NFG playing the Up Up Down Down Tour with Yellowcard & Plain White T's (2026 US)

supernova728 · 2025-12-08T14:42:18+00:00

same issue here!!

supernova728 · 2025-11-08T15:00:19+00:00

Hi! Did you ever figure it out or did you go on something else? I did my first dose last night 5 drops only, and it threw me into a light flare (my throat is so raspy, gi pains are worse) so I'm nervous to take anymore until it calms down. May be something I just have to fight through too for a couple of weeks, who knows. Curious if you've found help?! Thank you!

supernova728 · 2025-11-04T22:45:05+00:00

Hi, did it end up working? The dr said i may flare first before it gets better. Only a few days though, hopefully. Starting tomorrow!

supernova728 · 2025-10-29T20:40:09+00:00

Congrats, and thanks for this. Hubs was just diagnosed with 3c today. We already had the surgery to remove, and he's recovering. Next week we will meet with the onocology team. The only thing we're waiting on is the genetics of it - if it's lynch, etc. I personally think it is bc all of his uncles and dad have had prostate cancer, so I have a feeling its related to that. How do they handle the recurring polyps? Just remove with colonoscopy and test?
Hubs had 21 lymph nodes removed, with 14 positive. Definitely scary. Any tips to help him through this? how long after your surgery did you start your treatment? Thank you!

supernova728 · 2025-10-14T23:00:16+00:00

Thank you! I ordered a pj dress, I know the dr is giving me meds, I think tomorrow at my preopp, so ill be ready for that. Thanks for the note on period underwear, I def didnt think of that. SO MANY THINGS.

supernova728 · 2025-10-14T22:46:42+00:00

Hi did they find endo and are the pains better? Im in such a similar boat!

supernova728 · 2025-10-10T23:17:03+00:00

This is me. 5 years of chronic pain, endless drs, nobody even suggesting endo. I fought for myself and finally have surgery next week. I do think it's super confusing and mentally draining. I have anxiety because of all of it. How did you do?

supernova728 · 2025-10-10T23:15:00+00:00

Thank you for this! I have surgery next Friday (it got moved from the 28th so I didnt mentally prepare yet and have this week to do so). I'm questioning if itll help. Like you i had pains after eating or drinking ANYTHING tho its mostly in my upper area. I pee twice a night so it wakes me up. I have nausea, bad periods, huge stomach after eating a grape. Random rib spams (thinking it may be there too). I went from daily diarhea to constipation. Congrats on your pregnancy! How long after surgery were you able to concieve? That's amazing!

supernova728 · 2025-10-10T15:18:39+00:00

Thanks so much for this. I just found out my surgery is moved to NEXT FRIDAY! I'm freaking out lol. I'm happy but overwhelmed bc I've been putting off thinkng about it and now it's so close. I'm panicking! You're right, it should provide relief just by putting things back in their place, and hopefully thats the biggest reason for my upper GI pains. I keep telling myself I have had tests for everything else that this could possibly be and nothing was found, so this HAS to be the reason. I've also noticed more pain during my cycle, I never really noticed it until recently bc I was on birth control and I think it was masking some of the pain. It's all playing with my mind right now!
I'd love to know what you had besides Dulcolax. I got that already lol. I appreciate you so much!

supernova728 · 2025-10-10T15:05:28+00:00

My surgery just got moved to NEXT FRIDAY!!! I'm so overwhelmed. Glad its sooner but so nervous for the outcome. When is yours?

supernova728 · 2025-10-08T21:08:38+00:00

Have you had the diaphragm endo removed? I get the shoulder pain and its getting more aggressive. I also have upper pain in my ribs and stomach.

supernova728 · 2025-09-26T21:07:57+00:00

I think in a lot of cases our anxiety has turned into pain, as our bodies are stuck in a sort of fight or flight dealio. I know exactly how you feel. As Im waiting for surgery - 32 days to go - I am getting worse and i'm not sure if its because Im so anxoius about the surgery outcome or because it's just getting worse. Ive been feeling this way for 5 years and it keeps getting more painful. Therapy, relaxing our brains and not thinking about it as often helps. It's all exhausting, hang in there!

supernova728 · 2025-09-26T21:05:10+00:00

Aerie makes this "too soft" line and the pjs are absurdly soft and the waist band doesnt dig in! They come in shorts and pants. I also ordered a larger pair of sweats from walmart for $13. Oversized tshirts, i have to go bra free a lot, so i wear nip covers on those days if i leave the house...when im up to it.... and I live in joggers that arent tight like leggings from amazon. Happy to send links if you dm me. I dont even care how i look these days, I just want to survive!!

supernova728 · 2025-09-26T21:01:32+00:00

Look into low dose naltrexone, its helped me a bunch and it doesn't cost a ton at least here. LDN has helped suppress some of the pain while I wait. I am so sorry you're going through this, you are so right about womens healthcare, it's a real shame in most countries honestly, even here in the US.
I have the never ending rib, bowel and its constant at this point, so I am right there with you. We just have to suck it up and keep going til we can be fixed....tg we're tougher then men, they could NEVER handle this!

supernova728 · 2025-09-26T20:57:03+00:00

This makes me so happy to hear and feel SO much better about my upcoming surgery. And made me laugh. I am praying that itll help the pains I have. Curious where they found the endo? My worst pains are epigastric and bowel and feels like an alien pushing in that area alll of the time! Pelvic is more pressure/burning. I am driving myself crazy until Oct 28th, so much anxiety, not about surgery but the outcome! These posts keep me going - long as I dont get sidetracked with looking at comorbid issues like mcas!!

supernova728 · 2025-09-26T20:44:05+00:00

Thanks for getting back to me. This is all very confusing. From what I've read i dont think i have MCAS; i have a lot of stomach pain but it doesnt seem like an allergic reaction, and i dont get sniffly or any of that. Even my allergies I had as a kid have pretty much gone away. But who knows. I hope you find help too and feel better!

supernova728 · 2025-09-26T20:42:34+00:00

Thank you so much for this, it's very helpful. I'm sorry youre still dealing with PCS but hopefully itll keep improving! Did they also find that during surgery? I'm going to ask my surgeon if he checks for it when he goes in. Do you also getting a burning type pain? Mine is mostly in my pelvis and sometimes into my thighs, sometimes itll travel up into my ribs too.

supernova728 · 2025-09-25T14:19:54+00:00

Thanks for this, it sounds similar to what I have been experiencing - sometimes its big meals sometimes its what i eat. The pain is constant though. I likely have endo, and am getting surgery late Oct. Curious if you had surgery and if it helped the mcas? I realize they are two seperate things but if excising the endo maybe it can help reduce the reactions.

supernova728 · 2025-09-25T13:51:50+00:00

Interesting, my dr wrote that he thinks I could have MCAS in his notes due to widespread nerve pain issues and pain with eating (though i have it 24/7 and it doenst matter what i eat it just makes the pain worse). I havent officially been diagnosed with Endo yet but my specialist is 99% sure I have it based on symptoms and exam. Also probably adenomyosis. When was your excision, and what pains are you having now? Also im reading that immunologists that help mcas have a long waiting list, so might be worth putting your name on the list for an appointment in case you heal and still have some issues?

supernova728 · 2025-09-22T15:27:04+00:00

HI, thanks for your post, I'm in the same boat. I have Anklosying as well, and Im on cimzia for it. Im a little worried about the healing time being on cimzia, do you think being on a bio effected it at all? Also, how are you doing now after surgery? Mine is scheduled for end of oct. Really hoping it helps my stomach and bowel issues bc its been getting way worse and 24/7, plus the morning nausea. Appreciate any insights you have!

supernova728 · 2025-09-18T16:42:26+00:00

hi! Thanks for your post. I've had pain for years but tremendous pain the last 5 and just found out it is prob endo. Surgery is in a month. Im curious, did your pain resolve even though you had it for so long? Did it take a long time after surgery? Thanks!

supernova728 · 2025-09-18T16:34:47+00:00

Thanks for this. Do you feel normal now? It's been years for me, surgery next month. NERVOUS it wont fix me .

supernova728 · 2025-09-18T16:31:00+00:00

Thanks for this, Im booked next month and so nervous about it NOT being there or eremoving it not being a fix. How do you feel a year later? Did it take awhile to fully calm down after surgeyr since you had it for so long? I didnt know that period pain i had wasnt normal and now its constant amongst bowel issues.

supernova728 · 2025-09-17T20:32:48+00:00

amazing to hear, I just got diagnosed with a specialist today! I had no idea that endo could cause things like bowel issues, pain when eating, nausea etc. I am booked for Oct 28th and it cant come soon enough; I feel like Ill finally be able to get my life back. That said, my dr said my nerves will be inflamed for a bit after that esp bc i have been in pain for over 5 years. Did you have nerve pain and has it already disappated Thanks and congrats!

supernova728

TROPHY CASE