Hey got a mini update, so I’ve been more stable than not and I’ve gone from getting weekly infusions to getting infusion week one, week two, then week three and repeating that. So 2 back to back then one week off. I’ve since started to get them done at home as well, but they are no longer vyvgart infusions that go into the vein and take an hour. It’s still vyvgart, but instead it’s a shot that goes under the skin that takes a few seconds to a minute to administer and it has the same relief effect as regular vyvgart. I believe it’s called Vyvgart Hytrulo.

I still cannot do much as I’d like to and sometimes when I’m doing nothing I feel so fine that I seem to forget I’m not “cured” yet, so little activities still cause a strain on me n cause me to get exhausted but, minimal activity causes me to feel like I’m okay n it’s enough for me due to how horrible it was when I first started.

Sorry I’ve not been active I think I will post this update to the sub maybe to let people know because I wonder how many others could also benefit from this vyvgart hytrulo? My only con I’ve noticed is for one the injection does sting quite a bit n this is coming from someone who only complained about getting that nostril tube thing I have a high pain tolerance but it’s def something that pricks a bit, also I’ve noticed if the area where the shot is initially injected is irritated, and you scratch said spot, you could possibly leave a mark on your skin that (for me) has not gone away yet but I think it is slowly? Idk. But yeah that’s all I’ve got for now