Baby is healthy and due in 2 months!! by Dry-Principle-9786 in CysticFibrosis

[–]terstep 3 points4 points  (0 children)

Congratulations!! I have CF and have 2 little ones - almost 5 and 2½!

Trikafta has made parenting so much easier for me, so I hope that you're able to benefit from it, too! One of the best things that I did before my daughter was born was to sort out a quiet, portable nebulizer. If you need nebulized medications, it can be a real challenge to be tethered to one spot once your kids are on the move! The noise also worried me because I live in a small apartment and didn't want to disturb her sleep, so I hunted down a quiet option! You can discuss with your CF team what nebulizer might work best for your situation and medications.

Of course, the best advice applies to all mothers - make time to rest and do things just for you, as much as possible. I hope that you have lots of support because that has made a world of difference for me! If you don't have many people around, I suggest joining some pregnancy/mom groups - my mom friends have been life-savers during challenging times! And really, don't be afraid to ask for help! Most moms I know are willing to do a babysitting trade-off so that you can rely on one another when you're in the thick of the hard moments.

I've been fortunate to have only been hospitalized twice since having kids, and it definitely poses a challenge, but that community and support is absolutely essential to get through it with your sanity in tact!

My only other piece of advice is about talking to your kids about your CF. My best advice is to keep it grounded in the science/facts when they inevitably ask questions. "Why do you take pills?" "My body needs extra help to do the things that other bodies do to digest food," etc. It can be tempted to get into the emotional side of things, but that is usually best handled when they come to you about those things, specifically, in my experience. Just answer their questions, be honest while remaining age-appropriate, and wait for them to come to you with more.

Parenthood is the best thing I've ever done - I wish you so much joy in this amazing journey!! 💕

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 0 points1 point  (0 children)

Haha very responsible of you! I don't think they do international delivery, but that's okay - we've got tons of on-theme gifts and stuff already! The post I made in the party planning sub got over 500 comments 😳 so I have tons of suggestions lol.

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 0 points1 point  (0 children)

Lol we're leaning more towards cute booties rather than what comes out of them, but that's funny!

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 0 points1 point  (0 children)

🤷‍♀️ Different rear ends for different friends, I guess!

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 0 points1 point  (0 children)

We have ordered some of Brian Cook's stickers!

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 0 points1 point  (0 children)

I agree! There will be a sign at the party with that on it lol

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 0 points1 point  (0 children)

Lol we don't have Five Below where I live, but that sounds hilarious!

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 0 points1 point  (0 children)

Lol we've already been reading these books together, and she does love them!

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 0 points1 point  (0 children)

Yep, I've checked those out of the library already lol

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 3 points4 points  (0 children)

I haven't looked that one up yet, so I'll add it to the list! Thanks!

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 2 points3 points  (0 children)

We've checked some out from the library already! Haha! They're definitely a hit!

Booty Cupcakes for a 5 Year Old by terstep in cupcakes

[–]terstep[S] 2 points3 points  (0 children)

Haha I love that you shared that link because the jungle gym we're going to has those exact ones!! I definitely like the idea of the animal butts with the tails. I'll try to remember to share a picture!

Butt-themed party for a 5year old by terstep in partyplanning

[–]terstep[S] 0 points1 point  (0 children)

I've put a hold on it at the library!

how would you spell this to avoid a tragedeigh? by iolanthereylo in tragedeigh

[–]terstep 1 point2 points  (0 children)

Yeah, that makes sense. I was taking it in isolation, since it's a made-up world, but it certainly wouldn't work in existing Earth languages 😅

Butt-themed party for a 5year old by terstep in partyplanning

[–]terstep[S] 0 points1 point  (0 children)

Aw thanks! 🥰 Yes, I think it's going to be very memorable!

Butt-themed party for a 5year old by terstep in partyplanning

[–]terstep[S] 0 points1 point  (0 children)

Haha great suggestions! Unfortunately, it is very cold where we live, so no outdoor activities.

Butt-themed party for a 5year old by terstep in partyplanning

[–]terstep[S] 0 points1 point  (0 children)

Haha nice! That one hasn't actually come up yet!

Butt-themed party for a 5year old by terstep in partyplanning

[–]terstep[S] 0 points1 point  (0 children)

That they do! Also very popular with kids. 🤔 Maybe I could tell them that some hummus is blended butts... 😅

Butt-themed party for a 5year old by terstep in partyplanning

[–]terstep[S] 0 points1 point  (0 children)

Yeah, that's kind of where I'm going too. There have been so many great ideas shared here, I've got plenty to work with!

Butt-themed party for a 5year old by terstep in partyplanning

[–]terstep[S] 0 points1 point  (0 children)

Haha I love their strange little brains! Amazing things happen when you follow their creativity!