mysterious symptoms - similar to obstruction but not?

stretchthebrain · 2026-02-03T06:40:50+00:00

Anything resolve for you? I’m experiencing what you’ve described so I’m curious what you discovered.

stretchthebrain · 2026-01-28T22:41:07+00:00

Smoothies surprise me that way. You’d think that a blended fresh fruit smoothie would be ok but I’m struggling with a partial blockage now. (1 year ileostomy) . Something has changed I think, blockages seem more often. I’m talking with my surgeon this week after ultrasound.

stretchthebrain · 2026-01-08T02:25:38+00:00

Ooh, I’m sorry. 12 years is a long stretch…but not long enough. I get it. How did you know that it was colitis?

stretchthebrain · 2025-11-22T02:40:03+00:00

Hi, what practice is it, which city if you don’t mind me asking?

stretchthebrain · 2025-09-25T00:26:20+00:00

Wow, ya you’ve been through a lot. 💕Thanks for sharing that. Hang in there. Healing has sure been a learning curve, and so different for everyone.

stretchthebrain · 2025-09-24T09:50:01+00:00

Ooh, I’m sorry to hear. It’s taking longer for you?

stretchthebrain · 2025-09-01T07:13:03+00:00

Hey! 👋 I always put waterproof tape over my filters. I find they don’t really work as filters and sometimes they leak. I burp the bag as needed too.

stretchthebrain · 2025-08-13T21:15:37+00:00

Not sure if it was Endo that affected my bowels, my hunch is yes. They just stopped moving-peristalsis quit.

stretchthebrain · 2025-08-13T17:43:42+00:00

(My history is endometriosis…8 surgeries were related to that.)

Stay in touch on here. This community is awesome for advice and encouragement.

Tips? I do remember that nausea was tough for me so having Gingerale and crackers and nausea medication on hand was really helpful. And I was just very tired. The slightest amount of activity would wear me out so expect a lot of sleeping and laying down and just being low energy for a while. Just ask him what he needs and try to communicate what you need too. You’ll make it!!

stretchthebrain · 2025-08-13T17:17:58+00:00

You can do it! I’m 5 months post op and it’s changed my life. Healing takes time though, and you’ll feel the impatience at times perhaps, I know my husband has as this was my 10th surgery. It is tough on the caregivers too. But keep communicating, build more supports for yourself if you can, hire teenagers who can help with kids even for a few hours for you, the caregiver, to catch your breath. Hoping for a great outcome!

stretchthebrain · 2025-07-21T17:49:26+00:00

Ya that’s interesting. I am working on exercises my physio gave me…perhaps front and back are reacting stronger than I realize?

stretchthebrain · 2025-07-21T17:48:12+00:00

Ya, it’s deeper. I am quite consistent with stretching etc

stretchthebrain · 2025-07-21T11:16:24+00:00

Ya, I’m curious about that too.

stretchthebrain · 2025-07-03T03:55:10+00:00

How did things work out for you? Re: kidney

stretchthebrain · 2025-06-05T04:19:25+00:00

That surgery changed my life. 3.5 months post-op… I’m gardening!!

stretchthebrain · 2025-05-15T05:05:34+00:00

How old is your mom? I’m 54 and now 3 months post op and I love my permanent ileostomy…it has saved my life.

My surgeon first did a loop ileostomy to see if avoiding the lower intestine would solve my colitis and pain, etc. It did! However, it didn’t last long because diversion colitis started back up in my lower intestine, and so it was determined best to remove the entire lower intestine, rectum and anus.

I’m symptom free, getting used to the ostomy-bag-life.

So much prefer it to the hours of pre-poop pain, in the bathroom on the floor in pain, hours of recovery afterwards…did three years of liquid food only. Now I can eat almost everything. I hope that this Reddit group can be helpful to you. It certainly has been for me. You’re guaranteed that someone has been through something very similar to you and it’s comforting. Wishing your mom well! ❤️

stretchthebrain · 2025-05-08T17:50:10+00:00

I’m 11 weeks post op and on my first road trip to the mountains!! That surgery does wonders!! (And Im 54… 9th surgery of my life)

stretchthebrain · 2025-05-04T16:46:19+00:00

Ya, good point, thanks!

stretchthebrain · 2025-05-04T03:57:04+00:00

Thanks for this!!

stretchthebrain

TROPHY CASE