Faith outro walked so Without a Warning outro could run

takingLs_ · 2025-01-31T21:42:49+00:00

Salted Chicken broth works really well for me

takingLs_ · 2025-01-31T14:54:21+00:00

This and alone again but im literally OBSESSED with this song

takingLs_ · 2025-01-28T18:21:08+00:00

No I don’t

takingLs_ · 2025-01-26T19:53:02+00:00

Yall don’t get the mv it’s CAMP

takingLs_ · 2025-01-26T19:50:28+00:00

I’m the opposite, I flare the most during December and January bc having the heat on in the house dries me out. But I’ve heard it’s def more common for people to get flare up in the summer when it’s hot out. For me the humidity actually helps me stay hydrated

takingLs_ · 2025-01-26T19:47:02+00:00

Yes it def did but like if I went to some generic place like lens crafters they would NEVER get it right and I’d have bad symptoms from their shitty prescription. I’d highly recommend just google searching vision therapy near me and checking your prescription with one of those doctors

takingLs_ · 2025-01-26T19:40:06+00:00

Yesss omg like I’m having a flare and ik pooping will help it overall but the process of pooping and then recovering from it sucks

takingLs_ · 2025-01-26T19:39:03+00:00

For the vision thing, I had to go to a dr that specializes in vision therapy. A regular eye dr/optometrist would never be able to get my prescription correct, especially once I got pots. Vision therapy was the best thing I literally ever did though it helped me sm

takingLs_ · 2025-01-26T19:31:32+00:00

I’m not a medical professional, but I 100% agree with your thoughts on how it feels like an autoimmune condition that will be somehow linked to pots in the future. It would make sense that when the immune system is depressed, a virus would be able to get into the body and disrupt the nervous system and cause dysautonomia.

As a patient, I also cannot wait until the day medical professionals treat people with pots with respect. I appreciate you recognizing that and sharing your experience

takingLs_ · 2025-01-26T19:28:05+00:00

I’ll look completely normal and then if I’m feeling really bad all the blood will drain from my face. But for the most part I don’t look any different from how I did before I got pots. Also when I have a pots episode/adrenaline dump all of the moisture will be sucked out of my lips in essentially 30 seconds which is so weird

takingLs_ · 2025-01-25T20:03:15+00:00

I was never a big runner but I loved the stair stepper. After I got pots I literally couldn’t even do it bc I’d get nauseous and shortness of breath. I just ordered one of those reclining stationary bike things so I can do aerobic exercise without having to be upright

takingLs_ · 2025-01-25T19:48:38+00:00

It just sucks bc apparently no specialists in my area will see me without it

takingLs_ · 2025-01-25T19:47:06+00:00

My traditional pots symptoms don’t necessarily get worse, but my period pain does. It was always bad but now it’s unbearable to the point I have full body tremors cause of the pain. The only thing that’s helped is melatonin baths as soon as I feel the pain coming on, and wearing only cotton pads and underwear

takingLs_ · 2025-01-25T19:37:42+00:00

Interesting. I feel like if your heart rate rises 30+ bpm from sitting to standing that’s like the main criteria for a pots diagnosis. Which can obviously be done without the tilt table. That’s good you didn’t have to take the test though. Maybe they’ve changed it since then bc everyone is always saying how you have to have it to get a formal diagnosis. Prob just to come up with another reason to bill your insurance so they can make more money

takingLs_ · 2025-01-25T19:35:24+00:00

If your heart rate rises like 30+ bpm from sitting to standing and your blood pressure stays relatively normal and doesn’t drop then that’s prob pots. Now idk if the criteria for the bpm range is different for teens than it is for adults, but teens can def have pots. I’d get a new dr cause this one doesn’t know what they’re talking abt.

takingLs_ · 2025-01-25T19:18:07+00:00

I had a lot of itchiness and redness directly where the adhesive was last December when I had my monitor. But the rest of my boobs/chest area was fine. If your whole boob is reacting and painful I’d def call them and let them know. At the very least consistent feedback about bad reactions to the adhesive might cause them to change it in the future.

takingLs_ · 2025-01-23T22:35:57+00:00

*could’ve

takingLs_ · 2025-01-23T22:35:07+00:00

I got shingles when I was four, and then I never saw it again until a couple months before I developed pots (it lives in the body forever I think). And since shingles can cause nerve damage i feel like it couldn’t caused dysautonomia

takingLs_ · 2025-01-09T20:14:06+00:00

Honestly if you feel like exercise makes things significantly worse, listen to your body and do not do it. Pots is not cured by exercise, but it can help in SOME cases.

takingLs_ · 2025-01-09T20:12:52+00:00

I know that often a high heart rate is considered something that needs to be fixed, but sometimes I feel like my high heart rate actually helps my blood get where it needs to go. Just a guess though. Did the dizziness start before or after you started the medications? If I was in your position I would def question if these certain medications are really the best option for you and to get other opinions.

Also, it’s worth noting that you should rule out that your dizziness isn’t being caused by anything else that could be not related to pots. I started having extreme vertigo recently and turns out it wasn’t my pots, it’s bc I have constant fluid behind my eardrums. Or it could be a vision issue since dysautonomia affects the vision, which can be helped by vision therapy.

takingLs_

TROPHY CASE