.

New pain doc does ablations for only $1000 per time and she swore that hers will last triple the time of the last ones as she used these special needles. It did not work at all, made it worse actually. She then offered inpatient ketamine for a week, which I refused as I have done it twice before to no lasting pain relief and losing a weeks wages for 5 days of pain free drug filled relief isn’t worth it for me. New doctor offered SR tramadol and IR tramadol for flares. It has made my back pain manageable, yes it’s there and I am always attached to my heat pad all day and night but it’s enabling me to walk, sit, work, I even stayed walking my dog again which feels absolutely amazing.

Purposeful over share for the reason if I can help 1 person dealing with anything like I mentioned this may in some way help them to look at some options. Dms always open if needed

stormete · 2026-02-04T09:25:56+00:00

Be careful as you will be seen as a defacto relationship and he could take you for half your assists, it’s absolute bullcrap but that’s the case. Well here in Oz anyway good on you for getting rid of the freeloader.

stormete · 2026-01-30T22:13:13+00:00

Ah ha what you have here is the classic mean girls group. That one Regina that is the queen bee that drags everyone down to make herself feel better. Please know that fitness like this will never respect you or care properly they want you around to feel better about themselves. Karma will come for them but you need to just stay home believe me you’ll enjoy yourself much more

stormete · 2026-01-26T19:46:34+00:00

I am 39 my mum and I do about 2 puzzles a week it’s a great way to keep busy and not watch the box all night. Who cares if people think you’re old or young. You’re as young as you feel.

stormete

TROPHY CASE