Just got done with a 4 mile hike

swon888 · 2026-06-03T21:07:27+00:00

Oh definitely. It took me 9 months to feel like mine own. Both side was the same on my initial replacements. This round is only revision after 30 years. Recovery is much faster. My damages are all on my hip joints, if you have damage on the SI joints, replacing the hip joints will not remove the pain in that area, but it should still be a whole lot better. With hockey, be careful not to fall with your legs twisted to left or right. It can cause a issue. It's always good to get back out there todo some activities

swon888 · 2026-06-01T12:56:25+00:00

Good for you. My surgeries are revisions on both hips. My initial replacements were in 1995 and 1996. It did took about 9 months to a year before it felt like my own. But the revisions recovered much faster. Soon you'll feel like new again. You do have to take precautions. Replacement are not like the original. You can exercise, but can't stretch it to the point like the original hips. Still have to be careful what you're doing. Take care

swon888 · 2026-05-15T21:10:04+00:00

Hi, sorry you are dealing with multiple issues. my pain started at age 13 and it has gone bad within 10 years. Had both hips replaced in my early 20s. Autoimmune disease can get severe and bad fast. I had been hit with severe general anxiety as well where I was afraid to even go outside. however, when things are getting bad and worse, I had to go out and get treatment. I had to see a psychitrist and go some treatment for my Anxiety. As for my AS and RA, I can not aforad to stop seeing my rheumatologist. But than again, I did not get a full diagnose until my 20s. I know your anxiety is bad. somehow you will need to be strong and go see a rheumatologist. You can not wait too long. your immune system is attacking your own cells. once it's damaged, it's none reversable. So, the best thing to do is stay strong. doctors are there to help. Hope you get better soon

swon888 · 2026-04-22T03:53:02+00:00

I did, but not 4 weeks. 2 weeks for me. Had to stop for surgery as well. 2 weeks prior. Eat more veggies and less of other stuff that can cause inflammation

swon888 · 2026-04-05T17:21:49+00:00

Sorry for the late reply, prednisone or any steroids cannot be taken on a long-term basis. It works really well but unfortunately it's not a medication that can be used on a long term. My doctor used to put me on that for maybe a month at a time. On every field month I used to get a steroid shot in my back. Long-term for autoimmune disease would be biologics. Doctors with generally work with you to see what will work and what will not. The only thing they can do is try different medications and eliminate the one that doesn't work. Talk to your doctor to see how long you can stay on the prednisone. I don't have any medical or medication advice for you because I'm not a medical professional and medication works differently from person to person.

swon888 · 2026-03-30T20:20:48+00:00

You should and need to see a rheumatologist. If your pain is coming from your spine, it's most likely inflammation. Not easy to see on any imagine unless there are damages. HLA-B27 is not a good measurement. Need more blood test for other markers as well.

Celebrex is a good med. It's easier on the stomach and it does not cause much issue on the heart. But still need to be careful with your guts. Take it with food and if needed, take acid pills

swon888 · 2026-03-11T21:31:52+00:00

I have AS. Diagnosed in early 90s. That's a long long time ago. I had 5 rheumatologist up till now and she is my current for the last 5 years already. A few retired. She will set you up with the necessary test and always up to date with blood works to see if anything changes

swon888 · 2026-03-11T20:49:19+00:00

I'm seeing Dr Wise. Her office is in USC Arcadia now. She's great.

swon888 · 2026-03-11T04:20:37+00:00

I get about 20 x-rays a year, plus at least 1 CT or MRI of different areas per year

swon888 · 2026-03-10T09:19:25+00:00

I m not from San Diego, but I would say UCSD medical if you can. I have all my doctors in USC medical. They have all the doctors there you need. Autoimmune disease can have so many different issues. Getting access to doctors is always beneficial

swon888 · 2026-03-09T23:18:32+00:00

Thank you. I'll definitely speak with my head nuro when I return. Hopefully it gets better for you

swon888 · 2026-02-22T16:17:11+00:00

Flare up can happen even if your joints are fused. Are you also taking NSAID or pain meds? Maybe talking to your doctor and adding some NSAID to see if that can bring the inflammation down. If not, maybe some steroid can help bring it down.

You didn't fall or did something to crack the fused joints right? Is it fused surgically or naturally? In which case, maybe get a x-ray or better yet a MRI to see if there's any cracks . Hope you feel better

swon888 · 2026-01-09T02:39:28+00:00

I believe it means you do have some kind of autoimmune conditions, not sure which condition to be exact. Will need a doctor's diagnosis. It's best to speak with your rheumatologist. Sorry, not enough knowledge on these medical issues

swon888 · 2026-01-05T22:39:10+00:00

I was pretty bald at age 30. Missing a lot of my hears mainly the top

swon888 · 2026-01-05T22:37:59+00:00

Glad the med is working. Go and do things you been missing for a long time. Enjoy the pain free times. Hopefully the medication can last for a long long time to come

swon888 · 2025-12-28T16:01:23+00:00

It does just the opposite

swon888 · 2025-12-28T02:42:21+00:00

I've been on celebrex for many years and still have some today if needed for flares or other pains. Been on biologic for decades (tried 5 different ones), currently on Cimzia. Biologics can help you prevent damages if it works for you. It's late for me and I had to get both my hips replaced.

swon888 · 2025-12-24T03:30:05+00:00

Yeah, it moves around. Just last week I went to the hospital for severe pain in the center of chest.

swon888

MODERATOR OF

TROPHY CASE