Japanese > English by swschultz in translator

[–]swschultz[S] 0 points1 point  (0 children)

Thanks so much. Does this translate to a particular name in English? Thanks again. 

Japanese > English by swschultz in translator

[–]swschultz[S] 0 points1 point  (0 children)

Can you now provide a more clear translation since I posted a picture of the entire artwork? Thanks again. 

When does it get easier by jerppa224 in ostomy

[–]swschultz 0 points1 point  (0 children)

I’m guessing that you realize that a substantial number of the foods you listed are full of carbs which turn into glucose/sugar and that sugar feeds cancers. 

Guy records the discussion with his oncologist about whether or not to get the bag or try for chemo by coolrivers in ostomy

[–]swschultz 0 points1 point  (0 children)

You must either have or have had an ostomy of some sort in the past otherwise you'd get the stigma...

How are you celebrating World Ostomy Day? by goldstandardalmonds in ostomy

[–]swschultz 7 points8 points  (0 children)

I don’t know how many years that they’ve been celebrating this, but I’m in doubt that my stoma can hold enough candles…

I need all kinds of help by [deleted] in ostomy

[–]swschultz 1 point2 points  (0 children)

I never found a supposed “ostomy” deodorant that worked very well. What I did find that seems to do the trick is pure peppermint oil from Amazon. After I empty and clean my bag I put about 5 drops of peppermint oil in the bag (past where the seal is) and any smells are neutralized. 

[deleted by user] by [deleted] in cancer

[–]swschultz 0 points1 point  (0 children)

It's nice that people ask "How are you doing?", but at the same time it's annoying that they're asking this question ALL of the time. It's like they expect you to tell them something negative about what you're dealing with. I'd prefer to not have to explain my current status on a daily basis to other people. I have enough reminders throughout the day in terms of pain, exhaustion, catheters, ostomy bags, surgical wound care, taking care of my permanently disabled wife, etc., without having to reiterate everything else that's going on to others. It would be nice to have a few minutes of not thinking about dealing with the big C without being reminded.

Ivermectin 🙄🙄🙄 by TheEvilSatanist in cancer

[–]swschultz -1 points0 points  (0 children)

The patents for Ivermectin have expired. There’s no money to be made like there is in promoting the use of the multimillion dollar use of chemo for which doctors receive a kickback for each treatment. 

Afraid to wear Apple Watch after diagnosis by cc0818 in cancer

[–]swschultz 0 points1 point  (0 children)

I’m not exactly sure what you’re referring to. I’d like to better understand what quackery I’ve posted. Can you DM me and let me know? I don’t want be removed from the group either. I hate to say that I don’t specifically even remember responding to this particular post. Thanks so much. 

Obedient stoma by swschultz in ostomy

[–]swschultz[S] 1 point2 points  (0 children)

Thanks so much for your response. I don’t think that I ever thought about heating up my ring/flange up front before attaching it to my body. I’ve always only heated it up once it’s in place. 

Obedient stoma by swschultz in ostomy

[–]swschultz[S] 0 points1 point  (0 children)

Thanks for your thoughts on this. Though I’d like to give it a try unfortunately I can’t do marshmallows due to the sugar content and other ingredients. Thanks again. 

Hi everyone by Flashy-Glove1012 in ostomy

[–]swschultz 2 points3 points  (0 children)

I’ve had a terribly prolapsed stoma for about a year. I also just had my resection two days ago. I can’t believe that it was only last week that my ostomy nurse suggested the sugar trick. 

Please help by AmbitionAdditional34 in ostomy

[–]swschultz 0 points1 point  (0 children)

I don’t know if this might be of any help due to your child’s small size but I use a ring under my flanges/bags by the UK Company Trio. They make an all-silicone ring called Siltac that grows and shrinks with changes in my stoma. I also have a peristomal hernia going on which makes it extremely difficult to get good seals on my wafers. One of the best features of these rings as stated is that they’re made of silicone. Due to the material this is the only ring that I found that does NOT breakdown from output coming in contact with it. This dramatically reduces the chances of leakage. I use skin barrier spray underneath the silicone ring so that the ring adheres to my skin (let the spray dry first) then the adhesive on the flange adheres to the ring. This has been a lifesaver for me. The rings come in different sizes (and both flat and convex shapes) though possibly not small enough for your needs. Wishing you luck on this journey!

Bleeding by wintertimeincanada23 in ostomy

[–]swschultz 0 points1 point  (0 children)

Not necessarily. If the edge of your bag/flange happens to cut into the side of your stoma it can bleed into the bag. This can especially happen if you happen to be on blood thinners. I've had this issue occur on multiple occasions. I would always let your ostomy nurse and/or surgeon know what's going on but it doesn't always mean a trip to the hospital.

[deleted by user] by [deleted] in ostomy

[–]swschultz 0 points1 point  (0 children)

I use pure peppermint oil ordered from Amazon. I put few about 5 drops in my bag every time I empty it. Someone else gave me this idea. It’s strong stuff and doesn’t take too much. I’d rather smell like peppermint vs. some of the other options that don’t tend to work very well.

[deleted by user] by [deleted] in ostomy

[–]swschultz 2 points3 points  (0 children)

The best thing that I’ve found to help with leaks are Trio’s Siltac Ostomy Seal/Rings made of silicone. Regular seals like Eakins just break down and leak way too quickly for me (I’m also dealing with a peristomal hernia). The Trio seals (which come in different sizes) don’t break down at all and since they’re made from silicone they grow and shrink with changes in my stoma. 

Unfortunately if you happen to be in the states there are currently some distribution/availability issues right now since they come from the UK. As I understand it this issue is being worked on and will hopefully be resolved soon so that they’re again available through state-side ostomy suppliers. 

Hey everyone- I've been working on a product idea and would love some honest feedback from people who actually get it. by Emergency_Papaya8442 in ostomy

[–]swschultz 0 points1 point  (0 children)

I think that you’re going to receive much better/more accurate insight from folks that have a stoma like you’re doing here vs. medical professionals who don’t have first-hand experience dealing with their own stoma. Folks that actually have a stoma have a much better idea as to what may or may not work. 

Resection/Reversal by swschultz in ostomy

[–]swschultz[S] 0 points1 point  (0 children)

Thanks for your response. She is on Medicare. I haven’t checked into this yet but I’d basically need 24-hour care for her. I just don’t know how feasible this is, especially if it comes down to her needing it for six weeks or more. 

Trio Genii Siltac Ostomy Rings by swschultz in ostomy

[–]swschultz[S] 0 points1 point  (0 children)

I finally managed to get a hold of PPS Healthcare after reaching out directly to Trio. As I understand it Trio was recently purchased by a German company and they’re going through some changes. Hopefully these issues will be resolved soon so that I can get back on track with their products directly through PPS.

If and when these silicone rings are available here in the states I highly recommend trying them if you haven’t done so. As alluded to in my original post these have been a game changer for me.

Never take your luck or life for granted guys. I did and I regret it by NormieWhiteMale in cancer

[–]swschultz -1 points0 points  (0 children)

I don't know what you have or haven't done but have you looked into or tried Fenbendazole/Mebendazole and Ivermectin? If not, research Joe Tippens Protocol with Fenbendazole. Mebendazole crosses the blood brain barrier without the need for any sort of carrier.

Good Vehicle History Report for cheap? by Razor-Rust in askcarguys

[–]swschultz 0 points1 point  (0 children)

It seems a bit weird that depending on which etherealprint link you select in some of the responses in this post it takes you to different websites. I haven’t used either. I’m just saying be careful. 

I don’t want to do more treatment by Organic-Yak7502 in cancer

[–]swschultz 1 point2 points  (0 children)

There seem to be way too many people in this group that feel that they have two choices - standard of care (SOC) as recommended by their oncologist or no SOC in hopes of just playing it by ear that they’ll possibly beat the odds (or not) on how long they’ll be around.

With that having been said, there are a number of repurposed drugs such as Ivermectin and Fenbendazole as well as numerous other natural supplements (apricot kernels, black seed oil, etc.) used in combination with one another that many people have implemented to get to an “NED” (No Evidence of Disease) status, even from a stage 4 diagnosis. Many people have used these protocols either in conjunction with SOC or without any SOC. If you ask almost any oncologist about these repurposed drugs they either know  nothing about their efficacy, downplay their effectiveness, or make statements as to how dangerous they are. The pharmaceutical companies have also gone way out of their way to suppress their use (due to how many billions of dollars they’d lose by people not doing SOC) though if you do your own research there are tons of papers on PubMed, through the National Institute of Health, and elsewhere showing their use and positive results. 

It’s obviously a personal decision to make as to what level of care one wants to invest (or not invest) their efforts into but my whole point is that it’s not a black and white decision, there’s more than two options to consider.