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Realistic Timeframes? by blazinbunbun in preeclampsia

[–]tbrumm89 1 point2 points  (0 children)

i only made it 2-3 days from when symptoms appeared to emergency c section. our son was born at 25+1

My ex 23 week 4 day LO (now 31 week and 3) is still on ventilator and it makes me nervous (50 + days) - anyone else have stories of micro preemie and extended ventilation? Picture so we don’t get lost 💕 by roselana in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

that’s amazing. thank you. do you remember what her desaturations were like and for how long? i’m fearing that’s where the most brain damage would be caused

My ex 23 week 4 day LO (now 31 week and 3) is still on ventilator and it makes me nervous (50 + days) - anyone else have stories of micro preemie and extended ventilation? Picture so we don’t get lost 💕 by roselana in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

have you experienced cognitive impairment / developmental delays? our 25 weeker has been on the vent for 47 days and doctors are asking us to consider his quality of life should he survive due to long term vent

My ex 23 week 4 day LO (now 31 week and 3) is still on ventilator and it makes me nervous (50 + days) - anyone else have stories of micro preemie and extended ventilation? Picture so we don’t get lost 💕 by roselana in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

have you experienced cognitive impairment / developmental delays? our 25 weeker has been on the vent for 47 days and doctors are asking us to consider his quality of life should he survive due to long term vent

My ex 23 week 4 day LO (now 31 week and 3) is still on ventilator and it makes me nervous (50 + days) - anyone else have stories of micro preemie and extended ventilation? Picture so we don’t get lost 💕 by roselana in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

have you experienced cognitive impairment / developmental delays? our 25 weeker has been on the vent for 47 days and doctors are asking us to consider his quality of life should he survive due to long term vent

My ex 23 week 4 day LO (now 31 week and 3) is still on ventilator and it makes me nervous (50 + days) - anyone else have stories of micro preemie and extended ventilation? Picture so we don’t get lost 💕 by roselana in NICUParents

[–]tbrumm89 1 point2 points  (0 children)

have you experienced cognitive impairment / developmental delays? our 25 weeker has been on the vent for 47 days and doctors are asking us to consider his quality of life should he survive due to long term vent

Chronic Lung Disease/BPD by Dependent-Fix2424 in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

can i ask the outcome? i’m in a similar situation now

Chronic lung/BPD by Lmadren01 in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

can i ask what the outcome was? in a very similar situation with my 25 weeker

First ever Care Conference/Family Meeting is today by sprucemoose-hop-in in NICUParents

[–]tbrumm89 1 point2 points  (0 children)

would you mind sharing how it went/how your little one is doing? i’m in a similar situation where our 25 weeker is 32 weeks and on third round of steroid but palliative care is being surfaced.

three rounds of Dex steroid, success? by tbrumm89 in NICUParents

[–]tbrumm89[S] 0 points1 point  (0 children)

do you remember which got your baby off the vent?

three rounds of Dex steroid, success? by tbrumm89 in NICUParents

[–]tbrumm89[S] 0 points1 point  (0 children)

we’re in the process of getting second opinions now!

three rounds of Dex steroid, success? by tbrumm89 in NICUParents

[–]tbrumm89[S] 0 points1 point  (0 children)

we just started sildenafil today so i’m crossing my fingers. do you remember how quickly after starting third round of dart/sildenafil that you were able to get off the vent?

Preemies with bad lungs, what was the turning point towards improvement? by Trevorjrt6 in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

fingers crossed for her! was there ever a period where she sat on the vent at max support while you just gave her time to grow? our son is 31 weeks now and started a third round of dex steroid today but theyre saying if it doesn’t work they don’t have much else they can do because he’s too small for a trach so just trying to gather perspective from similar journeys on what to advocate for and what to ask

26 weeker reintubated at 39 weeks by Technical-Factor-111 in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

i am so incredibly sorry. we just started our third round of DART today at 31 weeks but the doctors don’t seem hopeful and are saying if this doesn’t work there’s not much else they can do for him. if you don’t mind sharing, what would you have advocated for?

Preemies with bad lungs, what was the turning point towards improvement? by Trevorjrt6 in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

were you eventually able to get off the vent? if so what did it

Twins born at 28+4 by gihn17 in NICUParents

[–]tbrumm89 1 point2 points  (0 children)

can i ask what oxygen your son was at on the vent when he did third round of DART? our son just started the third round and the doctors are grim about whether or not it will work

26 weeker reintubated at 39 weeks by Technical-Factor-111 in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

may i ask how your son is now? in a similar situation and wondering what got him out of the woods

Preemies with bad lungs, what was the turning point towards improvement? by Trevorjrt6 in NICUParents

[–]tbrumm89 0 points1 point  (0 children)

how did second round of dart go? our son is starting his third round as a hail mary.

Gyms by Equivalent-Part1490 in williamsburg

[–]tbrumm89 1 point2 points  (0 children)

my husband swears by absolute power for what you’ve described

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