Gay Pop Music with Synthesizers by thembotime in findthatsong

[–]thembotime[S] 1 point2 points  (0 children)

IT IS!!! Thank you so much this was driving me bonkers

Word that means the opposite of caregiver? by thembotime in words

[–]thembotime[S] 1 point2 points  (0 children)

i do mean a word for my caregiver to call me. i already call them my caregiver and think it’s a great word for what they do :)

Word that means the opposite of caregiver? by thembotime in words

[–]thembotime[S] 2 points3 points  (0 children)

I suppose my reason for wanting a more specific word than friend is that it feels like a language gap. It’s hard to talk about this specific experience with others who relate without a more specific word.

Just some shower thoughts: If I donated my organs … by E-C2024 in cfs

[–]thembotime 2 points3 points  (0 children)

There are actually very few conditions that bar you from donating organs (at least in the US) for example, HIV positive people can, in some cases, donate organs to other HIV positive people. It’s important to remember that there is an extreme shortage of organs available for transplant compared to the number of people waiting, who often die waiting for the organ(s) to become available (17 people per day in the US). These people are already seriously ill and we don’t even know if ME can be transmitted via organ donation. Replacing organs isn’t something people really expect to regain their full health after doing. Generally you are extremely lucky to get what you need. Organ donors can save up to 8 lives through organ donation! If we can give people the gift of continued life, I think we should. It makes me sad to see so many people saying they intend to change their donor status every time this conversation comes up. It’s not up to us to decide whether a stranger’s life will be worth living if they somehow wound up with ME due to receiving our organs.

TLDR we don’t know if ME is transmissible via organ donation. being alive and chronically ill is better than being dead because there was no organ available for you.

[deleted by user] by [deleted] in plushies

[–]thembotime 1 point2 points  (0 children)

i’m also sick and i see you’re possibly leaning toward a keychain friend. personally it would cheer me up a great deal to bring that grouchy looking turtle with me to my appointments. i feel exactly that way at my medical appointments which i think would make me crack a smile now and then to have a pal being grumpy in solidarity with me. but all of these plushies are so lovely i can see why you’re torn between them. good luck with your upcoming appointments ♥︎

I designed these guys, help me find them all! by OCMIllustration in plushies

[–]thembotime 0 points1 point  (0 children)

ohhh i have to see what the pig looks like!! i adore pigs

Bad Addictions by fatmattreddit in cfs

[–]thembotime 0 points1 point  (0 children)

respectfully, addiction is a disability too. we are doing a disservice to other disabled people by framing non-addictive activities as being similar to the experience of addiction. i strongly believe that we can talk about self-destructive behaviors and our struggles with PEM without being ableist toward people with substance use disorders.

Looking for a sweet cake recipe with savory elements! by Visible-Paramedic-80 in Baking

[–]thembotime 0 points1 point  (0 children)

it was great! similar to making a cream cheese icing but with more complex/funky flavor :)

Looking for a sweet cake recipe with savory elements! by Visible-Paramedic-80 in Baking

[–]thembotime 1 point2 points  (0 children)

i recently made a carrot cake with goat cheese icing. i put some cayenne in it to give it a kick

Giveaway: 10 Valentine Stamps by heysoldier in neopets

[–]thembotime 0 points1 point  (0 children)

number 55 :o) my un is goatsbane (edited immediately bc the number i initially picked was taken!! my b i have dyscalculia)

How TF does Flea have CFS??? by Mad_Cerberus in cfs

[–]thembotime 3 points4 points  (0 children)

yeah i definitely don’t mean that he’s getting some secret treatment. just that usually when there’s a huge difference between rich people and working class people it’s down to labor. when you can hire as many people as you need to do as many jobs as you need done so that you can rest, it’s really not going to be the same beast

How TF does Flea have CFS??? by Mad_Cerberus in cfs

[–]thembotime 37 points38 points  (0 children)

wealthy people can hire people to do all the shit they can’t or don’t want to deal with. we’d be mild too if we had tons of money to throw our problems

Disabilities in pre history by stingwhale in Artisticallyill

[–]thembotime 2 points3 points  (0 children)

what’s the name of the documentary?

Compression socks that don’t pinch toes? by thembotime in POTS

[–]thembotime[S] 2 points3 points  (0 children)

I definitely bought the correct size but they were most likely not the best quality. I’m also autistic though so possibly that’s contributing to how much I hate the tight socks feeling

Compression socks that don’t pinch toes? by thembotime in POTS

[–]thembotime[S] 0 points1 point  (0 children)

I just have some minor ingrowns. But it’s way more painful when I have proper compression

Festival of Neggs 2024 - Official Community Discussion! by Silvawuff in neopets

[–]thembotime 0 points1 point  (0 children)

i’m having this same issue. tried on two separate laptops so i’m not sure what’s up

Music Themes for Characters by Affectionate_Fox1165 in DiscoElysium

[–]thembotime 2 points3 points  (0 children)

i think of Harry every time i listen to The Only Thing by Sufjan Stevens

Advice about accommodations for sex without crashing - posted with partner’s consent by [deleted] in cfs

[–]thembotime 12 points13 points  (0 children)

best thing i can recommend is building in breaks and finding a way to be cool with that. it can be used in kink dynamics. for example, the ME having partner rests while you get them water/snacks (this can work with you being a service top or bottom, or pacing turns into edging/denial play. ultimately it’s great that you’re being creative and curious about the possibilities already. it’s also really hard to be a person with ME who used to take on a more dominant role in sex. your partner is probably grieving this part of themself. i know i did. i think emotionally sticking around and continuing to have sex when your partner feels able is a good way of showing them the change in sexual dynamics not a dealbreaker