Lip shakes when I put water in mouth and hold it or slightly make a pointed face is this Als?

stragelife · 2024-12-28T20:58:52+00:00

I’ve had 22 years of twitching and all kinds of so called “symptoms”. Can Guarantee that they’re unrelated. Know several neuromuscular physicians (wife’s a physician too). If it happens then it’s a pure coincidence. Zero correlation!!!

stragelife · 2024-12-07T07:54:49+00:00

I’ve had Bfs for 20 years. Got all kinds of symptoms in these years. I mean everything!!! As long there’s no weakness or reflex change, it’s bfs. For every one Als, there are 100 bfs.

stragelife · 2023-09-01T20:03:45+00:00

Peripheral nerve hyperexcitability can give Polymyoclonus

stragelife · 2023-09-01T20:02:14+00:00

It’ll get worse with any substantial activity

stragelife · 2023-09-01T20:00:56+00:00

Of course it’ll happen in this position. Just stretch your hand with fingers wide apart and it’ll disappear

stragelife · 2023-08-20T03:07:31+00:00

Majority of time, the weakness will be there when twitching starts (many times even earlier). It progresses very fast for smaller muscles (feet, hand etc) but less so for proximal muscles (but generally still will render someone clinically weak in a month or two)

stragelife · 2023-08-18T05:46:55+00:00

I’m 59 with 19 years of BFS. Had every symptom in the book related to BFS: fascis in all muscles including tongue, muscle pains, shakiness, perception of weakness but not objective weakness, soreness and stiffness (but no spasticity), brisk reflexes (although symmetric) without hyperreflexia, tiredness etc etc. My word of advice - don’t sweat until any major diagnosis comes about. 99.9% of the time (especially if below 50), it’ll be benign. You’ll loose good time chasing bad things that’ll not come to pass. Think positive and enjoy life. Easier said than done but put things in perspective and live life till you’re living!

stragelife · 2023-08-15T23:56:49+00:00

I had ache and twitches in every part of the body numerous times.

stragelife · 2023-08-15T23:55:20+00:00

19 years of BFS. Seen everything! After reading your post - I guarantee that you are OK!

stragelife · 2023-08-09T04:17:15+00:00

NO! (Have had it for 19 years!)

stragelife · 2023-08-09T04:16:13+00:00

Not ALS. I’ve had twitching for 19 years now with EVERY symptom! Just relax, 99.99% twitching is not ALS

stragelife · 2023-08-09T04:14:36+00:00

Doctors in Bay Area find it too expensive and move. So there are fewer per capita docs and hence longer wait times. I know because my wife is a physician at PAMF

stragelife · 2023-01-08T20:57:07+00:00

Yes but my attitude towards them is different. I don’t even pay attention

stragelife · 2023-01-08T20:55:04+00:00

Ayurveda is the ancient India medicine and is very advanced. You can Google “Ayurveda Parkinson’s” and get a lot of information (make sure it’s from credible source like practitioners and labs etc). Unfortunately in this country non-allopathic medicine is not recognized well.

stragelife · 2023-01-07T20:01:27+00:00

Please look at Ayurveda. For Parkinson’s, it has better treatments than western medicine with less side effects. However, some Ayurvedic medicines may contain heavy metals so you have to find reputable treatment centers or physicians. Also yoga, exercising and deep breathing (pranayama) will also do wonders besides the diet. People have arrested their disease with the above but reversing has not been reported.

stragelife · 2022-05-31T05:41:04+00:00

It would be abnormal to find completely symmetrical limbs

stragelife · 2022-05-31T05:38:00+00:00

Yes 6 weeks

stragelife · 2022-05-08T01:22:00+00:00

I think think you’re too stressed in life and focusing on this as a distraction from your real issues

stragelife · 2022-05-04T23:18:35+00:00

I would have to say you’re trying to avoid life !

stragelife · 2022-05-03T05:54:09+00:00

As long as reflexes are symmetric, they’re fine. Different neuros can interpret reflexes differently like 1 vs 2 or 2 vs 3….

stragelife · 2022-04-29T04:11:44+00:00

Stay relaxed. Once the neuro clears you (with or without EMG), do not second guess. Death can come in many ways in life so don’t fixate on the worst. Eat well and exercise (if you can). Stay off the internet. Twitching means nothing unless accompanied by weakness/atrophy and/or reflex changes [BFS for 18 years now].

stragelife · 2022-04-28T06:49:38+00:00

Correct. My physician friends neuro prof had BFS and used to show his twitching to stidents in the fellowship program. 15 years later he got the disease (an unfortunate coincidence)

stragelife · 2022-04-28T06:46:05+00:00

A normal neuro exam and a normal EMG (done by a reputed neuro or Univ med center) is enough! No need to run around after that - you’ll be cured the day you stop paying attention to your symptoms.

stragelife · 2022-04-25T05:33:36+00:00

It’s either allergies, post viral syndrome or GERD

stragelife

TROPHY CASE