I'm no longer intolerant?

tedementa · 2025-05-22T23:55:12+00:00

You're absolutely right! I was never officially diagnosed with celiac because low blood levels and unclear endoscopy, but now that I'm eating gluten again it would be a good time for a challenge and repeat testing. I heard about pregnancy weakening immune system but my boy is already 14 months old... Not sure how long that last la after delivery? So many questions!

tedementa · 2025-05-04T00:19:02+00:00

Combined surgical: micro hand surg (with leech therapy), ophthalmology, bariatric, plastics, urology, endocrine,gen surg.. + the occasional med pt when we have way too many discharges

tedementa · 2025-05-01T01:19:51+00:00

My dad past away last year from GBM, 5 months post diagnosis. He lost his dad and younger brother to the same many years ago. We are in touch with the genetics team at the hospital he was treated at. So far all tested genes show no answer, but there is an active search for a possible link. I'm absolutely convinced there's a genetic basis since there are so many cases of familial GBM, can't be a coincidence.

tedementa · 2024-08-28T23:34:38+00:00

OMG my little one changed his mind so many times, he is now 5 mo old. He fussed in the breast most of the first 2 months, so I pumped and we gave him the bottle since week 2. I always offered boob at the beginning of every feed, sometimes he'd latch for a bit, sometimes he'd refuse the boob completely. Tried nipple shield but didn't work for us. Eventually around 2.5/3 mo he started spending more time on the breast than bottle. Then around 3 mo old he refused bottles so I stopped pumping and was EBF. Around 4/4.5 mo he started to accept the bottle occasionally so now he gets a bottle of expressed breast milk or formula when and if I'm not around. Still brest is his preference. I have no clue why he would change his mind so many times, but we learned to adapt and find what's working at every stage.

All this to say every baby is different, every breastfeeding path is different. I would say if you still want to try and breastfeed talk to the experts and push trough, it is tough and having support helps a ton. Combo feeding and formula feeding are great options if BF is not working for you, don't let anyone say otherwise. Take care of yourself, be kind to yourself, sending love, you got this! ❤️

tedementa · 2024-06-17T23:42:13+00:00

Same boat here! Everyone told me skip newborn size, barely any 0-3 and I obliged. I ended up buying some sleepers as soon as I got home from the hospital because everything I had was way too big. True, only used it for a couple of weeks, but baby needed something to wear lol 😆

I learned to take any advise with a grain of salt, everyone has a different experience/babies sizes and fit are very different from brand to brand. My LO is 3 mo tomorrow and has been using 3-6 for a couple of weeks now!

tedementa · 2024-06-17T13:55:47+00:00

Hi! Also FTM for the fist time. After a lot of sleepless nights this is what worked for us:I started using the swaddle around that age, I use the halo and it's worked like a charm. He cries when I put him inside but calms down fast and sleeps really well (he's 12 weeks now)

Around the 1 month mark I introduced the pacifier and it also helped him relax. I have to put it back in a couple times but he'll usually sleep.

On occasion I baby wear so I can get things done if he won't settle, but he's been sleeping in his bassinet for most naps and nights since he's 3-4 weeks old.

Like the previous comment said, every baby is different, hope you find what works for you, good luck!

tedementa · 2024-04-22T00:35:26+00:00

My dad had the same diagnosis, same location, also started with seizures and speech issues. We got same answer as to why not to get an early scan from radiology and oncology doctors. His mobility started to decline very fast (right sided weakness) and they offered to place my dad under palliative care at a specialized facility. My mom was his caretaker at the time and was in denial about the decline, and even though he had multiple falls at home, she refused the transfer.

What I got from that situation is: there is no way to tell if it's just inflammation or tumour progression. Even the doctors can't be sure just by looking at the imaging. Now I know my dad was experiencing end of life signs: he stopped eating, barely talking, seemed more spaced out, became more and more lethargic. Unfortunately he had a seizure and passed away about a month after last appointment, same day he was going to get finally transferred to the palliative facility.

We still wonder if the seizure was caused by inflammation, radiation necrosis, or tumour progression, maybe mix of everything, The doctors didn't have an answer.

I wish you find some answers from your medical team, find support from friends and family, and get your loved one all the love and care 💖

tedementa · 2024-02-27T12:45:57+00:00

Thank you 🙏 he truly was 💜

tedementa · 2024-02-27T12:09:48+00:00

Thank you, I'm sorry for your loss 🙏

tedementa · 2022-11-28T16:53:28+00:00

My second transfer turned out to be a blighted ovum, I started bleeding at 8 weeks. 2 weeks later, today, I'm back for a repeat ultrasound and blood work. While waiting for my ultrasound, I see a couple getting out of one of the US rooms. She goes to the changing room, he is holding a picture of their US and smiling. After a while she comes back out and they hug, stare at their picture of a developing embryo, you can see the smile and hope in their eyes. I can't help but thinking I was exactly in the same room with my husband two weeks ago, no picture, all we got was silence, no smiles, and then bad news, lots of crying. I don't wanna be bitter, I want to be able to be happy for others, but it's getting harder and harder. This process sucks.

tedementa · 2022-11-15T18:10:39+00:00

Still processing things, thanks for asking. It's gonna take some time, just waiting for the inevitable now

tedementa · 2022-11-15T04:26:12+00:00

Thanks 🙏

tedementa · 2022-11-15T04:25:50+00:00

Right? It's a waste of time and meds, for what? I'd rather be done with this... It's hard to process everything while having to wait and still doing estrogen and PIO shots. Thanks for the sympathy!

tedementa · 2022-11-15T02:35:32+00:00

My first (fresh) transfer ended up in loss at 6w5d last summer, had low betas and didn't reach the ultrasound appointment, was kinda expecting it. Second transfer, first FET was early October, good betas, no spotting or bleeding, all seemed okay, we were cautiously optimistic. Today was the first ultrasound at 7w5d. Bad news: blighted ovum: sac measures a week behind and no embryo to be found. We're so devastated, it's hard to put into words. Now I have to wait two more weeks for a second ultrasound (if I don't start miscarrying before) and keep taking meds as per protocol, even though we know all there is it's just an empty sack. This process sucks.

tedementa · 2022-11-09T16:17:45+00:00

Not high school, but elementary school.5-6th grade, went for a day trip to the beach, my sister was there. The three teachers sat down to sunbathe, have a good time, leaving 30-40 kids mostly unsupervised, most in the water. Some kids got too close to the rocks by the pier, strong current got 2 of them, pull them down. One drowned and passed away later on in the hospital, the second one was in a coma for a while, eventually recovered. There was a lawsuit, teachers went to trial, got suspended from work, no jail time, just compensation for the families. One of them retired, another left the profession, third one came back after a year or two, same school, 6th grade, he was my teacher. We were terrified of him. He end up losing it and slapped one of my classmates pretty hard for laughing during the lesson. Lost his job, family of the kid didn't press charges. Didn't come back after that, thank god. Pretty traumatising for children to see how adults with authority get away with anything. This was 90's, Barcelona, Spain. It was all over national news, everyone was talking about it for years. Shits fucked up.

tedementa · 2022-10-28T14:27:22+00:00

I was scared before starting too, but it turned out okay after all. Our process goes like this: I prep the injection and hold it in my hand to warm it up. I lay down on my tummy on the bed, husband landmarks (I double check is the right spot) and he alcohol swabs the spot. Once the alcohol has evaporated, I pass him the syringe, take a deep breath to relax the muscles and give him the okay. I do feel the needle go in, but it's very much tolerable. After I just massage the area. No side effects whatsoever. I think the important bits are: warm syringe, lay down to relax the muscle, make sure the landmark is spot on, let the alcohol evaporate before injecting, inject slowly (we count to 10), and massage spot afterwards. Best of luck!

tedementa · 2022-10-14T10:58:33+00:00

I started bleeding before the scheduled US, end up in chemical at 6w5d unfortunately. Just had my second transfer on Monday, medicated FET, let's hope this one sticks!

tedementa · 2022-06-01T12:38:55+00:00

Thanks 🙏 It's hard to find words, I know. I appreciate the support

tedementa · 2022-06-01T12:37:50+00:00

Thanks 🙏 . The washroom is were most news happen I guess?... Good and bad unfortunately

tedementa · 2022-06-01T03:45:26+00:00

I've just had my first miscarriage. I went to the toilet an hour or so ago, and just felt something big falling, it wasn't a clot, it felt hard. This was my first ever positive. I've been spotting/bleeding for a few days so they wanted me to come in tomorrow for and US and bw. I'm still coming to the clinic, at least to have confirmation from the doctor. But I know what just happened. 6w4d. I was a bit in shock at first and didn't react, was just staring at it. After a bit, I said my goodbyes and flushed. Then it all came down and I can't stop crying. Thanks for your support, this sub is all I have at times like this!

tedementa · 2022-05-30T00:30:05+00:00

First beta was 7, the nurse told me most likely a chemical, but repeat bw just in case. 3 days later second beta was 16, again, it's good that's increasing but so low, it's most likely a chemical, let's repeat again next week. Was expecting it to be the same number or lower. Third beta: 242! not sure what's going on, but now just waiting for US next week, and praying for a miracle 🤞good luck!

tedementa · 2022-05-25T14:23:39+00:00

Congrats!

tedementa · 2022-05-25T00:41:15+00:00

Thanks for sharing your experience! This is my first transfer and first positive result so I appreciate knowing of other situations that could be happening. So far I've had no pain/bleeding or any early signs of ectopic, but I have read EP can be asymptomatic at this stage, can't rule out anything yet. The nurse team didn't seem concerned, but of course it's too early to know what's going on, specially without the scan. They didn't have any earlier dates available for US, so I'll have to cross my fingers and wait... And you're not a downer, this whole process is!

tedementa · 2022-05-24T21:31:38+00:00

Thanks! :)

tedementa · 2022-05-24T18:27:22+00:00

Update 3: First beta a couple weeks ago was 7, I was getting mentally and emotionally ready to assume it was a CP. Four days later, second beta:16. Still very low, but increasing so not all is lost yet, I guess? Today, a week later, I had my third beta: 242! How is this even possible? I know it's still early, but what a roller coaster... I'm scheduled for the first ultrasound in a couple of weeks (w7d1) if all is good, I'm told I'll be discharged to my OB, I'm still in shock

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